Help! Tinnitus + Pressure and Pain

[MattL]

@attheedgeofscience

Are you sure you're not some medical nerd?
Maybe you were in your previous life!
If you know all this medical stuff I can imagine how brilliant you must be in a field of finances.
Your intellect is simply impressive!

Sorry to go off topic but I couldn't resist!

He is pure gold isn't he? I love reading his posts!

 

[Karen]

Hi, Mike,

No, I don't think it's uncommon for those of us with tinnitus to have several tones, plus buzzing. There are so many things that could have caused your tinnitus, but since you've had neck problems, that is a good place to start looking for a cause.

Best wishes on your search, and I hope you find some answers!!!

 

[jeannie]

Just1morething. where is your tumor located at? mine is c5 I just ask my reg. gp for a bone scan. he thinks im nuts. but hes not the one hurting and has buzzing... I just found out about 2 weeks ago. do you ache or hurt? do you think it has anything to do with tinnitus?

 

[just1morething]

Just1morething. where is your tumor located at? mine is c5 I just ask my reg. gp for a bone scan. he thinks im nuts. but hes not the one hurting and has buzzing... I just found out about 2 weeks ago. do you ache or hurt? do you think it has anything to do with tinnitus?

Hi @jeannie,

where is your tumor located at? mine is c5

I would have to look at my MRI report and/or my CD. I'm not exactly sure it is a tumor, but a cluster of blood vessels. I don't think a hemangioma is serious though. I think mine is right next to my spinal cord.

he thinks im nuts. but hes not the one hurting and has buzzing...

You are not nuts, but there is a fair chance he is! (I'm of course kidding as I don't know your Dr.) I too am hurting & buzzing and miserable. My lower back nerves (sciatic I think) are causing my feet to burn and some numb feeling, so I would think your neck soreness could be the cause of your buzzing. I am looking into that currently and will update you as soon as I find out more. I'm trying to see a neurosurgeon and another orthopaedic Dr.--the process can be rather slow though. It could also be muscle related, just not sure.

 

[jeannie]

ok thanks. I have been to physical therapy 4 times and currently going... so I have gotten nowhere, also told I have fibromyalgia.. im hoping all this is muscle related.. I just don't know anymore.... yea im crazy after having tionnitus and neck pain almost 2 yearslol yes please keep me updated and if I find anything out I will let you know as well.

 

[just1morething]

and if I find anything out I will let you know as well.

Thanks!

 

[Street Spirit]

Hi Mike, I just wanted to comment that at the same time my H and T started so did my facial nerve pain. I was diagnosed with TN, however it's mild compared to most. Also before I had that issue, I have had TMJD for 10 years and in the last 2 years alot of neck pain and my occipital region is always tender and painful. I am just seeing Neurologist now after a year of suffering.

I do believe that all this is connected to our nerve conditions. I have used clonazepam with success for my nerve pain but sadly the T and H carry on...I do wonder if they will ever calm down and it's a little daunting to know who to go to for help without risk of more pain or worsening of ears.

I am thinking PT for my TMJD will be next stop.

 

[Mike34]

Hi Mike, I just wanted to comment that at the same time my H and T started so did my facial nerve pain. I was diagnosed with TN, however it's mild compared to most. Also before I had that issue, I have had TMJD for 10 years and in the last 2 years alot of neck pain and my occipital region is always tender and painful. I am just seeing Neurologist now after a year of suffering.

I do believe that all this is connected to our nerve conditions. I have used clonazepam with success for my nerve pain but sadly the T and H carry on...I do wonder if they will ever calm down and it's a little daunting to know who to go to for help without risk of more pain or worsening of ears.

I am thinking PT for my TMJD will be next stop.

Wow. Yeah we have very similar issues. I'd love to connect over FB so we could possibly chat about treatments and doctors.

 

[attheedgeofscience]

[I cannot really comment anymore than I have done; I will get back to you on the regenerative medicine aspect; there is always the option of doing stem cells intravenously - which will have "some effect", but for maximum benefit, the stem cells need to be delivered at the site - and I am not sure that they do this for degenerative disc disease of the spine (they would if it was the knee, for example). I will get back to you with an update...]

