Hi I'm New Here, Had Tinnitus for 4 Years, Recently It Got Worse. I Can't Live with This Any More.

Gustav

Member
Author
Dec 2, 2017
4
Tinnitus Since
06/2013
Cause of Tinnitus
Acoustic trauma
Hi,

I've been browsing this forum for the past week, reading many threads and I've went from hopeful to out of hope by reading some of your stories. I've decided I want to be a part of this community now that my T has completely taken over my life.


So my tinnitus started when I was 19 years old (2013). We had exams in school and loud music was being played all day and all night until I went home. Woke up the next day without T but the day after that I got a bad cold and the ringing started in my left ear. I've had this ringing in my left ear since then. Sort of habituated after two years or so but was still afraid of reading and had trouble concentrating. However the tinnitus did not affect my mood that often, just felt a bit sad that I was thinking about the T so many times per day. Took maybe two years before I could sleep without having the television on with sound. In the beginning the tinnitus was way worse when waking up from sleep, but that seems to have faded over the years. During all of this I've had more or less depressions. This autumn the depression has gotten worse and even anxiety has followed. Have been able to sleep but I got reminded of the T way to often when trying to listen to audiobooks etc which was very heartbreaking. Also I was put on antibiotics for 10 days, for what seemed like a borrelia mark on my leg, don't know if that could have impacted my T.

Last weekend, I was at a loud venue. Was bringing ear plugs but I made the mistake of not plugging in the sound lowering plastic part of the ear plug. I realised the mistake when the night was almost over, that my ears hadn't been protected as I thought they were being. The music wasn't hurting though, but when we got out of the venue I noticed my hearing was slightly lowered. We went home, I had several ringing sounds in my ears the following morning although I didn't panic. Depressed as I am, I drank alcohol with my friend the next day, postponing the anxiety for the sunday. I think I did some self injury as I thought, "if my tinnitus gets bad now, I will kill myself". During the night I noticed some weird popping inside my head from the ear to the jaw when I was chewing for a few seconds, it felt like it was a string connected from my ear to my jaw (if someone knows what that could be).

When I get out of bed on sunday, the first thing I notice is that my right ear feels blocked and full. Strangely enough, I cleaned out my ear at the GP the week before so I know it can't be wax. And as I walk in my apartment I can hear my footsteps in my right ear. Night comes and now there is a new kind of tinnitus in my right ear, a very low frequency humming. It feels like my whole head is shaking and there is no way I can sleep. I panick. The next day I go to the GP, she's having a look. No infection, just told me to wait a week and that I was scared. They made a hearing test with beeping sounds and my hearing seemed normal. Though, I felt almost deaf in the right ear compared to before. Obviously that is not the case but the hearing feels worse in the right ear, maybe because of the blockage. I've tried to equalize the ear but it does not seem to work.

So here I am one week later. This has been the worst week of my life and I am afraid I'm going to have to live with this for the rest of my life. The blockage in the ear is still there. The ear is 'wooshing' when I jump up and down and it feels like something "physical" is in the ear. Can it be just the tinnitus that is making that sensation? It's worse when I lie down I feel like. It feels like I am hearing the vibration from something in the ear, that makes the low sound. When lying on the ear I can hear my heartbeat very clearly and sometimes I hear popping from inside the ear.

I know I have to get this checked with an ENT. I am not expecting a diagnosis from you guys but I just had to write all this down, in case someone can make me less stressed out. I am trying to prepare for the worst, but this won't be easy to deal with.

And sorry for the messy structure of the text.

/Gustav
 
You were at a loud venue last weekend and then drank tons of liquor on top of that. A loud venue alone, could bother your ears and give you that full ear sensation. You drank liquor on top of that, so it can possibly take longer to get better. I have that full ear feeling almost all the time, it happens. Tinnitus makes our ears sensitive and having fullness in the ears, happens to tons of people.

It's been barely a week, so try to remain calm. Loud sounds can bother our tinnitus and drinking liquor adds to the problem, try to remain calm and see how you feel in a couple of days. It seems scary right now, but it give it sometime and see how you feel...
 
