Hello All. Recently Diagnosed with Tinnitus.

Hi, Keith,

Don't despair! Tinnitus is a very up-and-down condition, and quite unpredictable. This may be just a temporary spike in your left ear, that will go back down soon. My tinnitus has been in my right ear only for many years, but occasionally, I'll get some temporary ringing in my left ear as well. However, it always goes away.

I think it's good news that your right ear is doing so well, and it would seem to be a good sign that you are habituating to the tinnitus. Take care, and don't worry. Thanks for keeping us posted on how you're doing!
 
Yep, I'm boned... it's in both ears now. So an ear infection that was caught in tme has lead to this and it's completely unbearable. I give props to everyone who's suffered as long as you have but how do you cope. I can't even imagine another year of this already

Severely depressed. How am I supposed to keep going covering events that are loud as hell or enjoying my musics.
 
Hi Kieth,
Tinnitus is tough going and the unwanted emotions also take hold.
Try stay calm and do what you can stay positive.
Nice walks help lift your mood but if goes on a while see if you can have some counselling and medication.
Hopefully your tinnitus might go as your infection clears up but gunk in your tubes and inner ear can take a while to shift and might need a second lot of antibiotics and ear drops.

keep posting for support love glynis
 
When I originally went to an ENT, they gave me two audio tests; hearing and the other one, I forget what it's called. But basically it showed that my hair cells did have some damage which prevents me from hearing certain frequenices outside of 8K. I don't understand that as I can hear up to 16K using the hearing tests on youtube and android apps. Now, that said that was when I originally got my Tinnitus and before I started taking Amoxcillian.

Yesterday I went to a different ent as I wasn't happy how the other ent treated me and they explained the deal, what was happening and what needs to happen. IN a nutshell, they explain that the test did some the damage, which is/could be causing the "T". What I don't see is if they were damaged and luikely it was before the onset, why did I not experience "T" before.

They went on to explain that I need to avoid looking for the "T" and to avoid quiet places when possible. By now I'm still upset about the "T", but I'm getting used to it. Still can't tell why it's on and off though or why it seemed to get better.

What confuses me though is my GP did see some infection which is why I got the meds. I wonder if I should have had them give me another deeper test, but I didn't see the need. I can hear fine, I have zero hearing loss that I can tell, I can still hear things most people can't (my kids say I have supermans's hearing). Yet, my did my "T" move from the right to my left? Did I start to habitaite on that ear or is it just dumb luck? Why did I start to have fullness in my ears, I didn't think hair cell damage did that. Clear liquid in my ears, etc.

Ever since my offset, it's getting better and better, days when I get up, I hear it, then it goes away, then comes back but not as loud. I'm not looking for hope, I've accepted that I have it and now it's just the learning process of coping and moving on. Does "T" caused by damaged hair cells get better over time, worse? Up in the air?

I am definitely have more good / better days or days that are easier to cope with than before. maybe the ear infection aggravated what I already had?

Thanks gang!
 
Hi Keith,
Great to hear your tinnitus is improving for you.
Time is a great healer and hope it remains that way.
Their are lots of reasons for tinnitus and it can fluctuate and come and go and change sound and strength and move to one ear or both or head and hard predict peoples future but for now you seem in the right track...lots of love glynis
 
So I've excepted that the Tinnitus that I have is more than likely temporary and I'm sure i've driven my wife to the point where I have to stop talking about this so much. So my next step now is to figure out how I will go on coping with this, if not for me but for my family.

That said, how/where do I start? I'm already thinking about speaking with another ENT, but I figured at this point there's not reason. Is there someplace I can go? Do I need to contact my medical insurance company and go from there? I really want to start as I can't stop listening for my T and the holidays are coming up and the last thing I want to do is be a burden on my family.

Please help, I don't know where I need to start, despite reading the links available here.

Hello :) I am fairly new to this ugly T monster as well, going on about 7 weeks now.. I started off with seeing an ENT, getting an audiogram and following back up with the ENT. Basically, it was no help. I do have mild hearing loss which *could be* the cause, I'm also pregnant which *could be the cause* bottom line is they can't really tell me what the cause is. She basically shrugged me off and sent me with a referral to an audiologist. I myself haven't gone yet because these things cost money and I'm still very new to this. If you haven't seen an ENT or had an audiogram you may find it helpful just in reasurring yourself there isn't anything serious going on. And hey, maybe its somethg simple..

