[Danny Boy Memorial Fund] In Loving Memory of Danny Boy

[Ed209]

Sorry if this has already been answered, but who is getting the money?

I read something about student grant applications for it or something?

Whatttt, I'm confused.

There are threads detailing the journey of this fund, and the updates on the GoFundMe page explain everything.

This is the thread where the fundraiser started:

https://www.tinnitustalk.com/threads/in-loving-memory-of-danny-boy.30298/

This is the thread where donors democratically discussed where they'd like the money to go:

https://www.tinnitustalk.com/thread...to-the-beneficiary-for-danny-boys-fund.31098/

This is the thread where we discussed the vote and held a site vote (the poll is not the donors' vote):

https://www.tinnitustalk.com/thread...neficiary-to-danny-boys-fund-should-be.31200/

This is where we discussed how we would implement the vote result:

https://www.tinnitustalk.com/thread...nd-a-discussion-on-how-to-implement-it.31428/


The short story is that we are funding a grant that will go directly towards curative research.

Here's the link for the call:

https://www.tinnitus.org.uk/blog/daniel-ballinger-memorial-fund

It's also been listed in one of the main, online, ENT magazine's, thanks to David Stockdale:

https://www.entandaudiologynews.com...rial-fund-student-grant-call-for-applications

 

[jimH]

It's Sunday, October 28th and we just passed the 5000 mark! Well done and "Thank You" to all of you that have donated!...

 

[GregCA]

It's Sunday, October 28th and we just passed the 5000 mark! Well done and "Thank You" to all of you that have donated!...

Absolutely! And big thanks to the matcher! What a wonderful thing to do.

 

[Deamon22]

Fantastic

 

[Ed209]

@jimH, your donation literally came through, quite poignantly, as A Star is Born was finishing in the cinema. Thank you!

I'd also like to thank everybody for the recent donations, and I'd like to especially thank the anonymous person who kick started this with the fund matching idea (I know who it is, so if you're reading this, thank you!).

I hope you're seeing this, Danny. RIP.

 

[jimH]

I'd like to especially thank the anonymous person who kick started this with the fund matching idea (I know who it is, so if you're reading this, thank you!).

Agreed... a very special Thanks to that very generous individual!!

 

[Markku]

Update on Daniel's cause of death

In the final post mortem carried out on Daniel, the cause of death was ruled as "adult sudden unexpected death syndrome" - the coroner wasn't able to ascertain the cause of death further than that.

Our thoughts remain with Daniel's family and friends, and those who knew him.

 

[Jack Straw]

Update on Daniel's cause of death

In the final post mortem carried out on Daniel, the cause of death was ruled as "adult sudden unexpected death syndrome" - the coroner wasn't able to ascertain the cause of death further than that.

Our thoughts remain with Daniel's family and friends, and those who knew him.

I have never heard of that syndrome, but it is still tragic regardless. Even though I never talked with Daniel, I still think about his situation often.

I hope his family can find peace in this difficult time.

 

[Ed209]

Update on Daniel's cause of death

In the final post mortem carried out on Daniel, the cause of death was ruled as "adult sudden unexpected death syndrome" - the coroner wasn't able to ascertain the cause of death further than that.

Our thoughts remain with Daniel's family and friends, and those who knew him.

Very tragic at such a young age. My heart goes out to his family and his daughter. May he rest in peace; gone but never forgotten.

 

[glynis]

Daniel Ballinger will be missed on here and by his family.

Daniel's Memorial Fund and his posts will keep his memory alive.

love glynis x

 

[TuxedoCat]

Check out this news -

Eloise Koops will be speaking at the British Society of Hearing Aid Audiologists in June and the fact she was awarded the grant from Danny Boy's fund is part of her bio.

https://www.bshaa.com/News/elouise-awarded-daniel-bellinger-memorial-fund-for-tinnitus-research

Very Heartwarming.
TC

 

[Starthrower]

"Elouise said: "I am very grateful to receive the support from the tinnitus community, in honour of Daniel Ballinger. The willingness of the people with tinnitus to dedicate their time and efforts to help the quest to resolve tinnitus is overwhelming. The link between tinnitus and hearing loss is strong, but we cannot explain why some people develop tinnitus whereas others do not. I hope to provide more information on the source of tinnitus in the human brain, eventually aiding the person whose brain is bringing along tinnitus."

