@Codaz , What has been involved with your TMJ therapy?
TMJ is in my area a specialism that is only practiced by a hand full of therapists. Not only is the official requirement for craniomandibular therapists a university degree, but also not a lot of general physiotherapists choose to do it. In short: knees and elbows are more popular under therapists.
I have a team of 4. 1 senior jaw therapist who already is working with jaws since the 90's and 2 juniors who are doing their masters education right now. The fourth is working on my neck with various manual therapy techniques.
It all depends on how much pressure the jaw therapist uses on your cheeks. With their thumb (with gloves on) they go inside the mouth and the other four fingers are placed right under your ear (lower jawbone) or on the position before the ear on the cheekbone and the interconnecting junction that connects these two bones.
I'm asked to bite a little bit on their hand and then the muscles are massaged with various pressure. Last week I was almost crying of pain. The thumb which is inside the mouth reaches as far as possible behind the teeth in order to give the necessary back pressure from inside the mouth. So the cheek is hold very firmly between the thumb and other four fingers only seperated by the skin.
Other movements indicate total movement of the hand of the therapist while still pinching the cheek from the in and outside as described in circular clockwise and counterclockwise movement for the masseter muscles.
I definately feel pain and tension from the back of my jaw via the masseter muscle flowing up right to my nose.
In order to work on the temporalis muscles the four fingers are moved to these position while the thumb still stays in the mouth. Or the therapist sits behind my head on a stool and massages the outer muscle attachment, as these produce the most pain and headaches.
Each therapist uses their own tricks to set pressure on the muscles. Some also work on the splenius capitis muscles but they have set their priorities now to the sternocleomastoides as time is limited per therapy session. Sternocleomastoide muscles are tensioned while you nod and have an indirect influence on tinnitus level, since they basically put tension on your face while nodding.
I started measuring nodding level with a pressure meter with my fourth therapist, which works on my neck. Nodding goes in various degrees of head tilt. If you tilt your head too far (chin is on your chest) tinnitus is increased a lot. For now I'm only allowed to tilt my head with very small movements forward, very little degrees forward. Practicing this 10 times and hold in that nodding position for 10 seconds before release into original position. I am only allowed to practice while laying on my bed with a rolled up towel under my neck for support.
Every four weeks progression is consulted and adjustments are made. So far the major headaches on the top of my head are mostly gone.
I did over 70 sessions now combining the 4 therapists. Tinnitus has changed a lot but is not gone as the problem is multi staged. It also involves facial pain / headaches / eye pain / nausea / fatigue and other problems that we try to counter. The problem with chronic muscle pain is that tension builds up over time again and is related also to stress. So eventually I have to visit the therapists again after some weeks or matters get only worse. More pain, more tinnitus and so on.
So far it's the only thing that helps apart from the bite occlusional splint / NTI-TSS splint.
However, while therapy is a recurring event in my life the effect diminishes over time. The first year I had bigger steps in lowering T than the second. The third year I had again some big results but the fourth year so far the left ear is gone much worse and I still don't have any clue why such a setback happened.
Other option is the anesthesiologist and general pain team in the hospital which I'm hoping to visit later this year or in 2018. It all depends on getting a referral letter which is quite troublesome. Opinions differ on whether more specialists could be of any help apart from psychological councelling which is less invasive in their opinion. I have to convince MD's in order to try new stuff since the isn't any treatment indication in multi disciplinary fields. In short: jaw surgeons don't know anything about facial pain and facial pain specialists are unaware of neck physiotherapy needs. I have to connect the dots myself in order to get relief.