Had Treatment to Kill My Pulsatile Tinnitus Once and for All... And This Is the Result

#31
Cor said:
No, hearing has nothing to do with blood flow. But it apparently does influence tinnitus in some people. That's why often betahistine is used with tinnitus patients. I would say this procedure is like betahistine on steroids.
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Of course hearing has to do with blood flow. Your ear is an organ. If there is no blood flow or restricted it may stop.
Otherwise your ears would be cold as a stone, while they normally have the same 37 degree temperature.
 
#32
Martin69 said:
since I had an Atlas correction already made. But I know I have still many neck issues from work and from life in general.
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Sorry for interrupting, but did Atlas Correction make some difference for you? In case what?
I am having some issues with my neck and consider to try Atlas correction.
 
#33
#34
@RicoS thank you for this, I am waiting 3 months to see if mine has anything to do with a virus, but I found this very interesting , it seems like something a neurosurgeon in Australia I know may know something about. I will report back once I email him. Can I ask the nerve blocker was it a cortisone injection?
 
#35
Cor said:
Im not sure the OP had the exact same procedure I had, but it does look like it.

They know exactly what nerve they need, it's the ganglion cervicale superius. The needle heats up which causes the outer layer to burn off. This has the effect of the nerve becoming incapable of passing signals (so the opposite of trying to induce signals) which causes blood flow to the ear area to be unrestricted. At least, that's what I understood when I had this procedure. After about 2 years the body heals and signals can pass again.
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From what you indicate here the nerve is capable of healing. It was to my understanding that once a nerve is damaged/dies it never comes back. Is there a difference between damaged and being dead/destroyed? Meaning a nerve can repair itself if damaged, but a "no-go" if dead/destroyed. I know when talking hair cells they are toast.

I recently developed a form of what I believe to be pulsate T. It presents itself as if my blood is passing by certain nerves creating a hiss in concert with my pulse. The sound is the same as my somatic static T when pushing on my head. It's only on the right side of my head almost split perfectly down the center. I hear this is due to overcompensation for dead nerves. If this is true can the nerves in question heal hopefully lessing the PT?
 
#36
Im not a doctor, so this is just me trying to make sense of it. What I was told is that the nerve doesnt get severed, which is probably what you refer to. They 'merely' remove the outer layer, which I guess is involved in passing signals. After some time this heals again.
 
#37
Here an update after 6 months.... I was doing very well with my T but I do not know if I damaged my neck or something during sparring at the gym but my PT is fully back. I will do this treatment again and hope that it helps. I was doing really good and thought this was all behind me ...so I got the old anxiety syndrome with it.
My normal T I can handle but this pulsating high pitched ringing is really hard. It can be masked though but I was finally after 5 years done with masking what so ever so it feel like a major drawback and like living with an handicap again. Also my H got a bit worse again, but this also can be anxiety.
It feels lonely when you suffer with T....but it can get better and I hope for myself this time the treatment works also again.
 
#38
You have very good audiogram for your age.
Your improvement maybe was spontaneous and not from treatment.
 
#41
1MW said:
You have very good audiogram for your age.
Your improvement maybe was spontaneous and not from treatment.
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No I don't think so to be honest I did this treatment twice and felt the result right away. I first also thought it was a placebo effect but it was a difference from night to day.
I really thought I was done with this PT crap. T is a problem on its one and another sound joining with almost perfect hearing is no joke. My H is a bit worse last couple of days but i think it is the anxiety that comes with it again.
It is like habituating again.... I felt all this doom feelings before and panic attacks.

But @1MW if it is from treatment or spontaneous ..it both gives me hope that it can go away again and to be honest I wish it is what you say so I do not put all my hope on the treatment.
 
#42
#43
@Mathew Gould In my opinion I would never get atlas therapy before being examined and approved for this procedure by a neurologist. I would also spend hours doing research on this other than from industry ones that do this procedure. Watch a video on this procedure being done.
 
#44
Greg Sacramento said:
@Mathew Gould In my opinion I would never get atlas therapy before being examined and approved for this procedure by a neurologist. I would also spend hours doing research on this other than from industry ones that do this procedure. Watch a video on this procedure being done.
Click to expand...

I'm not sure if it's atlas, but I go to my first upper cervical chiropractor Monday.
 
