Facial Pain and Tension

[Street Spirit]

Oh man sorry to hear that! ! she sounds absolutely terrible!! I am in bad setback right now, it very much sucks. Many, many sounds I had no issue with again hurt

What latest research you referring to lapidus?

 

[lapidus]

Oh man sorry to hear that! ! she sounds absolutely terrible!! I am in bad setback right now, it very much sucks. Many, many sounds I had no issue with again hurt

What latest research you referring to lapidus?

Sad to here that What caused the setback?

Oh just the usual stuff that's being discussed here. Autifony, DBS etc. Doctors in general have no insight in what's going on in the field of research. It's understandable though beacuse they got other stuff on their plate to take care of. But somehow I still think that doctors should be more up to date than their patients. When it comes to disorders like H and T I just think it's sad that the patient knows more than the clinican. It shouldnt the patient's job to do research, it really shouldnt.

 

[Street Spirit]

I have no idea what caused this setback. I was under alot of stress before it started though. I don't believe I can attribute all my setbacks to loud noises..sometimes it just seems to happen..This one however is quite bad, its almost like it was at onset. I do remember I was riding my bike and felt my ear turn off and T got higher. .then I had new tone added to left ear and T increased and slowly H set in again. .its been since June 25th, my daughter's birthday. .I can handle the T I just hate H...bags hurt again, buttering toast hurts!!! ugh ridiculous.

I am getting tired of this rollercoaster though...

 

[lapidus]

Yeah it's the same here @Street Spirit . A while back I could listen to music at a low level and have my noise generators in for 8 hours a day without a problem. Then all of a sudden the music started to become painful. There wasnt any loud noise involved or anything. It's like setbacks just happen without any logic to them. But I am positive that your problems stem from TMJD. Have you gotten any sort of treatment for it? My next stop is to see a doctor about some potential medications even though im afraid of all types of medications. I also can handle the T. I've been living more than half my life with T without any complaint. H and aggressive TTS is a completely different story. Sometimes I get irritated by reading posts on this forum where people complain about just having T. They don't know how lucky they are.

 

[Street Spirit]

I agree. Though, I don't like to compare each others misery( but I know what you mean) I believe they wouldn't want what we have either! With that said, I wish all I had was T.

Yea no rhyme or reason sometimes..I see a neuromuscular dentist on the 7th. I am also waiting to see a highly regarded osteopath who claims she has treated tmjd problems successfully and because of this has a long waiting list. Will keep you updated!

 

[lapidus]

I agree. Though, I don't like to compare each others misery( but I know what you mean) I believe they wouldn't want what we have either! With that said, I wish all I had was T.

Yea no rhyme or reason sometimes..I see a neuromuscular dentist on the 7th. I am also waiting to see a highly regarded osteopath who claims she has treated tmjd problems successfully and because of this has a long waiting list. Will keep you updated!

Yeah I know, I should've added that I feel really bad and guilty by reacting that way. It's mostly people who recently got T that post here anyway and I would probably be freaked out too if I got T as an adult, but I just can't help being a bit cynical.

Well that's good. Hope you get some answers to all these unanswerable questions.

 

[Street Spirit]

I totally understand, especially while sitting here in pain and fear over my damn ears..my tts is going nuts!! my t is high pitched and my h is intolerable. I just want to cry to be honest. I actually feel like this may be the worst its ever been.

 

[Sen]

I hate my life most of the time too. I'm still willing to crawl through it though.

 

[Street Spirit]

Matt..

"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward."

Martin Luther King Jr.

 

[Mr. Cartman]

Does anyone else get facial pain and facial tension/numbness as a symptom?

I get it almost exclusively on my right side in the cheekbone and temple area, though sometimes I get transient burning pain on the left side too. So far the only thing that helps it for me are benzodiazepines, which make me very depressed, forgetful and sometimes angry as a side effect (although quite helpful with anxiety.)

I tried lyrica for a while but it didn't really help and gave me horrible mood swings with hypomania. My neurotologist decided it was best to discontinue.

Now I am at a loss. This symptom is as bad as the ear pain. It is very difficult to manage, and becomes more and more prevalent as I taper off lorazepam.