Thank you Elouise for seeing the effort that went into this BTA grant.

I hope everyone realizes how important the above statement by Elouise really means. Each and every dollar @Ed209 raised from members here and elsewhere created this first time effort - from an internet support system for tinnitus - and has been recognized as important.

And Daniel's memory will always be the force. That is a legacy that is so special.

 

[Tre92]

This will be the first time I've ever posted. I've been silently reading for years. Recently, I remembered something Danny Boy had said about a drug he was taking that eliminated his tinnitus. I specifically remember him responding to someone saying, "I don't have tinnitus anymore..." he went on to explain it was because of a drug he was taking. I also read many of his posts and I am utterly shocked that he has passed on. I know it may be weird that I've never posted and now have based on the passing of someone I never knew personally. I was almost in tears upon reading of his passing. He did seem to be somewhat troubled in some of his posts and I'm not sure what took his life, but I pray that he didn't. I'm at a loss right now.

 

[Ed209]

This will be the first time I've ever posted. I've been silently reading for years. Recently, I remembered something Danny Boy had said about a drug he was taking that eliminated his tinnitus. I specifically remember him responding to someone saying, "I don't have tinnitus anymore..." he went on to explain it was because of a drug he was taking. I also read many of his posts and I am utterly shocked that he has passed on. I know it may be weird that I've never posted and now have based on the passing of someone I never knew personally. I was almost in tears upon reading of his passing. He did seem to be somewhat troubled in some of his posts and I'm not sure what took his life, but I pray that he didn't. I'm at a loss right now.

The official cause of death was sudden adult death syndrome. I understand how you must feel, it was an absolute tragedy what happened to him.

 

[Matchbox]

This is terrible.

Tinnitus does take lives... even if not right away.

I hope this fire keeps burning. No treatments and living with it is not the answer.

Many chronic conditions at least have meds for symptom control.
This and the updated versions of Trobalt need a bigger push.

COVID-19 is important but it will create so many more sufferers here who will be exposing themselves to unknown risks due to its huge implications with depression and isolation and how people turn to meds and self help like music.

 

[MBH]

@Matchbox - I think just like you. I wrote something similar a while back.

 

[weab00]

This will be the first time I've ever posted. I've been silently reading for years. Recently, I remembered something Danny Boy had said about a drug he was taking that eliminated his tinnitus. I specifically remember him responding to someone saying, "I don't have tinnitus anymore..." he went on to explain it was because of a drug he was taking. I also read many of his posts and I am utterly shocked that he has passed on. I know it may be weird that I've never posted and now have based on the passing of someone I never knew personally. I was almost in tears upon reading of his passing. He did seem to be somewhat troubled in some of his posts and I'm not sure what took his life, but I pray that he didn't. I'm at a loss right now.

He was on Trobalt, a seizure medication that many people found drastically reduced their tinnitus. It was pulled from the market due to the hefty side effects like visual snow. I believe Danny Boy himself got it.

 

[Nobody19]

COVID-19 is important but it will create so many more sufferers here who will be exposing themselves to unknown risks due to its huge implications with depression and isolation and how people turn to meds and self help like music.

I don't think so. Clubs are closed, at the moment there are no more concerts and festivals (I'm not sure if this is the same in the US?). Loud music at home is bad but in most cases not as bad as spending hours at a festival/club.

 

[Hazel]

In case anyone wonders how the money raised in Daniel's name was spent, here is an update from our grant recipient (picked by the people who donated to the fund!). Dr Elouise Koops has since taken a position at Harvard University, and unfortunately is no longer uniquely focussed on tinnitus, but I believe she has made valuable contributions to the field.

​

 

[Ed209]

In case anyone wonders how the money raised in Daniel's name was spent, here is an update from our grant recipient (picked by the people who donated to the fund!). Dr Elouise Koops has since taken a position at Harvard University, and unfortunately is no longer uniquely focussed on tinnitus, but I believe she has made valuable contributions to the field.

This is awesome to see.

 

[Alberte]

Good to follow up. I have a thought for Daniel.