#45
C1 / C2 isn't necessarily atlas. If there is something stuck work gently on it. It's necessary that the muscles aren't tight. This can be done by training your upper back muscles also.
 
#46
Question: Rico did/do you have any existing problems in your C-spine - advanced disc degeneration, osteophytes impinging on the foramina or flattening of the CNS? Any loss of lordosis - straightening of the spine?

Generally any somatic based tinnitus is multifactoral and is tied into neuromuscular trauma usually from related C-spine complications and/or TMJ/trigeminal issues. I have several of those issues myself which leaves my muscles in tone - bunched up - on the left side and the right side is a mess because it tries to compensate for the problems on the left. So if you can easily modify your tinnitus by twisting your head around or otherwise engaging your neck muscles that causes the tinnitus to spike. The key is to get the muscles to unwind which it sounds precisely like what they're doing. I've known people to obtain similar results from acupuncture or dry needling. I think everyone is just curious as to "exactly" what they do. What is the cost and how long does a treatment last?
 
#47
@RicoS , thank you for sharing such good news and success story on your PT and regular T by this treatment. This is the type of story that should be in the Success Stories forum for all to read, instead of this being buried soon by massive new posts in the support forum. I encourage you to post a version of it to the Success Stories as your story proves that some members' T and PT are treatable by the right treatment, perhaps not to cure it, but to reduce it to a more tolerable level. That should give new members hope that they may somehow find something that will help them, if not now but in the future. If you like, you can also post the link to this more detail thread on your treatment and questions about it. Have a wonderful day. God bless.
 
#48
I had another treatment 3 weeks back for my normal T. My PT is stil 90% gone but most of the time 100% gone.
My normal T is 75% lower atm. I do not need to mask anymore. The volume it is now I can better ignore it. Sure I have so flare ups sometimes but overall I am doing much better after the treatments.
If now my stupid anxiety/ocd would be gone I would be a happy dude....but my body needs to get out if this stress state it was in for the last 5 years.
I will put it in the succes stories if my T is still this way in December ! ;-)
 
#50
lucy_snow said:
@RicoS Happy to read you posts! :)
Do you think this treatment would help with the tinnitus from hearing loss? (mild-moderate hearing loss)
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I really cannot say... every case is different... I had I think 4 or 5 treatments where 3 worked great and 2 did not do too much. So it is very important that you be very clear to the doctor about what your symptoms are and what you hear in what moment or what ever. I know people who went there and it did not do a thing for them. But the last treatment I did for my normal baseline tinnitus also worked wonders... sure I still have tinnitus but at least it's not too damn loud anymore.
 
#51
Halsy said:
Question: Rico did/do you have any existing problems in your C-spine - advanced disc degeneration, osteophytes impinging on the foramina or flattening of the CNS? Any loss of lordosis - straightening of the spine?

Generally any somatic based tinnitus is multifactoral and is tied into neuromuscular trauma usually from related C-spine complications and/or TMJ/trigeminal issues. I have several of those issues myself which leaves my muscles in tone - bunched up - on the left side and the right side is a mess because it tries to compensate for the problems on the left. So if you can easily modify your tinnitus by twisting your head around or otherwise engaging your neck muscles that causes the tinnitus to spike. The key is to get the muscles to unwind which it sounds precisely like what they're doing. I've known people to obtain similar results from acupuncture or dry needling. I think everyone is just curious as to "exactly" what they do. What is the cost and how long does a treatment last?
Click to expand...

From the 5 treatments I have got 3 were totally different ...one was very scary where they put current through my neck which I felt through my whole head and after a minute I told I could not take it anymore. I completed the right side, but the left side I had no energy for anymore. And believe me i am an MMA fighter and trainer and I can withstand a lot but it felt like lightning struck in me head every 2 seconds. After this treatment ... All my neck muscles were as relax as they can be and I thought I was the exorcist or something because I could turn my neck very far left to right hahaha almost 360 degrees hahaha (just kidding , but it felt that way)