For those interested in diseases of the spine and its treatment using stem cells, here is a slightly edited response from a stem cell clinic that I have contacted. The response is, as mentioned, slightly edited in order to not disclose the name of the clinic as well as not to not disclose the pricing involved.

I do not have any opinion on how effective stem cells are in comparison to traditional surgery techniques (as applied to degenerative disc disease of the spine). So the following information is purely for informational purposes (as I have an interest in regenerative medicine). I am not a doctor; I am not affiliated with the clinic in question. I simply have an interest in stem cells and advances in regenerative medicine. No more, no less.

Regarding your question for ... with degenerative disc disease, our neuro surgeon is treating this type of patients using the Purified Cord Derived Mesenchymal Stem Cells (MSC) + CD 34. Because it is a problem of the spine, it will be treated and taken care of by a neuro surgeon.

If the patient does not want to go under major spine surgery, he/she can opt to get the stem cell injection therapy per the procedure below.

The simple IV stem cell therapy is not sufficient to take care of this kind of spine problem. So, the treatment procedure will be IV infusion + the direct IVD (Inter-vertebral-disc) injection. The injection procedure is done under fluoroscopic guide technique, injecting the stem cells into the IVD (Inter-vertebral-disc) area.
The neuro surgeon also will have to use the special steerable injection catheter for these kind of spine problem.

...

We will recommend treatment program as per below:

The treatment program will be 7-10 days treatment program.

1. 30 million of Cord Derived Stem Cells MSC + CD34
2. Route of injection will be
a) IV injections x 4 injections
b) Intra Vertebra Disc (IVD) injection of stem cells under the guide of fluoroscope and using the steerable injection catheter x 1 injection
3. IV Medical Laser and IV Oxygen Therapy daily for 7- 10 days
4. Enzyme therapy x during the course of treatment in the clinic plus continue treatment at home for another 3 months (depending on the dr's order after consultation and treatment)
The enzyme therapy will start in the clinic and then we will give it to the patient to get the injection at home.
The enzyme therapy should be given subcutaneous injection 1 hour after meals, once in the morning and once in the evening.

The total cost for the Stem Cell Therapy will be at USD --,---
Enzyme treatment therapy for 3 months at USD -,--- (USD - ,--- /month).

...

My own interpretation of the response above is that stem cell treatments can be opted for if a less invasive option is preferred (as opposed to traditional spinal surgery - which probably comes with some amount of risk). The stem cell treatment on the other hand - and in my non-medical opinon - is probably close to risk free...

 

[jeannie]

has anyone tried glucosamine sulfate for pain? if so did it make tinnitus worse?

 

[Snow]

For Mike34 Weird crawly feeling in your ears may be fluid flowing behind them. I am having too many problems to get into here, but that was one of them. I did not realize what is was until it quit on the right, pressure let up in ear, hearing got better AND salty taste on right side of mouth went away. I was tested for CSF leak using wrong test for me they put pledgets in my nose to catch the fluid which was not there. I told them that - but you know how it is - oh this will work! The salty taste is coming from my e tube and constantly and I can get it to slow down and so will the tinnitus. In fact if I can stay very still in the correct position the T goes away and I don't have the crawly feeling, which by now I realize is some sort fluid coming through eustachian tube. Do you still have it? Don't be surprised if you are not believed. Mine was salty but test was flawed as the pledgets to catch it would have to have been in eustachian tube. No way to do that. I have the DDD disease also and would like to know if anyone had a leak coming from cervical spine.

 

[Snow]

Mike34 Forgot to mention UPMC in Pittsburgh, Pa., can help you with the compressed nerve stuff. Call them you can get the number off the net.

 

[Mike34]

Mike34 Forgot to mention UPMC in Pittsburgh, Pa., can help you with the compressed nerve stuff. Call them you can get the number off the net.

Thanks. Yeah, mine isn't fluid I don't think. Things have gotten gradually better. The tinnitus is louder, but I'm dealing with it much better. I still have the crawly feelings and a humming sound/feeling, but those I'm working on dealing with as well. I can basically say I've "moved on" and am concentrating on enjoying life again, thankfully.