Hi Matt,

Do you know what caused your T? And did you experience some weird symptoms before the onset of your T? Also, do you happen to have a painful spot located at your spine between your shoulder blades? Or neck / jaw pain in general? This facial stuff really boggles me to say it at least.

 

[Mr. Cartman]

I agree. Though, I don't like to compare each others misery( but I know what you mean) I believe they wouldn't want what we have either! With that said, I wish all I had was T.

Yea no rhyme or reason sometimes..I see a neuromuscular dentist on the 7th. I am also waiting to see a highly regarded osteopath who claims she has treated tmjd problems successfully and because of this has a long waiting list. Will keep you updated!

Please keep me updated about the osteopath as well!

 

[Sen]

Hi Matt,

Do you know what caused your T? And did you experience some weird symptoms before the onset of your T? Also, do you happen to have a painful spot located at your spine between your shoulder blades? Or neck / jaw pain in general? This facial stuff really boggles me to say it at least.

I can't know what caused my T for sure but I suspect noise exposure. I had a painful sound reactive muscle spasm of sorts in my left ear for a month and then brilliantly I played my drums without hearing protection. At that point I didn't suspect noise exposure had caused my hearing problems, nor did I think it could make things worse. My tinnitus and hyperacusis started up slowly over the next several weeks and continued to worsen for months. I had also been taking meloxicam, amoxicillin and nortriptyline during that period of time (all prescribed for various misdiagnosis of the spasm in my ear.)

I have minor back pain sometimes but it is typically mid/lower back and it always goes away. It usually comes on as a result of sleeping weird, lifting something incorrectly, or using bad posture.

I have no neck pain. I have muscular pain around my TMJ very rarely.

I am plagued with frequent severe headaches. They happen at least once a week, are crushingly painful, usually trigger my vertigo, and make me very sensitive to light and noise (even more than usual.) They come on more severely and more frequently if I attempt to taper off lorazepam. The lower the dose, the worse the headaches get. The headaches are worse than the facial pain and ear pain, but typically only last a day while the ear and facial pain can last for weeks.

 

[Mr. Cartman]

I can't know what caused my T for sure but I suspect noise exposure. I had a painful sound reactive muscle spasm of sorts in my left ear for a month and then brilliantly I played my drums without hearing protection. At that point I didn't suspect noise exposure had caused my hearing problems, nor did I think it could make things worse. My tinnitus and hyperacusis started up slowly over the next several weeks and continued to worsen for months. I had also been taking meloxicam, amoxicillin and nortriptyline during that period of time (all prescribed for various misdiagnosis of the spasm in my ear.)

I have minor back pain sometimes but it is typically mid/lower back and it always goes away. It usually comes on as a result of sleeping weird, lifting something incorrectly, or using bad posture.

I have no neck pain. I have muscular pain around my TMJ very rarely.

I am plagued with frequent severe headaches. They happen at least once a week, are crushingly painful, usually trigger my vertigo, and make me very sensitive to light and noise (even more than usual.) They come on more severely and more frequently if I attempt to taper off lorazepam. The lower the dose, the worse the headaches get. The headaches are worse than the facial pain and ear pain, but typically only last a day while the ear and facial pain can last for weeks.

Thanks for your reply.

Im plagued with this stuff myself, and somehow, we got to figure this out.

Have you seen a good neurologist and/or some other specialists to have this evaluated?

And the pain you are talking about in your lower/mid back triggered by bad posture etc, does it hurt of you physically add pressure with your finger in that area, even if you dont have any pain while moving around?

 

[Sen]

I've seen a good audiologist and a good neurotologist.

The pain doesn't hurt when I add pressure. It hurts when I move in weird positions, but it's transient. I feel zero back pain of any kind right now.

 

[Mr. Cartman]

I've seen a good audiologist and a good neurotologist.

The pain doesn't hurt when I add pressure. It hurts when I move in weird positions, but it's transient. I feel zero back pain of any kind right now.

Did your audiologist or neurologist have any clue about what it can be?