The last treatment I had a few weeks back was partly current through some nerve and they injected me with something. Sorry cannot tell you what. But what he explained was that they target a nerve that transport signals through my ear and they will try to calm it down. After he did the treatment I did not feel any pressure on my left side anymore. I did not notice it in the past, but it was like something was clear where they treated me. He said that it will not work right away and I should give it some time...and indeed...after a week ...my baseline T went down bigtime. I did some hard sparring a few minutes ago and normally my T would be crazy after training....but now it is just a faint eeeeeeeeeeeeeee sound.
If you read my old posts you would see I had monster T and H in the beginning. From all the thing I have done....the treatments in this clinic CURED me from my PT ....and my PT was so bad I wanted to kill myself over it. I just could not stand it anymore. I told him also ...if this does not work it is game over for me.
He was very understanding and we talked a lot and I really felt I was in good hands. No matter what other people say....this guy is my lifesaver .... sure I have bad anxiety and s-ocd ....but T is not that bad anymore.

Little side note though...... last week a fire alarm went off at work and I was directly beneath it..... My T became a 12/10 and my H was horrible for 5 days.... Today I can say everything is almost back to normal. I did not go to work this week because I did not want to ruin my ears even more and could not drive a car because it was hurting my ears. But it is almost back to the level after the treatment. Right now when I am typing this and I have no other sounds around me I can barely hear my T. F$@#CK YEAHHH!!!!!

But like I said some moment my T flares up but it is not this monster of a few years back. And again this treatment does not work for everybody ...or perhaps it does but they cannot find the right spot, but it helped me and I am glad this guy exists.

Also it is not specifically a T clinic it is to help people with chronic pain. But they saw a correlation between chronic pain and T and try the best they can to help. I know this does not answer all your questions, but I do not even have all the answers. You can call the clinic or if you live in the Netherlands just make an appointment and have a talk.
I was on my end of the road with PT and T.... I did not complain here anymore... I was just done with it. I only talked with what I consider no one of my best friends and that is Martin69 who is also here on the forum and he helped me through the tough times. But when my PT was so extremely bad...I did not know what to do anymore and by accident I ended up with Dr de Koning..... You almost cannot meet a nicer guy who really want to help people and have the knowledge to do it.
I am going to bed now....and sleep without masking !!!! ;-)
 
#52
Hi RicoS, I had read your thread a while ago and now I think your help is more than needed for me :)

I explain:

I have tinnitus for 13 years (well, actually 14 years in a few weeks... ahem, time goes by...).
I was ok with it after a few years, although I wish I had it removed one day.

Then 2 years ago a PT arrived and my life changed again, indeed in a bad way. PT is far more difficult to live with compared to a normal tinnitus. I have the feeling that every sound in a room can be from the room or from my head. Every small bip bip can be from a construction site in my city, a car or my fridge, etc. Sometimes I am not even capable of detecting if my heater in the bedroom is the noise I hear or if it is my PT which has a frequency of around 1khz. 1khz is very similar of most of our electrical devices in houses/at work.

Anyway, anxiety arrived with it and my brain was permanently looking for the source of every noise. I could eventually work without thinking about it in environment with noise, people talking around etc. but every morning or night at home was very tiring. I though a year will make me habituate but... it looks like you can't get used to a PT... I have been through very hard times when tinnitus entered my life more than decade ago and I felt stronger than ever after I faced it and could live again a nearly normal life, but PT is something different, a very different battle.

So I have been thinking about viruses, I have been searching for reasons to my general state: exhaustion, dizziness, eyes were viewing "noise" (like a bad analogic TV signal you know?) and doctors thought I was crazy. They gave me stuff against anxiety, stress, etc. I started taking them but... I was even more tired. So I stopped after persisting a bit.

Then 2 years later (a few days ago) a physiotherapist told me my back was not that good, it can't really be straight (taht shoudl have bee corrected before, during my teen days) and that induce my neck to be suffering. It is true, like most of the people on Earth, my back and my neck are hurting me on a regular basis. It is also true that I'm hearing some small "crunch" when I turn my head in silence or with ear plugs. Like there's some "bone powder" between the cervical vertebra. Anyway, I understand I have to make my back muscles work more, stay fit on my chair as I work 8 hours a day on a chair between a computer (very common to you too certainly!).

BUT, I also heard from my physiotherapist that cervical issues can cause diziness, exhaustion because of blood amount to the brain being restricted. And I hadn't told him about this issues I have for so long! I am now ashamed of talking about it to doctors because I look like a crazy person when I list my numerous symptoms. I told myself this can't be true, would all my issues lately be from my neck??

