Hello, Seeking Help/Advice — Brain/Head Tinnitus Accompanied by Another Tone in My Right Ear

[Doll94]

Hello been reading on this forum for a while, I've had this since 22nd of December 2018, basically I think my tinnitus is head tinnitus, or brain tinnitus accompanied by another tone I hear in my right ear.

Been to see many doctors and told various things about what it might be, viral or bacterial infection, middle ear infection, flu, also was given amoxicillin & ear drops and told that it will go away...

I have an ENT appointment in April, there's a waiting list in the UK. But I've been put on Mirtazapine 15 mg & Quetiapine 25 mg by the mental health team, along with Zopiclone 7.5 mg for sleep from my doctors. Stopped taking the Quetiapine for 4 days now as I'm skeptical/scared about taking too many things and that one has a long list of side effects.

I'm having random stabbing pains in my inner ears. When I apply pressure to my outer ear and just under the lobe on my neck there is pain.

Also having pressure sometimes behind my nose.

I'm severely suffering and my whole life has been turned upside down, as I used to sing (not gigs or anything, just as a hobby in my room) nothing brings me joy anymore, I can't relax doing anything, I don't ever feel comfy anymore, I find myself extremely suicidal day by day and just want some hope that this noise in my head could go away or anything I could do to help it?

Never felt so desperate before in my life. Did find myself very sensitive to sounds at first but that seems to have diminished, I don't feel I have any hearing loss, nothing sounds muffled... just this static-y hissing noise competes with things like the TV. Feels like it's moving all over my head to my ears and back again, pinging up and down.

I've tried ignoring the sounds, and it hasn't worked. Feels like the volume has decreased from what it was but honestly my memory has become so bad I don't know if the lower volume could be my reaction to it/reaction to the meds. I did have what I can only describe as electric like head zaps but these seem to have gone away.

Truth is I do want to live, but I don't want to live with this permanent noise, I can't escape from... Fearing it could get louder (even though it's super intrusive as it is), more tones.. I'm struggling to sleep even on strong meds... that I don't even want to take, it's a joke. I've never struggled with sleep before.

Please some help/advice/suggestions, I'm so scared, I'm only 24. I don't know how to message anyone but please message me.

 

[Dr. Ancill]

Please try not to be scared. I am sure nothing terrible is going on but the onset of your symptoms can be quite scary, especially when you are 24. I am sure the mental health team are only trying to help but it seems they are only adding to your anxiety and it sounds like medication side-effects are being incorporated into your concerns.

The most likely reason for the sudden onset of tinnitus in your age (apart from standing next to an explosion) would be an infection of the middle and/or inner ear. Viral infections can last for some months. I know the wait-lists are frustrating but an ENT assessment is the next logical step.

Keep discussing things with your own doctor(s) and try to keep your descriptions brief and on point.

 

[Doll94]

Thank you for your reply. I really appreciate it. I just feel so hopeless and lost, and it genuinely feels like I've been stuck in this loop forever. My heart really goes out to everyone who is/has been suffering from this. I'm trying to not be scared but it's hard when there is no help and only sympathising eyes.

 

[gorzakus]

Hi,
I am also having the head tinnitus together with the ringing in one ear. Please understand that the head tinnitus will let likely get better in time as it did for me and others!

 

[Jr_time]

You are not alone. I'm feeling the same way right about now.

 

[Doll94]

Hi,
I am also having the head tinnitus together with the ringing in one ear. Please understand that the head tinnitus will let likely get better in time as it did for me and others!

Hello gorzakus, sorry to maybe ask a silly question but get better as in go away or go down in volume ?

 

[gorzakus]

Hello gorzakus, sorry to maybe ask a silly question but get better as in go away or go down in volume ?

For me they come and go but I had more episodes in the beginning, the ear tinnitus is always there fluctuating.
If you use the search function you will see there are others who got rid of their head tinnitus.

 

[Doll94]

For me they come and go but I had more episodes in the beginning, the ear tinnitus is always there fluctuating.
If you use the search function you will see there are others who got rid of their head tinnitus.

I have been constantly looking for these kind of stories i could deal with the sound in my ear if that's all i had but it's the head noise that's got me on my knees begging for mercy

 

[Luman]

I tried to PM you, but it said that I am not allowed to do this.

Sorry to read what you're going though. Many of us have been there and, as impossible as it sounds to you right now, things will improve.

I would recommend watching, more than once, the webinar below with Dr. Hubbard, a psychologist who is a member of this site, and has tinnitus himself. It is loaded with facts, and how to deal with tinnitus, both in practical and psychological ways.

