Hello

Ariadne

Member
Author
Aug 6, 2018
8
Wales
Tinnitus Since
2015
Cause of Tinnitus
noise exposure
Hi

I've had tinnitus since I was 16, like many struggling with it, I am a big music fan. I was already in a very bad spot when it first came on so it's been quite difficult.

I went through a period recently of being able to live with it and be okay. I got into uni after years out of full time education and started looking forward to things again, but im in the middle of a spike. That is why I have decided to join this site, I could use the support of people who can relate.

I'm nineteen and I enjoy reading (when my tinnitus allows for the concentration), listening to music and watching films and documentaries. Tell me about yourselves.

I hope you are all well!
 
@Ariadne...
Hi and welcome to this lovely T family :cool:
I am sure your Spike will soon settle.
Personally I gets spikes a lot, and can never pin down what starts them, but they have always faded back to baseline.
Be as calm as you can and just ride it out.
I think of mine as a naughty attention seeking toddler and try to ignore it or tell it to get lost
I hope its soon calms down for you.
There are lots of good folk with good advice you can vent too here.
X
 
Hi Ariadne It seems to me like an oxymoron, welcoming someone to a site devoted to Tinnitus, something no one wants, but which we live with. With that said, welcome. I too am new to this forum and I am relieved you have found it. I have found it to be an excellent source of information, and importantly support. Everyone knows what you are going through, and you are not alone, you have support at this site. There are others who regularly read, support and answer your questions. Just realize that this site is a world wide site, so if people do not respond right away, it is because they may be on another continent. So when you look for responses and your thinking, only 1 reply, give it some time.
I encourage you to read the posts in the Introduce Yourself section, and the support section. It may help you gain some insight to issues and aspects of Tinnitus. From what I have started to learn is that loud noise = bad (so at the start listen to your music at a lower volume and movies can be loud so be wary), ear protection = good, being aware and not letting your guard down, e.g., going into a loud restaurant or coffee shop without ear protection and thinking it will be ok = not good, realizing and having and believing in your future and hope = good. Going back to school after years out does take a lot of courage and resolve, and these characteristics will serve you well. Coffee Girl has had some really great posts that I recommend you look up, as well as Bill B., Fishbone, Micheal L. Glnyis among others who have a lot of good ideas, and more expereience than I do.
Best of luck, I hope this helps.
John CC
 
Hi

I've had tinnitus since I was 16, like many struggling with it, I am a big music fan. I was already in a very bad spot when it first came on so it's been quite difficult.

I went through a period recently of being able to live with it and be okay. I got into uni after years out of full time education and started looking forward to things again, but im in the middle of a spike. That is why I have decided to join this site, I could use the support of people who can relate.

I'm nineteen and I enjoy reading (when my tinnitus allows for the concentration), listening to music and watching films and documentaries. Tell me about yourselves.

I hope you are all well!

Welcome. Sorry about the spike. Do you know what has caused it?

Ive been here for about 5 years. My tinnitus and hyperacusis was caused by an ear infection/ciprofloxacillin.

A bit of a rollercoaster, but now habituated. Speaking of spikes, my tinnitus has improved since receiving adipose derived stem cells last year. I can confidently say that I don't have the severe spikes anymore, and the reactive component of my hyperacusis has diminished significantly, which is why I think my hyperacusis has improved.

x
 
Hi @John CC :)

Thank you for the lovely welcome! I really appreciate it. I will try to remember to keep ear plugs in my bag when I go out because I know how distressing it can be to suddenly find yourself in a very loud place, and of course I will try to remain positive.

I've seen posts from some of the people you mentioned whilst looking around and they do seem very helpful and friendly. I've been pleasantly surprised by how warm and welcoming people have been, you never know on the internet.
 
Welcome. Sorry about the spike. Do you know what has caused it?

Ive been here for about 5 years. My tinnitus and hyperacusis was caused by an ear infection/ciprofloxacillin.

A bit of a rollercoaster, but now habituated. Speaking of spikes, my tinnitus has improved since receiving adipose derived stem cells last year. I can confidently say that I don't have the severe spikes anymore, and the reactive component of my hyperacusis has diminished significantly, which is why I think my hyperacusis has improved.

x

Hello! :) I'm not entirely sure, I've had a bit of a cold and although it's cleared up, I'm prone to problems with my sinuses so I imagine it's related to that. It is scary nonetheless.

It's wonderful that you've habituated and you no longer suffer from severe spikes! Well done for getting through some what must have been so pretty rough times. I'm going to try to distract myself and keep my head up while going through the worst of it.

