Head Noise Rather Than Ear Noise

[juliet]

I have joined on behalf of my husband, Ian, who has been suffering with head noise for a few years.
The neurologist put him on Idaptan which was like a magic red pill, as the noise disappeared within 48 hours. He remained on that for 3 years. The about a year ago he started to develop Parkinsons symptoms. After investigation, it was discovered the pill had caused the symptoms. The blessing is that he does not have true Parinsons and the symptoms he has are controlled and will not progress.
The bad news is that since he stopped Idaptan the noise has returned in force. Alternative meds to increase blood flow have not helped at all.
The ENT guy referred him back to the newurologist who has just told him that nothing can be done to help, no operation, as it is due to circulation and nerve damage issues.
He has started physio, but the relief is minimal if any. He has found hot/cold pads give him some relief, but minimal.
The noise is 24/7.
It is very debiitating and has deeply effected his/ our quality of life, as he struggles to concentrate or communicate, so severe is the noise.
We both need help and support!

 

[valeri]

Juliet all I have to say is that Ian is a lucky man to have an understanding and compassionate partner like you.

Many of us struggle with lack of understanding from our nearest and dearest, not only friends but family too, very sad but true.

Sorry I can't offer any advise or help.

Wishing you both all the best!

 

[juliet]

Thanks, Valeri.
I read your post. Really feel for you, too.
I guess we must stick together. Although I don't personally suffer with it, I live with the results all day every day. It is an unspeakable agony at times.
My heart goes out to you.
Have you tried hot/cold pads? Often used for migraine sufferers, but it does ease the problem, albeit for a few minutes only.
x