Crying, Crying and Crying...

#32
Kolisar said:
@TheDanishGirl, I'm sorry that you are having such a difficult time.



Spending time doing things you enjoy will help. And, unfortunately, some do hear it all the time, regardless of what they are doing. And, it will seem like it is driving you insane. The relentless ringing is maddening. As one who always hears the ringing regardless of what I do, the best advice I can give is too to focus your thoughts on something else (I know, much easier said than done). Sometimes I have to force myself to think about things, like doing difficult mathematics in your head (personally, I convert data to and from base64). You could try translating text to and from foreign language. You also mentioned that you enjoy painting (I am learning to draw), perhaps, if you are unable to paint, perhaps you could look at things for detail and think about how you would be able to recreate that detail in your painting. These may seem silly, or a waste of time, but they have worked for me, perhaps they may work for you as well.

@butterfly75 is correct, crying is good. You certainly do not want to suppress that for too long, obviously if you are somewhere where it is inappropriate you may want to wait until you are at a better location. For me, it is usually during my commute as I am alone in the car and have about 30 minutes on one, fairly straight, highway with minimal traffic to contend with. Also, reach out to friends and.or family (if possible).



Can you get a new audiologist? While, technically, T is all perception (technically, everything we experience is "perception"), her attitude towards your tinnitus and your suffering is not helpful and it seems that she is neither acknowledging your suffering or alleviating it. In my opinion, your audiologist needs to not only deal with the sound(s) you are hearing but also help you with the emotional trauma you are experiencing as a result of your tinnitus. You need to find an audiologist that is willing to deal with the whole problem, and you as a whole person, meaning that she is willing to help you with not only the symptoms but the effects the symptoms are having on you.

@Bleep is correct, you will survive this.

Hang in there. I know you have had good days, you are just having some very bad ones right now, but the good days will return. It will get better.
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I can always count on your great support and very good advice, thank you for that! :)

I don't know if I can get a new audiologist, but maybe I should look into the possibility of that, because I do not feel that the one I have now, can help me
 
#34
valeri said:
I don't want to sound insensitive but didn't you say your tinnitus is mild?
If that's the case maybe you need to work more on emotional side of things.
You will definetly get better, it takes time but you will get there.
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Yes, it is somewhat mild, but still it has the ability to distress me very much apparently.

I know my emotions are my enemy, and I am trying to work on that, but it is hard.
 
#38
Chaz said:
I'm not sure which one you are on, but Remeron saved me. My biggest hurdle was sleep and it aloud me to achieve that with just 15mg. Are you sleeping okay? because that seems to be the game changer for a lot of people.
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Yes I sleep like a baby, thanks to Mirtazapin.
 
#39
I am on both Venlafaxin and Mirtazapin(for sleep), but it does not seem Venlafaxin is working for me, plus I have some harsh side effects.

So from today i have begun tapering off Venlafaxin (doctor's order!) and my dosage of Mirtazapin has been increased.

There are so many AD's available, it is really a jungle out there.....It can be hard to find one which works.
 
#40
Some on this forum swear by Nortriptylin or Amitriptyline, but they have some serious side effects, so they really are a last resort.....thats's what my doctor says.
 
#41
TheDanishGirl said:
So now my monthly "friend" has arrived, a few days earlier then expected.

Everything makes sense now......although I usually don't get this severely effected.
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Hopefully you take some reassurance in that. Many women get migraines around that time (me included), so it shouldn't be too surprising that the hormone changes could both increase tinnitus and impact our moods.
 
#42
Tinker Bell said:
Hopefully you take some reassurance in that. Many women get migraines around that time (me included), so it shouldn't be too surprising that the hormone changes could both increase tinnitus and impact our moods.
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I have actually gotten a severe headache today, and I usually also get that on my period.

But yes, I do feel reassured that it is the hormones that are messing with my head and T.
 
#43
TheDanishGirl said:
I am on both Venlafaxin and Mirtazapin(for sleep), but it does not seem Venlafaxin is working for me, plus I have some harsh side effects.

So from today i have begun tapering off Venlafaxin (doctor's order!) and my dosage of Mirtazapin has been increased.

There are so many AD's available, it is really a jungle out there.....It can be hard to find one which works.
Click to expand...

One other thing you may want to look into is an over the counter drug called Meclizine. It is used for motion sickness and supposed to reduce dizziness and loss of balance due to inner ear problems. I have taken it a few times before bed and it has helped me get to sleep and wake up with lower tinnitus on a few occassions where it was very loud the night before.. The bad thing is I wake up feeling groggy and it doesn't always lower my tinnitus. I think I may have taken it like 7 or 8 times over the past few years and a 50/50 chance at it dropping. I don't remember it dropping two days in a row though. It may help to combine with melatonin at the same time, I'm not sure.
 
#44
TheDanishGirl said:
Not yet, but I will definitely try it after I have read to so many 5 star reviews on Amazon.
Can you recommend a Brand? :)
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Please don't just read the good reviews. Read some of the one and two star reviews, also. Some of them are disturbing. I agree with @JasonP's good advice, cut a tablet in half the first time you try it. This way if you have a negative reaction it won't be as severe:

https://www.amazon.com/NCI-Advanced-Research-Lithium-Orotate/dp/B000VHCU8M/ref=sr_1_2_a_it?ie=UTF8&qid=1506452111&sr=8-2&keywords=lithium+orotat&th=1
 
#45
jimH said:
Please don't just read the good reviews. Read some of the one and two star reviews, also. Some of them are disturbing. I agree with @JasonP's good advice, cut a tablet in half the first time you try it. This way if you have a negative reaction it won't be as severe:

https://www.amazon.com/NCI-Advanced-Research-Lithium-Orotate/dp/B000VHCU8M/ref=sr_1_2_a_it?ie=UTF8&qid=1506452111&sr=8-2&keywords=lithium+orotat&th=1
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I have just read some of the 1 and 2 star reviews, and I can understand that for some it didn't work and for other it made them moody, nauseous, gave them headaches ect.

