Early Meniere's, or Autoimmune?

Coyotesheaven

Member
Author
Aug 6, 2016
352
30
Utah
Tinnitus Since
02/2015
Cause of Tinnitus
Multiple
I am really concerned that I am coming down with Meniere's disease.

I have been losing my low frequency hearing by a few decibels every day, having lost 10 something decibels over the course of one week in one ear (Sept.23) (it feels much worse now in both ears). The losses started in mid August from a migraine attack and an MRI, but since about Sept.10 it has been dropping noticeably and progressively every single day. At this rate, deafness in at least the low tones has become a realistic possibility in the next few months for me :/
I also have a sporadic gushing water/very low frequency roaring tinnitus in both of my ears, which is aggravated by: sitting down, lots of activity, doing certain movements with my arms. It is scaring the hell out of me because I feel that I provoke this odd tinnitus no matter what I do. I almost wonder if it is a vascular phenomenon, because it is always provoked by me doing anything that changes the blood pressure in my head.

I do not have episodes of rotary vertigo or dizziness at the present, however, which makes me wonder if it is something else and not classical Meniere's disease.

My other theory is that I am having an autoimmune phenomenon. I got my blood tests back today. Negative for lyme and any of the co-infections, so I was wrong with that theory. On the other hand, I had something wrong with my one type of my leukocyte levels (way too low), and by what my doc's told me my immune system appears to be stressed and over-reacting to certain stimuli, suggesting that there could be some autoimmune processes occurring in my ears. In addition, I do posses a (CLA?) marker for autoimmune inner ear disease, which is just supposed to lead to a predisposition for autoimmune attacks.

Anyway, any insight is greatly valued right now.
My depression levels have skyrocketed because of this progressive hearing loss, and I just feel completely hopeless about my future or having any enjoyment out of the world without sound. Ever time I lose another sound, I feel as if someone just came by our house and shot the family dog. I just can't deal with this anymore...
 
@Jkph75

I can tell you that the volume of motorcycles, airplanes, my mom's excessive volume on the TV, etc has been halved or significantly reduced in loudness. I also have a hard time picking up on the very low frequencies in my music, which is the hardest part for me.

I also can't hear my parents talking in the room right next to me, whereas 1 month ago it was no problem! One just knows perceptually that something is wrong.

In terms of audiometric testing, most of my loss is below 250 Hz it seems; so far, they have detected a 10 db loss at 250 Hz in one of my ears, which happened over a single week! Below that range it must be at least 15-20 dB within just a month.
 

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