Like yourself, I find days where my T is almost gone or at least where it doesnt bother me, followed by loud days where it is more intrusive. I had a LOT of anxiety about it in the beginning and still do on bad days.. On good days I think, Hey, I can live with this but I still focus a lot on what I'm hearing and the volume/tone etc. I know this is normal for us "newbies".

My advise to you and what has helped me is seeing some sort of therapist to deal with the negative thoughts/anxiety that goes with this. I personally cannot take anxiety meds as I am pregnant so instead have been taking classes on meditation which help me during really bad days to gain control of my anxiety which does tend to lower the T volume as well. I've also been taking time out for me for occasional massages, acupuncture and other things to de-stress. My psychotherapist advised me to try and not talk about it too much with my boyfriend/family because they don't understand and it can cause negative affects to relationships to always be obsessively talking about your symptoms.. THis is harder said then done. I really have cut back with constantly describing the noise and my distress level to my BF and instead only say "wow, this is a bad day for my ears today." or "my ears are really sensitive, can you turn that down?". I seek support here because others know what I'm going through and I don't feel my obsessive,intrusive worries are a burden to the group (I've had nothing but support). Some people will also tell you to stay off this site in the early days, which I find almost impossible because it's one of the only places I get support and understanding.

Also, go on with your life like everyone else says. I'm still going to work, playing with my kids, cooking dinner etc as before I had T just more cautious to external sounds/sugar, salt and caffiene triggers. Its hard but I can tell you in just 7 weeks for the most part I've made improvements as I'm not a blubbering mess like I was when this initially started.. Do I still have anxiety and sometimes "Freak out"? Yeah of course.. It gets overwhelming sometimes. BUT I really try to use my meditation techniques to kick that in the butt and busy myself with something else to avoid focusing on the sound. I also tried the back to silence method listed above and do that periodically.

Everything I've been told and read here indicates T can vastly improve especially in the early period (up to 6 months) and go away without treatments like TRT/ CBT. After 6 months, it can still go away too but you're more likely to have it last. Even if it lasts, I've been told habituation occurs for most of us within a year to 18 months which, in the scheme of 80-90 years of life is really nothing, right? I can already feel myself improving (or habituating, if thats even possible ) at only 7 weeks in and still trying to kick my bad days. The good days are really really good though and keep me going. Today is a hard day for me, and I've been struggling but the thought that I just had 2 good days is my silver lining. Maybe tomorrow will be better too?..

Sorry for typing a novel. :) just wanted you to know you are NOT alone.. :huganimation:
 
While this is something I should have asked my GP and ENT, I missed that chance. Goes like this -> Ent says you got "T", have fun -> GP says your ear looks infected, take this *Cue Zelda Get Music -> 14 days later I follow up with my GP and says it looks better, still some fluid since the ear drum in my right ear didn't move as much but all should be well in 1-2 months. A new follow up with a different ENT who used my old results and was more through with talking to me about my issues, results and what to do.

My otoacoustic emissions test says something something sub-clinical outer hair cell dysfuntion, i'm assuming above 8K but I can still hear at the frequency it says I"m missing or is reduced. So my question is, if my hair cells aren't playing well or just plain dead/dying, could it be that the ear infection is causing or did cause issues? Perhaps tehy were always like that but the infection just made it more noticeable? I was under the impression that dead hair cells was the result of aging and exposure to loud noise and I never attend concerts or anything that has prolonged long noise. I didn't even like being exposed to loud noises even before this.

Was just curious about that.
 
Ear infections can damage/kill those little hair cells. I know 2 people IRL whose ear infections were followed by hearing loss and T.
 
And I hate it. I had a little spike earlier today and that was it. It's been mostly quiet, though I can't say if it's gotten better of if I'm starting to habituate. Either way I hate it as I know it's waiting around the corner to ambush me.

"T" be a cruel joke.
 