Wish you all the best!
 
but im in the middle of a spike

HI @Ariadne

Spikes in tinnitus can occur for a number of reasons. When the tinnitus was originally caused by noise exposure as in your case, the usual reason is exposure to sound. Particularly loud sounds or using headphones. If you use headphones then I strongly advise you to stop even at low volume as you risk making your tinnitus worse. If you attend places where loud music is played then use "noise reducing" earplugs. You still need to careful of loud sounds/music at venues such as: clubs and concerts even when wearing earplugs. This is because, if external sounds are loud enough which they often are at these places, they will pass through your head/skull and be transferred to your inner ear by bone conduction and spike the tinnitus.

Spikes in tinnitus caused by sound are not good and should be treated as a warning, that your ears and auditory system are not happy with the sounds they are being exposed to. If one continues on this path the tinnitus can increase to a new permanent level. Sorry to sound so sobering but I'm very serious about this. I am a HI-FI enthusiast and like you enjoy my music a lot however, I am careful and advise you to reflect on what I have told you. Please click on the links below and read my posts that you might find helpful.

All the best
Michael

Are spikes from loud noise permanent?

Someone recently asked me, whether a spike in tinnitus caused by loud noise would be permanent? I don't think there is a definitive answer, because tinnitus is a complex condition and if hyperacusis is also present it can complicate matters further. Some people habituate to tinnitus but their hyperacusis hasn't fully cured and this can cause tinnitus to spike.

When a person first develops tinnitus and it was caused by loud noise they have to be careful in future. Tinnitus can and does spike for many people and this is not necessarily caused by loud noise or sounds. After a while it usually returns to baseline or into its normal rhythm. Danger can present itself after a person habituates and the tinnitus has reduced to mild or moderate levels for most of the time. If one isn't careful, it can be easy to forget and slip back into the old lifestyle of: listening to music through headphones. Attending clubs, concerts and the cinema where sound levels can be quite high.

I believe a person with tinnitus should attend clubs, concerts and the cinema if they want to, providing they use noise-reducing earplugs to protect themselves. However, one should remember that nothing is one hundred percent safe. My advice is to stay clear of large standing floor speakers and if you're at a concert don't go to near the front stage where the music is likely to be booming out at high sound levels.

In many instances people will get a warning when visiting these places. If the decibel levels are too high their tinnitus might spike. Usually the tinnitus will return to baseline. However, some people do not pay attention to these warnings and continue to subject their ears to loud sounds and think they are perfectly safe because they are wearing earplugs. Under these circumstances the tinnitus might spike again and this time it might become permanent. I am saying might because nothing is for certain. In my opinion a person with tinnitus needs to follow the warnings their auditory system and tinnitus is telling them.

Regarding headphones. Many people have contacted me after they have habituated to tinnitus and returned to using headphones and listened to music through them at low volume. All of them have noticed an increase in their tinnitus. Some of them noticed their tinnitus spiked but carried on listening to music through headphones and then the tinnitus increased to a higher and more permanent level. It must be said that some people with tinnitus use headphones and have no adverse effects and that is perfectly fine. My opinion on this is, anyone that has tinnitus shouldn't listen to any type of audio through headphones even at low level.

It saddens to say, if a person doesn't heed the warning signs their auditory system and tinnitus is telling them, then they will eventually feel because tinnitus is very unforgiving. It is fine when some people are telling others what they want to hear: "listen to music through headphones because life is for living". "Go to the club as often as possible you're safe with earplugs. If your tinnitus increases you will be the one that will be in the suffering.

I have read many posts in tinnitus talk, where people had habituated and the tinnitus is low. They returned to listening to music through headphones and clubbing during the week and weekends. Some are now regretting this because their tinnitus has increased and they are in distress. Just because a person habituates doesn't mean they can forget everything and carry on in some instances recklessly. You can of course do this but my advice is to do things in moderation and not to excess, because the end result is often returning to ENT for help and visiting tinnitus forums because you are unable to cope.

https://www.tinnitustalk.com/threads/new-to-tinnitus-what-to-do.12558/

https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/

https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/

https://www.tinnitustalk.com/threads/is-positivity-important.23150/

https://www.tinnitustalk.com/threads/tinnitus-and-the-negative-mindset.23705/

https://www.tinnitustalk.com/threads/the-habituation-process.20767/

https://www.tinnitustalk.com/threads/a-change-of-lifestyle.20643/
 
Hi @Ariadne

First of all, so sorry you have to suffer in this way.
We all deserve much better than this.
However, having accepted that we have Tinnitus, we need to look for ways to ease the burden.

