Coping with Tinnitus. My Story.

Helen Louise

Member
Author
Apr 21, 2017
9
Tinnitus Since
2011
Cause of Tinnitus
Ear infection / flu
I'm 29, I've had Tinnitus for around 6-7 years.

For me, my condition is most noticeable during nighttime when I go to bed. As soon as I put my head on the pillow and all is quiet, then tha'ts when the noise kicks in.

So what noises do I hear exactly... well, it can vary but the most common sound is a high pitched ring, and sometimes other tones can add to the mix, annoyingly.

The story of how my tinnitus came about is a very vivid memory which I can remember like it was yesterday. I came down with flu and a nasty throat infection. I was completely blocked up and had sore ears, throat and just generally very run down. I can remember one morning lying up in my bed, looking out of my window at the blue skies all calm and quiet and then all of a sudden the 'eeeeeeeee' noise just happened, just like that.

I freaked out and started poking at my ear, panicking and wondering what the hell was happening. I called up my Mum up in a panic and she did the typical Mum thing of calming me down and explaining that in my condition (having flu) it was not uncommon to have this, which it isn't.. so I held out for a few days with this ringing in my ear with the hope that it would hopefully die down as soon as the flu had subsided.

....6 years later. Yep, still ringing.

Some people suffer terribly and hear loud ringing all throughout the day but for me every day sounds mask the noise however every night I can count on hearing the noises in my head.

I appreciate there are some out there who suffer a lot worse, some so bad they've contemplated ending their lives just to be free of the torturous noise that interferes with their every day lives. It's really very upsetting in some cases.

There are methods to try to temporarily relieve the noises and I've tried them all but for me, these methods haven't worked.

How I deal with my Tinnitus is really the only solution I can foresee for as long as I have it, which is, to ignore it.

I've had it now for around 6 years which for me is a long enough time to be able to accept my Tinnitus as 'normal'. There are definitely nights where I lie there and think 'Oh hello ringing...I forgot you were there, FML!' but then I could go days, even weeks and totally blank it out.

By the time I hit the pillow I am usually at the point where I've either already fallen asleep on the sofa or I am tired enough to instantly crash. And I think for any Tinnitus sufferer you will agree that it's probably a good idea to go to bed when you know you're actually going to fall asleep, not just lie there and try to fall asleep, because then you'll start listening to the not-so sweet sounds ringing in your inner ear.

I do find since having Tinnitus my ears are extremely sensitive to noise, so I don't really like loud noises really ever but I will deal with certain situations like being out in noisy atmospheres or gigs etc if I have to.

My advice to anyone who has Tinnitus or has recently caught onto the condition, is that YES it is incredibly frustrating at the thought that there is no cure or long term relief for this is quite scary and upsetting but DO NOT allow it to take over you, your emotions and your every day life. You can still see a specialist and get information to help relief or lessen the noise.

We all get affected by Tinnitus in different ways but I promise things will get better in time and the more you learn to accept it and live with Tinnitus then the more you will understand how YOU will be able to cope with it in your own way, every day.

I would love to hear how you cope with the condition.

I've found reading or listening to other peoples conditions and how they've learnt to cope with things has been one of the the best types of relief for me!

Today I made an appt with the doctor and I'm hoping it leads to a referral so that I can see a specialist as it has become more noticeable in the last couple of months, there are also other problems areas surrounding tinnitus that I should get checked up, but I won't go into all that now as I've already written an essay here!

I made a video on my story - watch my video:

'

Helen x
 
@Helen Louise

Welcome to the forum Helen. Thanks for posting your story here as you seem to be doing quite well on youtube. If Markku and Steve are looking for a spokeswoman for TT and to spread tinnitus awareness, you have what it takes to do well, both in physical attributes, your on-screen ability and your experiences living with T for so long. It is nice to know you have T for almost as long as I have and are doing well. I also have the high pitch version of T but mine can be with me 7/24 for days during the spiky times. However like you I am already habituated or hardened to my high pitch T and even though I can hear it above the jet noise or above the raging rapids of the salmon river I fish, I don't care much about it and have learned to ignore it as you say. So life goes on for me with T high or now.

If your T increases recently, it may be due to some other reasons. There are many causes which can trigger or aggravate tinnitus including but not limited to drug reaction or side-effects from ototoxic drugs, ear wax build-up, ear or Eustachian tube infection or ETD, ear drum injury, fluid build-up feeling pressured, TMJ, TTTS, high blood pressure or blood circulation problem, loud noise exposure, acoustic trauma/shock, head trauma & injury, neck injury or muscle problems, hearing loss, Meniere's, barotrauma from sudden change of air pressure such as flights, slapping of the ears, grief for the loss of loved ones, untreated sleep apnea, elevated stress, anxiety & panic disorder, etc

Anyway welcome again and thanks for the message. Take good care. God bless.
 
@billie48 Thanks for much for taking the time to read. I will take on board all your reasons for why it may have got louder. I'm in face going to the doctor to hopefully get a referral on my tinnitus. I will let you know how I get on :) Thanks again!
 
@Jenni8619 Hey! Thanks so much for reading/watching and for your nice comments. So glad you got those positive vibes from it. I've since done another video with an update - you should check it out x
 
@Helen Louise ,@Markku
We would like to use your story for Tinnitus Awareness and video to advertise then in blogs etc and maybe on Tinnitus Hub ,Twitter etc.

Could we have your permission to do so ?

Love glynis
 
Thanx Helen Louise for your inspirational chat, feels good to hear someone else talk about this condition and relate to that. I've had T and H (Hyperacusis) since 2012, after visiting an extremely loud clothing store with my daughter, that store was Abercrombie & Fitch in London. It was absolutely dreadful, but my daughter thought it was the coolest place on earth, I had promised her we would go there and once we were in, I didn't want to disappoint her by leaving straightaway, so I stayed for about 20 minutes and that did me in. Have had continuous buzzing ever since, it's kind of an electronic sound. I've found a way to deal with this thing, by totally accepting it as a basic and fundamental part of my life. So my life has changed, it's just not the same anymore, and I would say the quality of my life has decreased, on a 0-10 scale, I would say from 9 to 7. So it's still good and worthwhile, just not as good and worthwhile as it used to be. I've always been a drummer since I was 12 (I'm 55 now), so that didn't help either, and I guess that clothing store visit was the straw that broke the camel's back. Anyway, you're not alone in this, and by sharing experiences people on this forum can help each other a bit.
Take care,
Peter
 

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