Good luck, hope you feel better soon.

https://www.cbtfortinnitus.com/webinar

 

[Contrast]

Some people without obsessive noise exposure have a genetic disposition to wind up with hearing damage, that is the most common cause of tinnitus and pain from noise, but we can't outrule another central nervous system disorder or infection like Lyme's disease.

 

[PaulFi]

Hello been reading on this forum for a while, I've had this since 22nd of December 2018, basically I think my tinnitus is head tinnitus, or brain tinnitus accompanied by another tone I hear in my right ear.

Been to see many doctors and told various things about what it might be, viral or bacterial infection, middle ear infection, flu, also was given amoxicillin & ear drops and told that it will go away...

I have an ENT appointment in April, there's a waiting list in the UK. But I've been put on Mirtazapine 15 mg & Quetiapine 25 mg by the mental health team, along with Zopiclone 7.5 mg for sleep from my doctors. Stopped taking the Quetiapine for 4 days now as I'm skeptical/scared about taking too many things and that one has a long list of side effects.

I'm having random stabbing pains in my inner ears. When I apply pressure to my outer ear and just under the lobe on my neck there is pain.

Also having pressure sometimes behind my nose.

I'm severely suffering and my whole life has been turned upside down, as I used to sing (not gigs or anything, just as a hobby in my room) nothing brings me joy anymore, I can't relax doing anything, I don't ever feel comfy anymore, I find myself extremely suicidal day by day and just want some hope that this noise in my head could go away or anything I could do to help it?

Never felt so desperate before in my life. Did find myself very sensitive to sounds at first but that seems to have diminished, I don't feel I have any hearing loss, nothing sounds muffled... just this static-y hissing noise competes with things like the TV. Feels like it's moving all over my head to my ears and back again, pinging up and down.

I've tried ignoring the sounds, and it hasn't worked. Feels like the volume has decreased from what it was but honestly my memory has become so bad I don't know if the lower volume could be my reaction to it/reaction to the meds. I did have what I can only describe as electric like head zaps but these seem to have gone away.

Truth is I do want to live, but I don't want to live with this permanent noise, I can't escape from... Fearing it could get louder (even though it's super intrusive as it is), more tones.. I'm struggling to sleep even on strong meds... that I don't even want to take, it's a joke. I've never struggled with sleep before.

Please some help/advice/suggestions, I'm so scared, I'm only 24. I don't know how to message anyone but please message me.

Hi, I have had almost the very same since November. Pulsating heartbeat in ears at night also now. Keep up the hope. It will eventually settle down whatever it is.

 

[Doll94]

Some people without obsessive noise exposure have a genetic disposition to wind up with hearing damage, that is the most common cause of tinnitus and pain from noise, but we can't outrule another central nervous system disorder or infection like Lyme's disease.

I appreciate ur reply contrast as i know from my lurking you are a valid member of this community. I know everybody has hearing damage to some degree.. but i can hear things clearly the hissy static noise is just constantly in the background. I've had blood work done and the only thing that come back was me being deficient in Vitamin D, what tests in the UK can be done to find these things out that you mentioned?

 

[Doll94]

Hi, I have had almost the very same since November. Pulsating heartbeat in ears at night also now. Keep up the hope. It will eventually settle down whatever it is.

Has yours not settled down? So you have 2 sounds like me ?

 

[Contrast]

I appreciate ur reply contrast as i know from my lurking you are a valid member of this community. I know everybody has hearing damage to some degree.. but i can hear things clearly the hissy static noise is just constantly in the background. I've had blood work done and the only thing that come back was me being deficient in Vitamin D, what tests in the UK can be done to find these things out that you mentioned?

the closest thing is a speech in background noise test.

There is no other official test, audiology is literally in the stone age compared to research.

 

[PaulFi]

Has yours not settled down? So you have 2 sounds like me ?

Yep I have different sounds and had the hissing, static, brain T, ear T, electricity in the head feeling for a month (that has settled down likenu also)

 

[MBH]

I have head tinnitus with other sounds, crickets, static. But after a while mine is better. I keep busy, I listen to masking sounds, use a fan. It's a lot of little things that help with tinnitus.

 

[SashaG]

Truth is I do want to live, but I don't want to live with this permanent noise, I can't escape from... Fearing it could get louder (even though it's super intrusive as it is), more tones.. I'm struggling to sleep even on strong meds.

I can relate to this so well, I was also kicked out of my world like there is no tomorrow. I loved watching movies, had several tv shows queued up for April, liked playing video games, working as a musician and now all I did and love, is gone.