 

[Street Spirit]

@Sen I would suggest the drug Topamax for your migraines. I really don't understand with the amount of pain and problems you have why you have not been referred to a Neurologist. You do not have typical H. I highly suspect you have more going on... and again also switching to clonazepam would be more beneficial then ativan...things to consider and speak to your doctor about..

maybe find a good PT therapist as well. .you never know..maybe she could work on tye muscles around your tmj and also neck that affect the ears etc.. and they are covered by OHIP.

 

[Marlene]

Matt try Migraleve( Topomax) best I've tried for it,sometimes you can get silent migraines,I've been told,as I've got allergies,it works better than paracetamol.i get lots of facial pain,due to rhinitis,really painful.So give those a try,see if you get relief,get them over the counter at chemist.

 

[Sen]

Did your audiologist or neurologist have any clue about what it can be?

No.

@Sen I would suggest the drug Topamax for your migraines. I really don't understand with the amount of pain and problems you have why you have not been referred to a Neurologist. You do not have typical H. I highly suspect you have more going on... and again also switching to clonazepam would be more beneficial then ativan...things to consider and speak to your doctor about..

maybe find a good PT therapist as well. .you never know..maybe she could work on tye muscles around your tmj and also neck that affect the ears etc.. and they are covered by OHIP.

I don't know either. I'm exhausted and I don't have the energy anymore to try and convince doctors there is something wrong with me. They don't listen and they don't care.

 

[Street Spirit]

Matt you sound severely depressed understandable of course but perhaps right now a good course of action would be to see a therapist ( just a thought). .also maybe revisit that neurotologist since your symptoms continue to worsen.

 

[Sen]

I am severely depressed, and I do see a therapist but it isn't beneficial. I will kill myself in a few years, most likely, but the universe won't miss me.

 

[jazz]

I've seen a good audiologist and a good neurotologist.

The pain doesn't hurt when I add pressure. It hurts when I move in weird positions, but it's transient. I feel zero back pain of any kind right now.

Have you tried acupuncture for your pain? Some studies suggest it is beneficial for chronic pain and migraines. And it even supposedly works for back pain. The treatment might be worth a try.

Here's a recent reference attesting to acupuncture's efficacy:

http://www.ncbi.nlm.nih.gov/pubmed/25042414
​

Another option is neurofeedback for pain and migraines. I also believe in this modality, even more than acupuncture. But, at least where I live, it's difficult to find practitioners. Perhaps, you'd have better luck. Below is one reference to the modality:

http://www.ncbi.nlm.nih.gov/pubmed/24167944
​

And, of course, you might try flupirtine, which is used for many types of chronic pain:

http://en.wikipedia.org/wiki/Flupirtine
​

Anyway, I hope you find something to manage your pain.

 

[Sen]

where am i going to get money for accupuncture?

 

[Paromita]

Hello everybody! Hi there Matt!

Yes, I am suffering from the same. I believe there has been some irritation to my trigeminal nerve and that has caused my T. I have very light facial pain, but get symptoms like numbness on my nose going upto my left temple. Any massage on my ears or head or neck or behind my ears results in louder T and all those symptoms coming back up.

I was having this issue 4-6 months back, but ignored it thinking it was from my teeth (I had 3 abcessed tooth on my left side) Now they have been taken out, but I feel the nerves might have been jangled or even damaged or irritated.

I am trying homeopathy currently at a low potency (Hypericum Perf)...not sure what effect it would have.

I experience numbness on my nose, going up to my left template and something even to the right side too.
Also burning on the lower left tongue and also on both my ears.

Also if I go out in cold/wind, these symptoms come back. Anxeity makes them worse too.

Well there....let me know what you think. Feel better. I am seeing a nuerologist this week, but dont want to use anti depressants to cure this. Thoughts anybody ?

Thanks for your time
Mita

 

[undecided]

Hopefully your neurologist is going to send you for an MRI.
And if there is some problem with you trigeminal nerve, he might prescribe a small dose of some AD (or gabapentin/tegretol) to help with the pain.

These are medicines that have been studied and proved to have some efficacy in treating such conditions.
Homeopathy is ... well, lets say that some people have to do something to make a living.