After a 9 day hiatus, I took 0.5 mg of Clonazepam and felt normal again. What a sad state of affairs. Currently meeting an ENT to trial Gabapentin and Flupentixol with a view to trialling each for a few days, seeing if 1 or 2 of them work and if they do, sticking them in the tinnitus toolbox and developing a method of limited sporadic safe use without major interactions.
It's a minefield of working out ideas. These seem like the only 3 meds that offer a reasonable % some form of reduction in symptoms.
Xanax I wouldn't touch due to short half life and it's banned in the UK as seen as dangerous.
CBT with an audiologist is only available in limited areas of the UK. So with severe bilateral reactive tinnitus, what are you supposed to do? My logical mind says look at what a decent amount have success with + studies to back it up and trial them on an individual basis.
So it may be a weird conversation with the ENT asking for:
1) 6 mg Clonazepam/month
2) 6 x 0.5 mg Flupentixol/month
3) 6 x 300 mg Gabapentin/month
Report results & side effects.
Number 1 works for me. I've established it with sporadic use, so I figure trial 2 & 3 and keep any that work, report back and formulate a plan.
Current regular medicine is Mirtazapine 30 mg @ night.
The days are torture. I can't be sure whether this looks like an idiosyncratic idea of avoiding the regular Clonazepam/Gabapentin/Deanxit routine or a feasible but scattered plan.
@Mentos, you always write well and I enjoy reading your input. Any side effects with Deanxit? Does Flupentixol lower the volume or just make you not care?