I spend most time looking for answers, sitting in silence, trying to understand what´s going on. It´s the different sounds I have that make me go crazy too. Some type of electric, "incoming fax" sounds, which is more on the side of my head than in the ear. in the ear, I have a jet, that can slow down to a soft fan noise, the whisstle is gone, it disappeared in week 1 already, but now being in week 2 and a half, I am scared.

What keeps me alive is hope, hope that it will all go away, as I do had moments of silence in the second week. Maybe, you can remember these moments too and hold on to them? My issue is mostly due an MRI scan which was loud, so we might be in a different situation, but if you did not experience noise, your chances should be there to recover.

I wish you all the best, life just seems troublesome, but if we fight we can still win.

 

[Doll94]

I can relate to this so well, I was also kicked out of my world like there is no tomorrow. I loved watching movies, had several tv shows queued up for April, liked playing video games, working as a musician and now all I did and love, is gone.

I spend most time looking for answers, sitting in silence, trying to understand what´s going on. It´s the different sounds I have that make me go crazy too. Some type of electric, "incoming fax" sounds, which is more on the side of my head than in the ear. in the ear, I have a jet, that can slow down to a soft fan noise, the whisstle is gone, it disappeared in week 1 already, but now being in week 2 and a half, I am scared.

What keeps me alive is hope, hope that it will all go away, as I do had moments of silence in the second week. Maybe, you can remember these moments too and hold on to them? My issue is mostly due an MRI scan which was loud, so we might be in a different situation, but if you did not experience noise, your chances should be there to recover.

I wish you all the best, life just seems troublesome, but if we fight we can still win.

It's despair and desperation like i have never known in my 24 years of life on this earth, i think the fact there is no cure or no relief makes it all the more dreadful, i too relate to what you said, nothing brings me joy anymore it's like i've had the life sucked out of me, i've been going thru this for months they say that the first couple of months are the worst. The fact you have experienced silence in the first couple of weeks is a very promising sign. But yes hold on to any kind of hope you can, i was so scared at first i still am but i'm trying to think positively that it can fade away.

When it first started in December i had crazy head pressure and headaches, which thankfully now has gone but i was very stressed and anxious. Fear about this is natural as it's invisible to everyone around us. I too hope that it will go away, and if i am fortunate enough for it to go i think it will be an eye opener for me. Something to remember though is no headphones or loud noise as this can make the situation worse, i'm no expert on this as i'm still pretty new but from what i have read this is crucial for healing and prevention from making things worse.

I too am clinging on. Thank you for the encouraging words, feel free to pm me if you want to, it's important to know you are not alone in this scary battle

 

[just1morething]

but i can hear things clearly the hissy static noise is just constantly in the background.

I wake up to that kind of noise everyday. I am taking Gabapentin 300 mg and using hearing aids with a remote control and it seems to really help. Turning up the hearing aid must make up for the inner ear damage. Gabapentin works on nerve pain and is a very common med.

I understand how frustrating it is to have hissy static noise in the background. It could be high frequency hearing loss caused.

I used to take Klonopin also but Dr.'s are leary of prescribing that lately.

 

[SashaG]

Fear about this is natural as it's invisible to everyone around us. I too hope that it will go away, and if i am fortunate enough for it to go i think it will be an eye opener for me.

I am not sure how to PM someone, but I surely would do so if someone can show me how. but this sentence is exactly how I feel. I took so many things for granted like watching a movie, sitting on the balcony and now I realize how precious all of that was.

It seems as if that experience could lead me to a totally different perspective in regards of how I was living my life, how I was treating other people and so on. I guess we must first endure big pain to realize how lucky we were.

 

[Doll94]

I wake up to that kind of noise everyday. I am taking Gabapentin 300 mg and using hearing aids with a remote control and it seems to really help. Turning up the hearing aid must make up for the inner ear damage. Gabapentin works on nerve pain and is a very common med.

I understand how frustrating it is to have hissy static noise in the background. It could be high frequency hearing loss caused.

I used to take Klonopin also but Dr.'s are leary of prescribing that lately.

Thank you for the reply. Have you experienced any fading since the onset?

I'm trying to get thru this on the most minimal drugs as possible, i'm only taking what i absolutely need to take lol
I'm in hopes i've only injured my ears and not damaged them, its the only thing i'm holding on to at the moment. Is gabapentin like an anti-anxiety med ?

 

[Doll94]

I am not sure how to PM someone, but I surely would do so if someone can show me how. but this sentence is exactly how I feel. I took so many things for granted like watching a movie, sitting on the balcony and now I realize how precious all of that was.

It seems as if that experience could lead me to a totally different perspective in regards of how I was living my life, how I was treating other people and so on. I guess we must first endure big pain to realize how lucky we were.

