Do You Consider Your Tinnitus a Disability?
- Thread starter martin12
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My T hasn't totally disabled me, but I feel as though I'm a different person and function on a lower level than I used to...... Rich
MemberWell, I do take blood pressure medication, but nothing for my tinnitus or to sleep. Twenty years ago I took lots of meds - but nothing since I finished TRT in the mid 1990s.
I do not exactly know. Perhaps it has to do with the pitch or timbre of my tinnitus. But whatever it is, my tinnitus is unmaskable. Not that it matters to me at this point.
Sure. Mine matches at 12,500hz. But none of that really matters in the long run. Not the pitch, not the loudness, not the maskability. What matters is that I no longer particularly care about my tinnitus. I care about yours, but not about mine.
You shouldn't care about mine, mine's treated with trobalt...Still reckon you should try that...Also why did the ATA fund research into Campral and won't for trobalt? Very odd. Tell them to stop wasting money on masking and go and fund a potassium modulator lol.Seriously, why do they fund masking tools, when they could fund real treatments? Surely those masking tools will be redundant and a waste of monies when a treatment comes to fruition.
I care about everybody's tinnitus. That's why I post on this board.
Trobalt? Why would I want to do that? There are too many side-effects.
Not odd at all. They received a grant proposal to study Campral. To the best of my knowledge nobody has every submitted one for Trobalt.
The last time ATA funded a masking study was back in 1997 - that's 18 years ago.
Ah, thanks for the information! And you're very humble! Don't know why some people get aggressive with you. Still, what do they do with all their funding?
You are welcome.
I guess you'll have to ask them. All I really care about is helping those who suffer as I once suffered. Perhaps it's my writing style or communication skills. Perhaps they think I do not feel their pain. I don't know. But once you suffer as much as I once suffered, that is something you just do not forget.
With the help of an international cadre of tinnitus researchers ATA has generated what they call a "Roadmap to a Cure" - and they fund deserving grant proposals that have a place along that roadmap. If a project does not contribute towards the search for a cure for tinnitus, ATA does not fund it.
So why isn't a potassium modulator on their roadmap for a cure? Well, I guess I'll never know. And thanks for helping us! I'm on here trying to find as much information as possible to a potential treatment.
But it is!!! Path C1 is "Test therapeutic approaches to suppress tinnitus (electric/magnetic stimulation, drugs, surgery, acoustic stimulation)" - but if nobody submits a grant proposal to study potassium modulators, then there is no potassium modulator study for ATA to fund.
You are welcome.
I wish you well with it.
- Nov 6, 2014
- 520
- 41
- Tinnitus Since
- 10/2014, worsened 5/2024
- Cause of Tinnitus
- Ear infection / Long-term Noise ; Acoustic Trauma
For what it's worth, here are a couple of updates on current potassium modulator research being done at two different university labs in the USA right now:
https://www.tinnitustalk.com/thread...versity-of-pittsburgh.8280/page-2#post-106420
https://www.tinnitustalk.com/threads/team-trobalt-update-—-april-9-2015.9064/#post-105730
I'm not sure if either have submitted grant proposals in particular with the ATA but both certainly rely on grant funding from various entities.
That's great news! Cheers for showing! We are so close to a treatment! So exciting!
@Dr Nagler
What is the definition of disability?
1. absence or deprivation of advantage or equality.
2. the state or an instance of being in an unfavorable circumstance or condition:
to be at a disadvantage.
3. something that puts one in an unfavorable position or condition:
His bad temper is a disadvantage.
Thinking about the definition of "disability", I would conclude that T most definitely is a disability. Yes, in this sense, if the T does not improve, the disability remains. A person then must adjust their lives to create a "new normal" When a person adapts partially or fully, the disability would not be as significant. This is true for anyone who suffers any kind of illness. If a person loses a portion or all of a particular physical function that they previously enjoyed, their "new normal" prohibits them from fully functioning as they did prior to the illness. Some ailments of much more debilitating than others....the challenges of living in spite the the disability is much greater for some than others. Another factor is the human spirit which may be much stronger in some people than others. This would be consequential in terms of acceptance and adapting.
What is the definition of disability?
1. absence or deprivation of advantage or equality.
2. the state or an instance of being in an unfavorable circumstance or condition:
to be at a disadvantage.
3. something that puts one in an unfavorable position or condition:
His bad temper is a disadvantage.
Thinking about the definition of "disability", I would conclude that T most definitely is a disability. Yes, in this sense, if the T does not improve, the disability remains. A person then must adjust their lives to create a "new normal" When a person adapts partially or fully, the disability would not be as significant. This is true for anyone who suffers any kind of illness. If a person loses a portion or all of a particular physical function that they previously enjoyed, their "new normal" prohibits them from fully functioning as they did prior to the illness. Some ailments of much more debilitating than others....the challenges of living in spite the the disability is much greater for some than others. Another factor is the human spirit which may be much stronger in some people than others. This would be consequential in terms of acceptance and adapting.
@Valentina well just because its a punishment doesnt mean it cant be a disability! if for example you take punishments for spray painting in certain countries where they cut of fingers. i would consider having no thumb a punishment aswell as a disability. like tinnitus might be a punishment that disables you now.
It can be a difficult concept. That's why I explained specifically what I meant in my question:
Let's say that you have severe tinnitus that is so debilitating that have lost your job and are unable to work. Are you destined to always be that disabled unless the tinnitus itself improves in some way or other?
Why don't we, as a collective, submit a grant proposal (what does this mean?) to the ATA to investigate the efficacy of HIFU for T ?
I like this paraphrase. Well put.
I offered to help Team Trobalt write a letter to ATA to generate interest within the research community to submit such proposals. Team Trobalt decided to focus its efforts elsewhere - so I am out of that loop.
If you want to do it, my friend, be my guest.
That's a real shame...Can you revel where their interests are now, or is that secret?
I do not know exactly what Team Trobalt is doing ... except that whatever it is, they are very busy doing it. Why don't you ask one of them for more information??!!
I dunno, make they should petition to the BTA? And I wouldn't know where to start with them. Real shame about the ATA though. Didn't they contact the ATA at all?
As far as I know, Team Trobalt never contacted ATA. I think they decided that they wanted to work directly with the researchers rather than with the entity that funds much of that research. But again, you'll really need to check with them.
Shame really, as the ATA may have listened...Well, I may contact the BTA about keppra and see if they listen, I really wanna help people.
Of course they would have listened. I'm a former Chairman of ATA's Board of Directors, and a current ATA Board member is a registered user here on Tinnitus Talk. I am not faulting Team Trobalt, though. They just decided on a different strategy. Hopefully it will be very successful.
I mentioned trobalt to the BTA and they didn't care really, they just kept going on about masking. So where are you focusing your efforts, if you don't mind me asking?
Too bad.
You mean besides my tinnitus clinic? Mostly on things that have absolutely nothing to do with tinnitus.
But none of this is related to whether or not tinnitus should be considered a disability. So I'll stop here and simply wish you well.
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