Still worth trying. I can always stop immediately if I have a bad reaction to them. I will only take a half for starters though.
 
#46
@TheDanishGirl,
Venlafaxine is a hard AD to come down off and withdrawals start not long after the missed dose and anxiety so a very slow taper is needed.
I take it also.
You can expect uncontroled crying and feeling low but that is normal coming down from a AD and the extra Merazipine will start working also.
If you feel a little shaky or chills have a warm drink and put a blanket over you

Love glynis
 
#47
TheDanishGirl said:
But it does not always get better :( Lots of people here are evidence of that... people who have had tinnitus several years and are still suffering. I don't want to keep on suffering :(
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If you have experienced some improvement (compared to how you used to feel say two-three months ago), then there is a good chance that your T will continue to fade. I believe that there is a high chance of this fading if you protect your ears (i.e., stay away from places where you know the noise is going to be loud)...
 
#50
Hey Sandra, I am semi knew to this. I say semi new because I had this ringing back in 2011 when I had no clue what it was. I was take. To the hospital and they said they could not do a thing. Miraculously it went away the same day if I remember right. But this past Friday it came back more viciously attacking my anxiety. I'm on the same boat as you and it has not stopped since. Went to see the ENT specialist and didn't get any relaxing news besides the fact that he said it's only psychiatric. But I just got done crying but I must hold on for my family. Let me now if you need to talk about it. I know it's not much but I would like any help I could get from any one
 
#52
Arod_13119996 said:
Hey Sandra, I am semi knew to this. I say semi new because I had this ringing back in 2011 when I had no clue what it was. I was take. To the hospital and they said they could not do a thing. Miraculously it went away the same day if I remember right. But this past Friday it came back more viciously attacking my anxiety. I'm on the same boat as you and it has not stopped since. Went to see the ENT specialist and didn't get any relaxing news besides the fact that he said it's only psychiatric. But I just got done crying but I must hold on for my family. Let me now if you need to talk about it. I know it's not much but I would like any help I could get from any one
Click to expand...
Check out the Success Stories forum
https://www.tinnitustalk.com/forums/success-stories.47/
and also see
https://www.tinnitustalk.com/threads/spontaneous-recovery-stats-over-70-recover-3-studies.21441/
 
#53
Bill Bauer said:
If you have experienced some improvement (compared to how you used to feel say two-three months ago), then there is a good chance that your T will continue to fade. I believe that there is a high chance of this fading if you protect your ears (i.e., stay away from places where you know the noise is going to be loud)...
Click to expand...

Yes, i have experienced some improvement, and I will not subject my ears to loud noise anymore. Im too grateful and hopeful off improving to jeopardize it

I still have days where it raises to its old level, though....but im hoping their will be less and less of these days.
 
#54
Bill Bauer said:
If you listen to the sounds of crickets/frogs, you will have something else to listen to, besides your T. Chances are this will help...
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Yes, crickets is a good masker :) shower sounds are also good, but they have to be high pitched.
 
#55
glynis said:
@TheDanishGirl,
Venlafaxine is a hard AD to come down off and withdrawals start not long after the missed dose and anxiety so a very slow taper is needed.
I take it also.
You can expect uncontroled crying and feeling low but that is normal coming down from a AD and the extra Merazipine will start working also.
If you feel a little shaky or chills have a warm drink and put a blanket over you

Love glynis
Click to expand...

Thank you for your advice :)

I know that it will not be painless, but I hope it will not be too bad....my doctor advised me to reduce from 225 mg to 150 mg, and reduce 75 mg. every week, I dont know if it is too fast, but thats what she advised me to do.

Well have to wait and see.....I have taken only 150 mg. for 2 days now and so far absolutely no symptoms.
 
#58
@TheDanishGirl My first 5 months were really bad after 7 months I finally started to feel happy. My ears are still pretty sensitive that is the only problem that I have, because this makes my T spike really easy. But I feel much better. I know that after sometime you will too.
 
#59
9 days into tapering Venlafaxin and I am down to 75 mg a day now.

I am beginning to have a reaction to tapering. I am more depressed, my T seems more intrusive and I dont know if it is due to tapering, but my ears have begun to buzz more, the very low frequency buzzing that can be both heard and felt and is driving me insane.

Now I am having doubt if I should have come off Venlafaxin or not :( my doctor will prescribe another AD that will replace the Venlafaxin.

Hopefully it will work.
 
#60
TheDanishGirl said:
9 days into tapering Venlafaxin and I am down to 75 mg a day now.

I am beginning to have a reaction to tapering. I am more depressed, my T seems more intrusive and I dont know if it is due to tapering, but my ears have begun to buzz more, the very low frequency buzzing that can be both heard and felt and is driving me insane.

Now I am having doubt if I should have come off Venlafaxin or not :( my doctor will prescribe another AD that will replace the Venlafaxin.

Hopefully it will work.
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Yes I am sure it will work once you change the AD... :)

Do you receive lots of hugs from the cats ? :)
 

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