Hello
@brownbear !
Hi
@GregCA. Agree with you about how do you define habituation. Personally I feel habituated when my T is not bothering me at all and I feel totally at ease, even though I am still aware of it most of the time. Some days are still better than others. Do you ever get any brief moments of not noticing it or feeling at ease with it? If so, is there anything predictable about those times?
Yes every once in a while I have moments when T takes the back seat. It's generally for a very short period of time - perhaps seconds. Not sure about predictors, but what seems to help is to be outside (natural sound enrichment) and focused on something that requires brain attention to "solve".
Have you tried just going back to basics with it and picking up a long lost hobby etc (I expect you have so don't mean to sound patronizing!). That kind of thing has helped me although it was a real struggle to start doing anything initially. I had some success with quite fast paced activities like table tennis, computer games and surfing which require you to be very engaged mentally.
My best escape currently is to play my drums. They're electronic drums so I can adjust the volume to be reasonable, and when I play there are times when the T feels like it's behind everything else and not intrusive.
I also (like you) play video games, as they have similar sound enrichment and attention grabbing properties.
I also do a meditation where I spend a long time listening to all sounds around me, including the T, in great detail, examining in my mind the sounds (near and far) as much as possible. Then after say 20 minutes I say out loud 'now let go of sounds' and observe something else eg my breathing. It doesn't work straight away but after some practice this has helped me.
Great! In a similar vein (albeit different tool) I use CBT to push back thoughts that tend to stem from my degenerative disease (otosclerosis) that has been so aggressive in attacking my cochlea in the past. That helps me keep a lid on anxiety most of the time.
I'm sorry you feel blamed at times for lack of positivity. I don't think positivity has much to do with it sometimes. You can probably tell that I try to be a positive as possible, but it is not that which helps me to feel at ease. The best days I have are when I am being neither positive or negative, I'm just not engaged with the T AT ALL.
Indifference is a good goal indeed. I don't engage with my T in the sense of voluntarily giving it attention. It's because it is perceived by my body as a stimulus equivalent to pain that I get my sensory system ring all kinds of alarms. I have multiple T sounds: some of them are just that - sounds - but others are piercing to the point that if I didn't know it was generated internally I'd cover my ears with my hands to protect against this aggression.
I sometimes try to explain it with a parallel to vision. If your vision was failing for whatever reason and in your field of vision you had a full moon showing 24x7 it'd be annoying. We've all looked at a full moon: it's not harmful but if it were to "be there 24x7" it could certainly be annoying and generate some anxiety. If instead of the moon you had a sun 24x7 in your field of view, it'd be more than annoying - it'd be painful, and it'd be pulling all kinds of hard wired alarms in your body.
I do know that there are some statements made by doctors claiming that the sound itself and its intensity don't matter. I don't agree with that obviously, especially because I have multiple kinds of sounds so I have first hand experience with both use cases.
Also anecdotally from someone who sees lots of distressed T patients, they feel that those with a very variable degree of T (especially when it disappears completely for a period) find it very hard to cope with the fluctuating signal. Obviously this will vary from person to person but I wonder if you could try to turn the persistent nature of your T into a positive somehow.
Here's how I spin it positively: "My T is constant, so it's not getting any worse!"
It's interesting to know that people with fluctuations are negatively affected by them - it's a bit counterintuitive to me, as I'd see it as a positive if I had a day in the week where my T was milder, but of course I'm not in their shoes so I don't understand well what's affecting them - perhaps the unknown.