Crazy Tinnitus Spike, After Years of Stable Tinnitus (I'm a Musician)

Terry23

Member
Author
Jul 2, 2022
15
Tinnitus Since
1998
Cause of Tinnitus
Musician
Hello all,

I thought I'd share my story here in the hope of gaining some clarity and much-needed sanity regarding what has been going on.

I've had tinnitus for a long time, since 1998, in fact. I'm a musician and have spent much of my youth in bands, raves, gigs, and band practices. Need I say more?

For much of that time, I only noticed the tinnitus at night or in quiet environments. At first, it drove me mad, but over time, I got used to it and eventually forgot about it. It was much easier to cope when I couldn't hear it during the day. I took care of my ears, wearing earplugs when necessary, and continued playing music at lower volumes.

Up until 2016, I had three spikes where I could hear the noise during the day. Each spike lasted around 1 to 3 weeks. The first two were awful but eventually subsided. The last spike, in 2012, didn't affect me much because I recognized the tone and the way it felt—I knew it would pass.

In 2016, things started to change. Ironically, I had just told a friend that year how my tinnitus had been practically unnoticeable for a while. Shortly afterward, I came off a short flight and noticed the ringing in my right ear had increased. I thought, OK, not the first time my tinnitus has played up after a flight. But this time, the increase became permanent, though it was still mainly noticeable at night.

The following year, I experienced pulsatile tinnitus for the first time. It was only at night, but it was definitely not fun. Fortunately, it went away after a couple of years, and I'm fairly certain it was related to neck and shoulder tension.

Two months ago, I experienced the most severe spike I've ever had. It coincided with a stressful event and chronic neck stiffness. Unlike previous spikes, which all had the same tone, this one sounds completely different. I can hear it no matter how loud my surroundings are.

Initially, I thought it would clear up after a few weeks, as usual, but now at the eight-week mark, I'm beginning to fear this might be my new normal.

I've read that tinnitus spikes can last for months, so I'm holding onto hope. I tried acupuncture once, and it actually eased the tinnitus for a day, but it came back. The temporary relief gives me hope that a few more sessions might help.

I'm in my late 40s, but I'm a healthy athlete, don't smoke or drink, and still enjoy playing guitar, albeit at low volumes and with earplugs when necessary. My hearing seems great otherwise.

I'm really hoping this spike will return to my previous baseline. The tinnitus at night hasn't been an issue for years; it's become the sound of sleep for me. However, playing music with tinnitus as a constant accompaniment is a whole new level of horror.

If anyone has experienced similar spikes, I'd love to hear about how you coped and whether your tinnitus eventually subsided.

Thank you.
 
My onset baseline seems to be similar to what you're experiencing now, all I can say is it's possible to adjust to it. And like you said, it's possible your spike will subside too.
 
Just to give an update, the recent spike has gone down by 50% in the last couple of days.

Don't want to get too hopeful, as it could always go up again. But it's been better to the point where I'm forgetting about it, at times.

Perhaps it's the acupuncture combined with the neck release work I'm doing. My neck was bad last Saturday, and the tinnitus went crazy. Got up Sunday with the neck loads better, and the tinnitus better also. So can't help but think there's a link.

Hopefully, I'm on the way back down to baseline.
 
Annnndddd the spike came back full strength again.

I'm in the third month of this now, getting resigned to the fact that this is my new reality. Very depressing, I just can't get away from it. Getting worn down, can't be optimistic about it anymore.

Music has been my escape all of my life, now external sounds just make the tinnitus worse.

Just realized I'll never be able to go into nature and experience natural silence again. Was in the park last night listening to crickets. But it wasn't crickets, it was my tinnitus.
 
Hey, wow, our stories are similar. I've had tinnitus since the 90's too, which I got from loud concerts, and mostly ignored it -- until it started getting louder and pulsy this year. I hope it gets better for you; I'm working on managing it too.
 
Thought I'd give an update over a year later, and hopefully give others some hope.

Somewhere along the way, the tinnitus went back to the manageable baseline that I barely notice. Not sure when that happened, at some point I realized I hadn't thought about the tinnitus for months. I've been doing music as normal (keeping the volume low!), and my sleep hasn't been interfered with.

In fact, I've only remembered I have it as I'm experiencing a slight spike at the moment, but that's the first in a very long time. Or perhaps I had a spike and didn't notice, I can't recall.

It doesn't bother me, as I know it will return to baseline.

Perhaps my brain just adjusted to the new noise, I don't know for sure. But I do know I've lived the greater part of this year without tinnitus as such.

Many are struggling with this, and you hear all the time from others that it will get better. It most probably WILL get better for you. You'll find yourself thinking about it less and less, to the point where you have to be reminded you have it.

Hang in there. If it can better for me, it can get better for you.
 
I'm checking in again after nine more months.

My tinnitus continues not to bother me, and the spike has not returned. I'd have to remind myself that I have the condition.

Habituation and time really can work wonders. So, if you are suffering, hang in there. It may well get better, as it has done for many.
 
@Terry23, your story sounds familiar and is pretty much the same as mine, except I do other work to pay the bills. It is very unpleasant to rely on this for income. I know of musicians' hearing protection that can reduce sound to less harmful levels.

For me, it has been a progressive and steady decline, yet somehow I manage to keep going, though I cannot say exactly how. To start, I am very careful to avoid damaging noises and make use of constant sound enrichment. Additionally, I have been taking sedatives for over 30 years, which leaves me feeling slightly hungover all the time.
 

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