Constantly Spiking Tinnitus — Bedsheets, My Own Movement, You Name It

teayom

Member
Author
Sep 21, 2024
19
20
Kansas
Tinnitus Since
08/2024
Cause of Tinnitus
Stress
I have been dealing with hyperacusis and tinnitus for over a month.

My tinnitus seems to spike at nearly everything. My bedsheets, my own movement, you name it.

Do I need to plug up 24/7? When I plug up, it feels like my tinnitus spikes to itself. Will it settle without plugging up?

I'm at a loss.

P.S. I should also add that I tried plugging up last night, but I got a new tone. Could the answer be to stop plugging up entirely? Then what should I do about my hyperacusis?
 
Do I need to plug up 24/7? When I plug up, it feels like my tinnitus spikes to itself. Will it settle without plugging up?
No, you can't control the tinnitus. It will do what it wants, when it wants. Avoid loud places.
 
It sounds like you may be experiencing "reactive" tinnitus (a non-medical term), which refers to mini spikes in response to noise.

Your tinnitus seems to be particularly sensitive to noise right now, likely because it's still very new and raw.

It's important to avoid noise for several weeks to prevent worsening your tinnitus. Whether you should avoid moderate or just loud noise is hard to say, as tinnitus varies for each individual. You'll need to be patient and find your own way through trial and error.

Many people report that reactive tinnitus becomes less sensitive over time. However, some may need to adapt and learn to live with it.

Since you've had it for a short time, there's a possibility it might improve or resolve to some extent.

You mentioned that your tinnitus was triggered by stress. Is there a way for you to reduce your stress? Perhaps consider taking medical leave from work or moving to a quieter environment to rest for a while.
 
It sounds like you may be experiencing "reactive" tinnitus (a non-medical term), which refers to mini spikes in response to noise.

Your tinnitus seems to be particularly sensitive to noise right now, likely because it's still very new and raw.

It's important to avoid noise for several weeks to prevent worsening your tinnitus. Whether you should avoid moderate or just loud noise is hard to say, as tinnitus varies for each individual. You'll need to be patient and find your own way through trial and error.

Many people report that reactive tinnitus becomes less sensitive over time. However, some may need to adapt and learn to live with it.

Since you've had it for a short time, there's a possibility it might improve or resolve to some extent.

You mentioned that your tinnitus was triggered by stress. Is there a way for you to reduce your stress? Perhaps consider taking medical leave from work or moving to a quieter environment to rest for a while.
Yes, I'm currently mostly homebound since I quit college. I was avoiding or protecting myself from loud and moderate noises even at the beginning of my journey, but my condition still continued to worsen.

Do I need to avoid *all* sound? I try wearing earplugs or earmuffs, but they seem to make my tinnitus worse, almost like it's spiking in response to itself.

I still cry every day because of my situation, but I'm trying not to. It's just been so exhausting.

Also, do my bedsheets rustling count as moderate noise?

Update: I wore earplugs for about 30 minutes while cooking, and my tinnitus spiked really bad when I took the earplugs out. Why is this happening to me? I just want to give up.
 
Plugging your ears or using earmuffs often makes tinnitus seem louder, which is completely normal.

Try to avoid crying, as it can create moderate-level sounds that may affect your tinnitus.

Could the sound frequencies from the rustling of the bedsheets be triggering your tinnitus?

It seems like your tinnitus is reacting to moderate sounds, so it's best to protect your ears from those sounds for the next few weeks.
 
It seems like your tinnitus is reacting to moderate sounds, so it's best to protect your ears from those sounds for the next few weeks.
Is it okay to wear earplugs 24/7? My phone's decibel reader shows that my room is consistently around 50 decibels, and I don't have anywhere else to go in the house—it's 50 decibels everywhere.

I also have some upcoming doctor's and therapy appointments. What should I do about those?

I apologize for asking so many questions; I'm just at a loss for how to handle this without making things worse. :(
 
Do soothing sounds, like ocean waves or rippling water, provoke an adverse reaction for you? Or perhaps they might be calming. When I had severe hyperacusis and tinnitus, I found there were very few sounds I could tolerate. The sound of flowing water—such as when watering the garden—or using a sound generator helped somewhat. Oddly enough, playing classical guitar also brought relief; it became a form of meditation.

For doctor appointments, remember to wear your earplugs if you'll be exposed to traffic or other loud noises, even moderate ones, and especially unexpected street noise.

