Botox for MEM (Middle Ear Myoclonus)?

[Sonja12]

Hey there,

I'm Sonja, 23 years old and from Germany. I'm diagnosed with MEM. You could see the vibrations on the long time based Tympanogram. It's fluttering, rumbling, vibrating, thumping and it's really driving me nuts. I can feel the twitching in the ears as well – on both sides.

I'm interested in Botox for MEM treatment. I must say, I have a Palate Myoclonus as well and for this Botox works really well. Does anyone here have experience of this?

They write a lot about MEM and Botox:

https://www.researchgate.net/public...nnitus_due_to_stapedius_myoclonus_Case_report

https://www.sciencedirect.com/science/article/pii/S0165587618304798

^^ This is very interesting. Above, Botox helped in the case of a little girl even after a surgery had failed.


Thanks so far, Sonja.

 

[JeanettVDavidsen]

Hi Sonja. Did you find a surgeon who could do the botox?