AND... I though about this topic. I knew I had read someone talking about PT induced from an issue in the neck. Like a nerve being compressed, just like a blood vessel can be to the brain and induce other problems like dizziness and "brain fog" like Lyme people tend to say (yeah I have been through Lyme 'process' aka treatment).

So here I am, 33 years old, from France. I am ready to try anything as far as I can pay for it and seems to have good chances of treating my PT.

My only concerns at this point are the fact I should go the the Netherlands and therefore:
- Can I be treated as a foreigner?
- How much will it cost for a foreigner?
- Is there such a treatment in France or other countries?

Meanwhile, I will be working my back and my neck with my physiotherapist. I will also check my cervical on MRI scan to make sure doctors understand it is not perfectly clean. Well, hopefully it will show something.

One last question: is there a risk of breaking an important nerve during the surgery?
 
#53
Ouch, just had an answer from the clinic: "Unfortunately we wont be able to help you in our clinic, simply because you don't have a dutch insurance."

:(

Well, too bad since I'm ready to pay for the surgery with my own money... I'm wondering if there can be another way.
 
#54
I've been following this thread for awhile and am sorry to hear that the treatment in the Netherlands isn't available to anyone outside the Netherlands as I was prepared to go there at some point! I have PT and T, both for about 10 years now; the PT is by far the worse one to deal with. Has anyone heard of any clinic treating PT/T in this manner in North America?
 
#55
Well, I did some search in France and it seems there's nothing like in the NL. HOWEVER, I have been told destroying nerves from the spinal column is a common thing and we can find specialists who do that rather easily in hospitals, especially when it comes to sciatic and very common stuff like that.

So my current goal is now to contact someone who is used to destroy nerves (I already have a name but can't reach that specialist without concrete/serious information) and ask him if he can do the same to that C1-C2 area based on... well based on everything that I could gather from that clinic in the NL to convince someone in France(/your contry) to do the same on me/us.

Therefore, can we find some official information about this surgery to show other clinics what to do with a minimum of explanation of why this is done? The only thing we need is a paper to document this surgery and I think we can all convince specialists from other countries to perform the same on us. I guess we can't find this information by calling the clinic in the NL, the best way would be to ask a member here who's been through the surgery if he has access to researches and the exact method used on them, because it is legitimate for them to own this kind of info while foreigners phoning are not that supposed to get detailed info...

RicoS or Cor maybe?

I am really keen on exploring this track, because I really, REALLY recognize myself in RicoS symptoms (ear that feels "full" sometimes, muscles from the neck very hard to relax which tends to make me think the problem is on the nerve side, irritated by the muscles that are permanently contracted/painful, inducing headaches as well and dizziness). The fact we all spend very long time in front of computers is make our neck suffering, more and more after years. This will induce more problems with necks and nerves on the C1 to C6 levels and therefore dizziness, headaches, false feeling of tireness etc. which a lot of people interpret as fribromalgia and similar (because not knowing what you have is causing a mental trauma on the long term and make you think with very strong insurance that you are really ill and incurable which isn't the truth for most cases).
 
#56
@Ozwel Everything that you have said in previous posting makes sense. Just a brief discussion to complicated issues where I have posted a hundred links.

Problems with the back- PAIN (muscle spasms - injury - forward bending, posture) can led to the neck. Real discomfort within the neck can come later. When the neck becomes involves it's the same reasons listed above. This can cause degenerative disease within the neck. It can start out causing space disc narrowing and spondylosis from C4 thru C7. Loss of normal lordosis from neck muscle spasms. Joint hypertrophy and facet arthritis. Muscles then become even more fragile. All of this can cause tinnitus. For a long time prevertebral soft tissues are often within normal limits, but they will later become traumatized and that's when things such as pulsatile tinnitus can then happen. Some with what's mentioned so far also have peripheral artery disease which can associate to a shorter leg or make it happen. Occipital neuralgia involvement - occipital nerve(s). C1 and C2 interaction to the jaw complex.

Pulsatile tinnitus -
High riding jugular vein 20% of all PT which amplifies the sound in the inner ear - intercranial pressure. Often one does not hear PT at first, but the brain is focusing on intercranial pressure. One may hymn the beat of sound to their selves before the actual PT sounds is amplified to the ear.