The early days can be the most challenging. I never thought I would make it through the first four months, but things have greatly improved since then. Sleep is crucial.
 
Understand that I am not a doctor.

I believe that earmuffs are better than earplugs for extended wear since they allow your eardrum and ear canal to "breathe." Perhaps consider using earplugs while sleeping.

An ambient noise level of 50 dB is quite loud for a room. Do you know what's causing it? Are you in a particularly noisy apartment or flat?

Are you able to attend your medical appointments online? If you go outside, you'll likely be exposed to noise levels well above 50 dB. When going out, consider wearing earmuffs as well for double protection.

There's a possibility that traveling to these appointments could expose you to loud sounds, potentially worsening your tinnitus. I hope this doesn't happen, but I'm just trying to anticipate possible challenges in the coming weeks.

Doctors often have limited options for treating tinnitus. They may prescribe antidepressants, which could worsen your symptoms, or refer you to an ENT specialist or audiologist. Unfortunately, these specialists might suggest a hearing test, which itself carries some risks for tinnitus sufferers.

You might also find that some doctors don't fully understand or take your condition seriously.

I know this doesn't sound very positive, and I recognize that you may be feeling incredibly anxious and distressed.

You're in the very early stages, and patience is essential. Preventing your tinnitus from worsening should be your top priority. Staying in a quiet room for the next several weeks, or even months, could help your auditory system calm down. However, I understand that this could be mentally challenging.
 
Understand that I am not a doctor.

I believe that earmuffs are better than earplugs for extended wear since they allow your eardrum and ear canal to "breathe." Perhaps consider using earplugs while sleeping.

An ambient noise level of 50 dB is quite loud for a room. Do you know what's causing it? Are you in a particularly noisy apartment or flat?

Are you able to attend your medical appointments online? If you go outside, you'll likely be exposed to noise levels well above 50 dB. When going out, consider wearing earmuffs as well for double protection.

There's a possibility that traveling to these appointments could expose you to loud sounds, potentially worsening your tinnitus. I hope this doesn't happen, but I'm just trying to anticipate possible challenges in the coming weeks.

Doctors often have limited options for treating tinnitus. They may prescribe antidepressants, which could worsen your symptoms, or refer you to an ENT specialist or audiologist. Unfortunately, these specialists might suggest a hearing test, which itself carries some risks for tinnitus sufferers.

You might also find that some doctors don't fully understand or take your condition seriously.

I know this doesn't sound very positive, and I recognize that you may be feeling incredibly anxious and distressed.

You're in the very early stages, and patience is essential. Preventing your tinnitus from worsening should be your top priority. Staying in a quiet room for the next several weeks, or even months, could help your auditory system calm down. However, I understand that this could be mentally challenging.
I live in a house in a suburb, but I'm unsure why the website says it's 50 decibels here. I hope that's just an error. However, I have been feeling worse from not wearing ear protection in my room, so maybe it really is 50 decibels. I can't understand why it would be that high, though.

My parents want me to see a therapist and a tinnitus specialist this month.

I just don't understand why my symptoms worsen when I'm literally not doing anything. Most of my day is spent in my room. At this point, I'm almost willing to blame my bedsheets. Or maybe it's the ear protection itself, and I need to stop using it.

Every day, I feel like I'm being punished just for existing in my own body.

This week, I'm going to try wearing ear protection 24/7, with only small breaks. However, it's hard to know if it will help because my tinnitus spikes when I wear protection. I know that protection can make tinnitus seem louder, but when I take it out, the tinnitus is noticeably worse for a few hours.

I really hope things settle down in a few weeks. I'm scared, though, that I might be one of those people who get worse no matter what they do.

It makes me sad because I'm a 20-year-old woman, and I was just starting to enjoy life. Tinnitus and hyperacusis have taken that away from me.
 
The early days can be the most challenging. I never thought I would make it through the first four months, but things have greatly improved since then. Sleep is crucial.
How did you approach your healing process? Did you wear earplugs or earmuffs in most situations?
 
How did you approach your healing process? Did you wear earplugs or earmuffs in most situations?
My experience was somewhat different from yours. For instance, the sound of bedsheets didn't bother me. What did help a bit was self-massage with organic sesame oil, as well as sessions with a massage therapist. This seemed to calm my nervous system. I especially focused on massaging my scalp, the mastoid process behind the ears, and the outer ears. I also stopped consuming coffee and other caffeinated foods because I was experiencing panic attacks for the first and only time in my life. Additionally, I eliminated sweets and cold foods, like ice cream, from my diet. Instead, I chose warm comfort foods such as hot oatmeal, soups, and chicken pot pies.