I think it might be something to do with verifying ur account. It wouldn't let me pm anyone at first either when i created my account but i contacted the site and verified my account and that seemed to do the trick. Yeah i can completely relate i would get stressed out at the most stupid things and my attitude sometimes towards people that love me completely sucked.

I agree but nobody and i mean NOBODY on this site deserves pain like this, only bad people should have this happen to them but i realise the world doesn't work that way and it's very unfair. My time on here hasn't been long but there are amazing supportive people on here that are brilliant and suffering just as much as you and i, and in that there is some comfort. May be little but we take what we can at this hard time.

Theres a saying that i've known throughout my life and it's "you don't know what you have until you lose it" boy is that true. If we are lucky enough to make it i know we will be more appreciative of life

 

[just1morething]

Is gabapentin like an anti-anxiety med ?

It's for nerve pain and I believe a mood stabilizer as well. I also take Lamictal 25mg (mood stabilizer) I can't tolerate the side effects of other meds such as SSRI's, SNRI's, Tricyclics, etc. The hearing aid probably helps quite a bit too. I like the remote control on it.

Someone on this forum recommended Audicus brand so that's what I got. You just email them your audiogram. In the UK maybe you can get them free? You may be turned off by a hearing aid at your age but if it helps WTH? You can't hardly see them with the BTE ones.

https://www.tinnitustalk.com/threads/regular-hearing-aids-are-curing-my-tinnitus.25523/#post-324053

 

[SashaG]

I think it might be something to do with verifying ur account. It wouldn't let me pm anyone at first either when i created my account but i contacted the site and verified my account and that seemed to do the trick. Yeah i can completely relate i would get stressed out at the most stupid things and my attitude sometimes towards people that love me completely sucked.

I agree but nobody and i mean NOBODY on this site deserves pain like this, only bad people should have this happen to them but i realise the world doesn't work that way and it's very unfair. My time on here hasn't been long but there are amazing supportive people on here that are brilliant and suffering just as much as you and i, and in that there is some comfort. May be little but we take what we can at this hard time.

Theres a saying that i've known throughout my life and it's "you don't know what you have until you lose it" boy is that true. If we are lucky enough to make it i know we will be more appreciative of life

Well said, its just the same for me. To be annoyed at someone for the most stupid reasons, or at things that happen in your countries politics, or at a DJ changing his style... it all seems so stupid today.

My grandmother suffered from hearing loss, she had a terrible time and today I realize how hard it must have been for her. I feel guilty and bad, for not understanding it better...

I hope to sort out the ability to PM members, I sawa 2 step confirmation process, maybe that it is. I did the email thing, but don´t have a phone for apps, so I am unsure whats next. Sorry, for bringing this up in your thread btw.

 

[Doll94]

@SashaG understandable with ur grandma struggling maybe it was meant to bring you both closer, least you can talk to her and have a better view of what she's going thru.

Don't apologise it's fine I'm only using my iPhone so I'm not too sure.

 

[Doll94]

@just1morething
I'm not familiar with Lactimal, I have heard of Gabapentin though just wasn't sure what it was for.

It's something I'm willing to consider if it doesn't get better on its own, although I do hear everything just fine so I'm not sure it's the right road for me.

 

[just1morething]

It's something i'm willing to consider if it doesn't get better on its own, although I do hear everything just fine so I'm not sure it's the right road for me

I hear fine too. It's the background static that is so annoying. I'm doing pretty good atm. I am taking liquid potassium and magnesium too. You have to mix it with orange juice because it tastes awful with water.

 

[SashaG]

@SashaG understandable with ur grandma struggling maybe it was meant to bring you both closer, least you can talk to her and have a better view of what she's going thru.

Don't apologise it's fine i'm only using my iphone so i'm not too sure

She sadly passed away about 6 years ago, but she was suffering a lot, so for her it was relief. She also had very bad eye sight. I was always afraid to end up like her, it´s silly to pity myself like that, she had it a million times harder... I wish i could have been there for her more, but I wasnt.

Done the two step account verification now, but still cant write any messages to anyone. Thanks for being ok, if I post here, i dont want to come around rude or selfish but it helps me-

 

[Doll94]

@SashaG I'm sorry to hear that try not to dwell on that too much right now, you are experiencing a ton of shitty emotions and being hard on yourself further won't help you feel any better so maybe just put them thoughts aside for now.
You haven't come across that way at all, we all know what your going thru so communicating to people who actually get it can help. Nothing shameful about reaching out

 

[SashaG]

I settled slightly now I guess, soon is night time and I am slowly preparing for that part. Took some incense oil, also got some berries that promote sleep, last ones though. Thanks again for the comfort!