The thyroid nodule can increase blood flow to the jugular vein.
All of this can be peripheral artery disease - Atherosclerotic - disease of carotid or vertebral arteries. Venous thrombosis of the emissary vein.

Carotid artery atherosclerosis of cranial arteries - arterial pressure - kinks in neck muscles 20% of the time with PT.

Barre Lieou syndrome - instability occurring after neck alignment or from continue neck injury is possible.

Some treatments that may help.
Warmth
To see if a doctor can hear neck PT with a stethoscope
A white blood count
reverse cranial motion with myofascial release for spastic muscles to free up compressed skull bones
Angiotensin II receptors to keep blood vessels from narrowing
Axonal injury testing
MRI - SSEP, BAER, VEP, EEG, ultrasound, CT, X Rays
A vascular and rheumatologist doctor - neuro radiologist for findings
Steroids have noted to cause problems
lidocaine injection for neck, but it may not help with associated PT
 
#57
Thanks for all the information. I have an MRI planned for early 2019 to check my neck but I don't expect much from this.

I have multiple thyroid nodules also but the whole world I've met about this told me there's nothing to worry about and my symptoms CAN'T be from this when it comes to pressure in my throat that I can't understand where it comes from. Everyone told me it's stress. Ok... Came from nowhere and stays for years...

Anyway, I won't meet more doctors. After years of meeting them for nothing I just want to live my life and spend less time waiting for the next doctor to check. It's just a loss of time.

When I read this forum the most pertinent thread is here for me. And when Frequency Therapeutics can release its stuff in 4-5 years it may take care of my other tinnitus, the stable one which I have for 13 years now. The fullness feeling in my right ear is there for about 2 years.
 
#58
Ozwel said:
told me there's nothing to worry about and my symptoms CAN'T be from this when it comes to pressure in my throat that I can't understand where it comes from.
Click to expand...
I wouldn't necessarily believe them just because they say it's so. As far as the nodules are concerned, they are there for a reason. I read an excellent booked entitled "Iodine Crisis", which goes into detail on how iodine supplementation can affectively treat all kinds of thyroid and other issues, such as nodules, cancer, etc.

Before getting thyroid cancer herself, she worked as an investigative journalist. And yet it took her eight years to find the connection between her cancer and iodine deficiency (which most people have). The scientific literature was there waiting to be found. She found it, but almost all doctors haven't, and are unaware of the connections. It's mind boggling how little doctors know about so much.
 
#59
Hi Lane, did you try iodine supplement?

Actually, my thyroid seems fine as TSH, T3 and T4 are ok.
We noticed my iodine level was a bit low so what you are saying is kind of ringing a bell... I just bought some iodine (200 nanog pills), it doesn't cost much and who knows, maybe I'll notice something. I have to check my nodules next April by the way, to see if it's still growing although it's benign.

Anyway I'll be glad to hear from you if iodine made you feel better.
 
#60
Ozwel said:
I just bought some iodine (200 nanog pills
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Hi @Ozwel, I think it's good you're beginning to supplement with iodine, especially since your testing indicates you're deficient in it. Just to mention however, the dosage you're taking doesn't strike me as being nearly enough. Iodoral is a popular supplement, with the dosage being 12.5 mg./day. And even at this dose, it may take 6-12 months to restore a deficiency.

The 200 nanog sized pills you're taking are a very tiny fraction of that 12.5 mg. [1 mg. = 1,000,000 nanog]. Some people think 12.5 mg is too high a dose, and that may be the case for some people. But I think most people would do well with it. Some women who have breast cancer or ovarian cancer take as much as 50-200 mg/day, with a lot of success stories as a result.

Iodoral's 12.5 mg tablets are a bit on the pricey side, and I prefer a lower cost lugol's iodine solution. I buy mine (from E-Bay) for $11.95. They've got a nice writeup at THIS LINK, which gives a succinct description of their product, and why they have the formulation they have (which I agree with). -- I did a WRITE-UP on iodine of my own which I posted on another thread. -- Best!

Iodine Supplementation for Better Brain and Sinus Health — Which "Might" Improve Tinnitus
...This is why Lugols solution and other iodine supplements like Iodoral usually come in a ratio of 2 parts potassium iodine to 1 part elemental...
Post by: Lane, Jun 12, 2018 in forum: Alternative Treatments and Research
 

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