Hey guys just an update of how ive been feeling and the symptoms I have after 11 months of tinnitus.
These past two months my tinnitus have been very quiet, just a few random spikes but i guess it some hows has settled OR i might have got used to the sound, it lingers between a 2 and 4 (on a scale of 1 to 10)
sometimes the hissing returns other days its gone. there is almost always a constant tone.
these past weeks what has me worry is my vision disturbances.
i have had floaters and visual snow since my t onset.
But.. these past weeks (2 months) have notices light flashes when going to sleep, floaters but with light (there are scary but also pretty cool to watch) light sensitivity, and one day i woke up in the middle of the night and i saw crazy cell like patterns with eyes open and closed...
the first thing that came to my mind was MS.
i experience severe anxiety for a few days...
i went to a neurologist.. he order an MRI which i still haven't got BUT he told me that it didn't sound like MS...
this past week i went to an ophthalmologist and she told me that my eyes were 100% healthy and that everything seemed right and that MS was unlikely...
for 3 weeks ive been getting morning stiffness or body pain, but all over my body and it totally resolves after 10 minutes... this is cray to be honest, during the day it hurts to but very mild or in random places.
yesterday i went to a Neuro ophthalmologist , she is one of the best in the city, and she perform more test on my eyes and listen to every symptom i had (tinnitus, visual stuff and body pain)
and she told me i dont have any signs of optical neuritis, or damage, and that she often sees young patients with MS, and she told me not to worry about MS, or vision problems.
and like every doctor out there have told me "there is something going on, but i dont know what it is"
hahaha im getting used to be mystery. but at least i can function well...
it gave me a lot of comfort her opinion because she is a good doctor and also very professional.
she told me that the type of the diseases she treats are the "diseases of the surprises" but its very unlikely that i have MS, i dont see it.. get an mri to get some peace of mind, but i dont think you have MS
but also told me this i might not get definitive answers, and that i might never know what a going on with my vision/ears and other symptoms...
so that was not very comforting to be honest haha.
but what can i do?, i will still get more tests and take care of my health and of course focus on the good things in life and have fun...
there is a part of me that really wants to find out whats going on.
i have a hope that i might find the problem and cure it?
right now ive been very intrigued with this post at some random forum...
http://thosewithvisualsnow.yuku.com...e-Disease-Visual-Snow-Palinopsia#.WGbQV7bhCCR
i think i should test for lymes too...
that poster sounds totally like me.
thanks for reading!
These past two months my tinnitus have been very quiet, just a few random spikes but i guess it some hows has settled OR i might have got used to the sound, it lingers between a 2 and 4 (on a scale of 1 to 10)
sometimes the hissing returns other days its gone. there is almost always a constant tone.
these past weeks what has me worry is my vision disturbances.
i have had floaters and visual snow since my t onset.
But.. these past weeks (2 months) have notices light flashes when going to sleep, floaters but with light (there are scary but also pretty cool to watch) light sensitivity, and one day i woke up in the middle of the night and i saw crazy cell like patterns with eyes open and closed...
the first thing that came to my mind was MS.
i experience severe anxiety for a few days...
i went to a neurologist.. he order an MRI which i still haven't got BUT he told me that it didn't sound like MS...
this past week i went to an ophthalmologist and she told me that my eyes were 100% healthy and that everything seemed right and that MS was unlikely...
for 3 weeks ive been getting morning stiffness or body pain, but all over my body and it totally resolves after 10 minutes... this is cray to be honest, during the day it hurts to but very mild or in random places.
yesterday i went to a Neuro ophthalmologist , she is one of the best in the city, and she perform more test on my eyes and listen to every symptom i had (tinnitus, visual stuff and body pain)
and she told me i dont have any signs of optical neuritis, or damage, and that she often sees young patients with MS, and she told me not to worry about MS, or vision problems.
and like every doctor out there have told me "there is something going on, but i dont know what it is"
hahaha im getting used to be mystery. but at least i can function well...
it gave me a lot of comfort her opinion because she is a good doctor and also very professional.
she told me that the type of the diseases she treats are the "diseases of the surprises" but its very unlikely that i have MS, i dont see it.. get an mri to get some peace of mind, but i dont think you have MS
but also told me this i might not get definitive answers, and that i might never know what a going on with my vision/ears and other symptoms...
so that was not very comforting to be honest haha.
but what can i do?, i will still get more tests and take care of my health and of course focus on the good things in life and have fun...
there is a part of me that really wants to find out whats going on.
i have a hope that i might find the problem and cure it?
right now ive been very intrigued with this post at some random forum...
http://thosewithvisualsnow.yuku.com...e-Disease-Visual-Snow-Palinopsia#.WGbQV7bhCCR
i think i should test for lymes too...
that poster sounds totally like me.
thanks for reading!