The worst of my experience occurred from late spring through early autumn. I had to close my windows and storm windows to block out sounds. For example, I couldn't tolerate the sound of crickets, and my neighbor's air conditioner sounded as loud as a Boeing 747. Closing the doors and windows was usually sufficient, but when I installed mini-splits, even their gentle sound became too much. I would cool one room and retreat to another for silence. I also used silicone earplugs in the shower and sometimes when driving, though I limited my driving to short trips for groceries. (I still wear earplugs in the shower, and I use noise-canceling headphones when flying. I bring earplugs to classical concerts or movies. However, restaurant noise is tolerable now, so I no longer use earplugs in social settings.)

In the early days, I lived in a small town and was able to walk on side streets and in the forest. I would sit on moss-covered banks, trying to relax. I learned a few mantras and chanted them, which helped keep my mind occupied and may have had a soothing effect. Pranayama (yogic breathing), particularly alternate nostril breathing for up to 20 minutes, also calmed me down.

I couldn't listen to CDs because I could hear the electronics almost as loudly as the music. However, I could play my nylon-string guitar and spent hours playing mellow music and singing on my porch. (It's strange how some sounds were soothing while others were unbearable.) I also found that using the computer exacerbated my tinnitus within a minute or two, perhaps due to the screen light or the fan. Thankfully, this is no longer an issue.

One acupuncturist, out of many I tried, was able to reduce the symptoms temporarily, so I saw him twice a week. Pink noise ear devices—though expensive—helped somewhat. I got these after about four months of intense suffering. It's possible my tinnitus and hyperacusis were already improving slightly, but it was still extremely difficult. Many hearing aids now include white noise, with variations like pink and brown noise, which some find soothing. I also used sound machines with ocean sounds throughout my apartment. I tried hypnosis tapes specifically for tinnitus, but they were too repetitive for me.

My sleep was severely disrupted. I would doze off for an hour or two and then wake up. Eventually, I began taking clonazepam (1.5 mg) before bed. While valerian and melatonin are safer choices, I was desperate. Even now, over 12 years later, I still take 1 mg of clonazepam at 9 p.m. I once tapered off it about five years ago without much trouble, but after several months, my tinnitus increased, so I resumed taking it. It's uncertain whether the spike was even related to the taper.

Perhaps some of these approaches could work for your body and situation. Others have found different techniques that helped them through the first few months. In many cases, people eventually habituate, with hyperacusis and tinnitus diminishing over time. The strategies I used, at least, helped me endure some very difficult days.
 
You're in the very early stages, and patience is essential. Preventing your tinnitus from worsening should be your top priority. Staying in a quiet room for the next several weeks, or even months, could help your auditory system calm down. However, I understand that this could be mentally challenging.
Hello! I'm very sorry to bother you, but for the past three days, I've been staying in the quietest room in the house and protecting my ears whenever the vents turn on.

I've noticed that I've become even more sensitive and reactive. Could the silence itself be contributing to this?

Now, I have a reactive tone that seems to overlay literally everything. I'm reactive even when I wear my earmuffs, though when I take them off, the reactivity is noticeably reduced.

What do you think about this?
 
I've noticed that I've become even more sensitive and reactive. Could the silence itself be contributing to this?

Now, I have a reactive tone that seems to overlay literally everything. I'm reactive even when I wear my earmuffs, though when I take them off, the reactivity is noticeably reduced.

What do you think about this?
Staying in silence can increase sensitivity, which may lead to hyperacusis. If you're more concerned about tinnitus, you might not need to worry too much about hyperacusis, as it often resolves on its own over time.

The new reactive tone seems to respond better to ambient sounds rather than blocking external noises. Try allowing your ears to pick up normal sounds in your environment. Ideally, quieter ambient sounds to keep your auditory system engaged in its intended function.

It's understandable that you're analyzing and noticing every small change. You're learning more about your condition and how to manage it every day.

You're still in the early stages, and there's hope that your condition will settle in the coming months.

You need to draw on your reserves and find a way to handle this patiently. Can you read books, watch Netflix, or take an online course? Distracting yourself might be a sensible approach for now.
 