Hey @Gustav ,

Your should read my recent post I just added. It seems like we are in a quite similar situation, the difference is that I'm just a few weeks ahead of you in my process I guess. But our "Symphoms" seems to be quite similar.

Just like me it seems like you have a lot of factors that add up to the ear problems.
Tinnitus, muffled feeling, cracking in ears.

Hmm i don't really know what to say, but I can tell you this, even if I still feel soooo bad about my situation and it feels like my life is destroyed forever I somehow feel better now 5 weeks after then what I did the first week or two.

At the beginning I couldn't control myself at all, almost. So I totally feel you when you says its been the worst week of your life.

/Martin
 
Hey, Gustav.

I'm a veteran of loud music, and I can tell you: take a deep breath. Breathe.

Two things:

One, take steps not to aggravate the damage anymore. Less alcohol is good, and skipping the loud events is really, really smart at this stage. (I swear, they make these things too loud now anyway.)

Two, living with T is.... let's face it.... difficult. It is not, however, impossible, and since there's no cure it does beat the alternative ("I can't live with this") by a wide margin. I bet every person with T has woken up and started crying: another day with this horrible disease. Some, like me, got it through foolish choices; some through bad genetic luck. Myself, I've resolved as much as I can to let it make me tougher, more resilient, more determined to make every moment count. It makes me angry, sad, irritable, hateful, and sometimes really hilarious, warm, true-hearted, and loyal. It's a new player on the pilgrimage, and it has things to say.

But you're in a new tribe: a tribe of people who can and must find a way to have a meaningful life in spite of a weakness, who understand how hard it is. One thing you have to remember is, you're definitely not alone in this thing. Today I was listening to the sound of rain on the roof and just resolving to concentrate on it in spite of a raging ringing in my ears. It was rather pleasant, like a soft guitar you can hear at a loud party.

Get the best professional help you can afford, and if they can help you, nobody will be happier than people living with T. If not, we'll understand: not one of us doesn't feel occasional despair. But that's just the trough of the wave. There's more. Lots more. Hang in there, man.
 
During the week, the pressure in my right ear is less of an issue. It does not feel as blocked anymore but still blocked after 10 days now. I still hear a very low rumbling noise in the ear, it doesn't feel like regular tinnitus because it really feels like something is moving in the ear, or there is some wrong pressure etc. When I jump the ear swooshes. I have used nasal sprays for the last few days and done the valsalva manouvre every hour. Yesterday I managed to pop the ear and it swooshed like a lot of wind was blowing out of the ear. My symptoms felt better but yesterday night my ear started feeling more blocked again and the rumbling low sensation was still present. Couldn't think of anything else than it last night when watching TV with my parents so I went to sleep and then stayed in bed for 12 hours. I'm afraid of facing the day at this point. I am incapable of doing anything. Just waiting for an appointment with an ENT only to hear that there most likely is nothing they can do. Trying to stay positive though..
 
During the week, the pressure in my right ear is less of an issue. It does not feel as blocked anymore but still blocked after 10 days now....I'm afraid of facing the day at this point. I am incapable of doing anything. Just waiting for an appointment with an ENT only to hear that there most likely is nothing they can do. Trying to stay positive though..
Hold onto this thought:

It got better, even if only marginally, on its own.

It can do that. This isn't like falling off a cliff with only one direction. Even if the ENT (hell, they're only human) says there's nothing s/he can do, it still got better on its own because it wanted to.

I'm not saying it will; I don't advocate silly optimism. But it's worth remembering that it came on its own, and it can leave on its own.
 
I'm so sorry, Gustav. I fully understand the panic and depression of those thoughts - "Maybe I'm stuck with this for the rest of my life!" It's horrible.

I don't have a lot of advice, mainly sympathy. But I do highly recommend the Lectrofan as a noise masker. You can get a larger plug-in version and a smaller ("micro") portable version which you can re-charge via USB. Both are available on Amazon and this weekend they have a 20%-off coupon for the micro (which makes it less than $30).

I have the plug-in by my bed so I can sleep at night and two of the portables which I use at work and to carry around the house. Like you, otherwise all I want to do is stay in bed but that's about as depressing as the T so I'm trying to find ways to stay active. Masking the sound helps me a lot. Perhaps it could help you.

Good luck.
 

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