Try and enjoy the more quite days. Accept that some bad days will be there. I feel its easier to enjoy the good days then.
Otherwise you just worry "maybe tomorrow it will be bad so why enjoy this day"
 
Great to hear your having some good days and make the most of them and have a ace up your sleeve for not so good days.
I like downloading a new CD when im letting my tinnitus get the better of me but then I know its time to push hard with everything and know makes me happy and that works for me with my trusty hearing aids I know I won't let tinnitus beat me as its here to stay .
Try not let your tinnitus take your smile and laughter away...lots of love glynis
 
And I hate it. I had a little spike earlier today and that was it. It's been mostly quiet, though I can't say if it's gotten better of if I'm starting to habituate. Either way I hate it as I know it's waiting around the corner to ambush me.

"T" be a cruel joke.
I feel the same way. Days where my T is really quiet and super managable I actually have anxiety about when will it come back! Anxiety if its there, anxiety if its gone. This is such a cruel thing to suffer with. :( I have 1-2 good days followed by a loud day or two, followed by a few good days. It's been my cycle for two weeks now. I try to tell myself this must mean I'm improving or that I'm super lucky I actually have quiet days and not constant T but it's exhausting either way. Hang in there.
 
I feel the same way. Days where my T is really quiet and super managable I actually have anxiety about when will it come back! Anxiety if its there, anxiety if its gone. This is such a cruel thing to suffer with. :( I have 1-2 good days followed by a loud day or two, followed by a few good days. It's been my cycle for two weeks now. I try to tell myself this must mean I'm improving or that I'm super lucky I actually have quiet days and not constant T but it's exhausting either way. Hang in there.
2 months in, and you're already having good days. I wouldn't have said that 2 months in. So you are improving. keep up the positive thinking/mindset. it goes a long way.

good luck,

eric
 
2 months in, and you're already having good days. I wouldn't have said that 2 months in. So you are improving. keep up the positive thinking/mindset. it goes a long way.

good luck,

eric

Thank you. I feel like I must be improving as I have read so many posts where it has taken people a lot longer to get to this point. I feel grateful for the fact that I do have good days and am improving or at least better able to tolerate it most days. :) Today has been a little rough so far and I am feeling down and wondering why this had to happen to me but am trying to kick that and get on with my day..
 
And not just due to the "T" and the ear popping. I recently had a heart to heart with my wife about this who ordeal as she was tired of me complaining and bitching about it all. I finally used the "you don't know how I feel or how this shit is bothering me" card and to my surprise she responded by yes she does. She went on to talk about the sounds in her ear and how she's had them, which was way longer than we've been together. And we've been together for 16, married for 14 and I've never heard her mention this or complain about it once. I knew she has issues with migraines, to which I've bitched at her about going to the doctors (She never goes) but never the "T".

I wouldn't have believer her except she was right on the money about the sounds and she basically tells me she doesn't focus on them and she's fine. I've been probing but stopped as I didn't want her to start recalling it, though she tells me from time to time she hears it. The signs were there through, like leaving the tv on at night, never being completely silent at home when she's alone, etc.

Here I am, bitching and crying, while my love of my life is strong willed and doesn't like small stuff bother here. My respect meter just went up that much higher for her. Now if only I could be like her vs being so anal and detail oriented and stressed the hell out.
 
I don't think it's got anything to do with being strong willed, it's all about the volume and pitch.
If you had what she has maybe you wouldn't complain either.
I doubt she has it bad, severe tinnitus is not easy to live with!
 
I don't think it's got anything to do with being strong willed, it's all about the volume and pitch.
If you had what she has maybe you wouldn't complain either.
I doubt she has it bad, severe tinnitus is not easy to live with!

Yeah I agree, all T is not the same, people like to generalize, especially those that have T. I had regular T to start with as well, it's not a big deal I agree, but it can get bad, I'm not sure why this is so confusing for so many people.
 
ive lived with chronic pain all of my adult life. some days are worse than others, and yet, ive never mentioned this to my loved ones. Why? because on the whole, I have learnt to live with it. I think its the same for your wife. She has habituated to her t, so why talk about something that isn't an issue for her?
 
If you can hear your T over just about everything in the natural world, you have it bad! I have to live in that Hell everyday. There is a difference, between pussycat T and Tiger T.
 
Yeah I agree, all T is not the same, people like to generalize, especially those that have T. I had regular T to start with as well, it's not a big deal I agree, but it can get bad, I'm not sure why this is so confusing for so many people.