Distraction is quite rightly recommended as when we are mentally active, as in reading, writing, conversing, etc.....we will usually notice it much less.

A twenty minute meditation each morning helps me to keep calm.
It starts with willing exposure to Tinnitus.
I lay in a nice warm bath, hear my Tinnitus of course, but very soon drift off into a state of comfortable relaxation, where 'T' doesn't bother me.
Dr Hubbard's Story is worth looking up in this respect.
However you approach this 'thing',
Very best wishes,
Dave x
Jazzer
 
Thank you all for the warm welcomes, advice and well wishes. xxxx


@Bill Bauer

I've never heard of those and hadn't considered headphones. I look into them, it can be a pain searching around for earplugs then having to put them in when the noise is still bothering you.

@Michael Leigh

Your advice has been sobering but I appreciate it. I've decided to give headphones a miss, I had swapped from earphones to over the head headphones when the tinnitus first came on but even at the low volumes I've been listening, I always notice a temporary increase in t after using them.

I've given them to my sister and I'll just be using my cd and record player from now on.

@Jazzer

I've seen quite a few people recommend listening to the tinnitus willingly for a short period each day. It's not something I've tried, I think im almost worried to, I have a bit of an irrational fear of it.

Meditation has helped me in the past but I stopped completely when I got tinnitus because it was all I could hear and I wanted to avoid it. You've made me consider picking up the habit up again.

I completely agree with you about distraction, both reading and writing have saved me. Just getting out and going for a walk down the road has also been helpful when it is really bad.

A big part of the process has been simply accepting that this has happened, that I have this thing now and I have to start building my life from there. I can't fool myself into thinking it will disappear nor can I give up on my life because it won't. I just have to accept it as a part of my life.
 
I've never heard of those
You could get either X5A or X4A
Peltor 5 provide more protection. The downside is that they look ridiculous (too wide, and can't be confused with headphones).
https://www.tinnitustalk.com/threads/what-is-considered-as-harmful-noise.28545/page-2#post-330549

https://www.tinnitustalk.com/thread...x4a-muffs-chartreuse-color.28294/#post-326595

X4A are narrower, could be confused with headphones, but they provide less protection.

I own both. I was surprised to discover that X5A are more comfortable than X4A. This means that it is easier to spend several hours wearing X5A compared to wearing X4A.
Both X4A cups are as wide as ONE X5A cup. So X5A muffs are twice as wide.
 
Your advice has been sobering but I appreciate it. I've decided to give headphones a miss, I had swapped from earphones to over the head headphones when the tinnitus first came on but even at the low volumes I've been listening, I always notice a temporary increase in t after using them.

@Ariadne

I am pleased that you have decided not to use headphones and please stick to this. If you are also careful of loud sounds should you go out clubbing or to a concert, I am confident that you will have many years of trouble free tinnitus. By this I mean you will habituate and your brain will learn to completely ignore it as if it were not there. Return to headphone use or frequent places where loud music is played even with using good earplugs, and you risk your tinnitus increasing and remaining permanent and I wouldn't wish that on anyone.

Take care and all the best
Michael
 
A big part of the process has been simply accepting that this has happened, that I have this thing now and I have to start building my life from there. I can't fool myself into thinking it will disappear nor can I give up on my life because it won't. I just have to accept it as a part of my life.

So true Adiadne - accepting this thing is one of the saddest things we will ever have to do.
I have been a pro jazz trombonist all my life, and this has robbed me of my passion, skill, career, income, and my silence.
It will not take my life!

The benefit of meditating with Tinnitus is this:
We attempt to distract ourselves all day long, with varying degrees of success.
When I start my meditation I need only listen to my 'T' for perhaps one minute, until deep relaxation sets in, and I begin to drift away.
Okay - you may still hear your 'T' but you are teaching both your mind and body that deep relaxation is not only possible, but achievable.
At different times of the day, when it really bothers you, you can remind yourself that

"my relaxation, my peace, runs deeper."

For me, the prerequisite is a nice warm bath.
The magical catalyst is allowing your tummy to breath for you.
If you can master involuntary breathing you are pretty well home and dry.

I can give you my method if you wish, but I don't want to bore the pants off you.....

love
Dave x
Jazzer

(Ooh - that naughty man just mentioned the word 'pants!' - we must never lose our sense of humour.)
 
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