Staying in silence can increase sensitivity, which may lead to hyperacusis. If you're more concerned about tinnitus, you might not need to worry too much about hyperacusis, as it often resolves on its own over time.

The new reactive tone seems to respond better to ambient sounds rather than blocking external noises. Try allowing your ears to pick up normal sounds in your environment. Ideally, quieter ambient sounds to keep your auditory system engaged in its intended function.

It's understandable that you're analyzing and noticing every small change. You're learning more about your condition and how to manage it every day.

You're still in the early stages, and there's hope that your condition will settle in the coming months.

You need to draw on your reserves and find a way to handle this patiently. Can you read books, watch Netflix, or take an online course? Distracting yourself might be a sensible approach for now.
I already had hyperacusis, but it seems to be getting worse. Maybe I experienced a setback that I wasn't aware of.

Should I wear earplugs and have ambient sound in the background, or should I avoid the plugs? Is it okay to sit and listen to sounds like air vents, even if they trigger reactivity?

I'm having issues with my ear muffs and plugs. When I move, it seems to increase my tinnitus. My tinnitus also spikes in response to external sounds, even when I'm wearing plugs or muffs.

For example, yesterday I was wearing muffs, and each time I cracked my knuckles, my tinnitus intensified.

I should also mention that I have multiple tinnitus tones. Some are reactive, while others are not.

Right now, I'm tapering off my antidepressant to see if it's contributing to these issues. My tapering process will be done in a week, though it may take a while for my brain to adjust afterward.

I apologize for asking so many questions; I just feel really lost.
 
The ideal situation would be for you to expose yourself to 'normal' sounds that don't aggravate your tinnitus.

You're asking very specific questions where there isn't a clear right or wrong answer. Some people may suggest exposing yourself to sound and tolerating the reactivity to gradually reduce sensitivity. Others might advise protecting your ears until the reactivity subsides. Some may even recommend a combination of both approaches.

There are few proven treatments for reactive tinnitus, and the medical community doesn't even officially recognize the term 'reactive tinnitus.' This shows just how rare this condition is.

Regarding your antidepressants, when did you start them? Did you notice any changes in your tinnitus after you began taking them?

You're certainly on a journey. My main advice is to avoid sound levels that could permanently worsen your tinnitus. It's important to be careful, as difficult as it may be to consider, because your condition could worsen if not managed properly.

There's a difference between temporary spikes and permanent worsening. Reactive tinnitus is often so sensitive that it can continuously spike in response to noise.

Remember, you're still in the early stages. There is hope for improvement. Just be careful and patient.
 
Regarding your antidepressants, when did you start them? Did you notice any changes in your tinnitus after you began taking them?
I've been taking Pristiq for two years, long before any of my symptoms started.

Now, I'm trying to clear everything out of my system. Since hyperacusis and tinnitus are closely related to brain activity, I figured it might be beneficial to give my brain a chance to recalibrate on its own.

It would be a relief if, once my taper is complete, I stabilize. However, I'm also preparing for the possibility that this might not happen, and planning my next steps from there.
 
I've been taking Pristiq for two years, long before any of my symptoms started.

Now, I'm trying to clear everything out of my system. Since hyperacusis and tinnitus are closely related to brain activity, I figured it might be beneficial to give my brain a chance to recalibrate on its own.

It would be a relief if, once my taper is complete, I stabilize. However, I'm also preparing for the possibility that this might not happen, and planning my next steps from there.
If you've been on the medication for years, now may not be the best time to taper off. Generally, wear hearing protection only when necessary, unless you experience pain from hyperacusis. Tinnitus will react to everyday sounds in its own way. Avoid prolonged exposure to loud noises, and if that's not possible, use over-the-ear protection.
 
If you've been on the medication for years, now may not be the best time to taper off.
I plan on waiting a month or two after my taper to see how I fare. I'm also doing the taper according to my psychiatrist as this medication has notorious withdrawal effects if done too quickly.

I experimented earlier in my journey by intentionally skipping doses on two nonconsecutive days. I seemed to stabilize when I did, although it could have had no correlation. Perhaps it could have been a placebo effect.

If I fare worse, I'll consider hopping back on Pristiq or a different antidepressant.

I appreciate all the advice I have been given so far on Tinnitus Talk. Thank you so much everyone :)
 

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