Telis it's seriously beyond me why are we still debating about this???
This is like comparing a dull headache with debilitating 24/7 migraine!
What on earth is so hard to "comprehend" here???!!!
Is it possible that people can be so ignorant???
 
Hi Keith,
Your tinnitus is troubling you and don't feel guilty about it as you need support and understanding.
Your wife seems to be ok with her sound and hope one day you will be too.
Keep posting on here for support too.....lots of love glynis
 
And not just due to the "T" and the ear popping. I recently had a heart to heart with my wife about this who ordeal as she was tired of me complaining and bitching about it all. I finally used the "you don't know how I feel or how this shit is bothering me" card and to my surprise she responded by yes she does. She went on to talk about the sounds in her ear and how she's had them, which was way longer than we've been together. And we've been together for 16, married for 14 and I've never heard her mention this or complain about it once. I knew she has issues with migraines, to which I've bitched at her about going to the doctors (She never goes) but never the "T".

I wouldn't have believer her except she was right on the money about the sounds and she basically tells me she doesn't focus on them and she's fine. I've been probing but stopped as I didn't want her to start recalling it, though she tells me from time to time she hears it. The signs were there through, like leaving the tv on at night, never being completely silent at home when she's alone, etc.

Here I am, bitching and crying, while my love of my life is strong willed and doesn't like small stuff bother here. My respect meter just went up that much higher for her. Now if only I could be like her vs being so anal and detail oriented and stressed the hell out.
It's nice for your wife that she can live with it :)

I don't think there's a need to compare, though. If it's hard for you, then that's very real. That someone else deals with it (if it's even the same sounds at all) differently doesn't make it better for you.

I think the way out of this t-thing is accept the reality of it, look at what options you have, and make the best of it. Hopefully with the support of others. Ignoring the problem or forcing your way through it ('manning up' or whatever you want to call it) probably won't help.

Staying calm is half of the battle, and stressing over that someone else stays calmer probably won't help either.
If fact there's probably always someone doing something better than you, and always someone doing something worse. It doesn't matter... How are you doing?
 
Telis it's seriously beyond me why are we still debating about this???
This is like comparing a dull headache with debilitating 24/7 migraine!
What on earth is so hard to "comprehend" here???!!!
Is it possible that people can be so ignorant???
Yeah, of course t varies in severity, but I think the OP was just expressing humility and admiration for his wife's ability to cope. If she still wants the TV on at night after living with t for over sixteen years then I'd guess her t is not completely insignificant.

I do think our personalities have some influence on ability to cope, as Keith was saying. I think I'm like Keith... my personality sometimes makes it harder for me to cope well, although I'm making no claim that my t is the worst ever.

@Keith D Mitchell, your ability to cope will improve, and maybe your wife having t as well is an opportunity to get support from each other. Reading between the lines of what you say it seems her t might still bother your wife sometimes but that she is maybe used to feeling that she shouldn't talk about it? People without t often fail to understand, so those of us with it learn to keep it to ourselves a lot of the time. Maybe your wife has taken this very much to heart and is now expecting the same of you. Opening up about it could perhaps be good for you both if you can find a way to talk about it that works for her? I wouldn't push that, just give it time and opportunities.
 
Loudness is a factor yes. But how much the person is bothered by it is the major factor.

When i got my T 2012 i heard it over everything, including shower on my scalp. When i learned to cope with it i still heard it when i focused on it. But i never heard it in my daily life because i got used to itm
Now i am in a spike and i am back to 2012. I hear it over everything because i can only focus on it and that makes it even louder.

You can never messure T. It is impossible. Yes someone that got it recent and only hear it when they really listen to it got a mild t.
 
mmmmm Volume ,Tone and does it give your ears Pressure.....if I was where I was 5 years ago I wouldnt even be on this Forum ,yes I had sought treatments every now and again over the years for my T well before those 5 years but it was doable...im in a lot of daily trouble with this thing now
 
My tinnitus has a variation too.
It's either very loud or if I listen to something louder,my tinnitus will always be louder. It's like it has its own volume control and wants to make itself heard.
I wouldn't mind if it was a nice sound,but it's a cross between a dentist drill or an electric drill.
I have everything fairly loud just so I can hear it and i tend to talk loudly or shout just to make myself heard :(
 

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