MemberWhen severe Tinnitus strikes we are devastated.
Nobody on here has escaped that devastation.
Nobody simply breezes through the onset of severe Tinnitus.
One of the most devestating things in the entire spectrum of human existence, for sure.
That sounds melodramatic doesn't it, but you all know the truth of it.
I joined Tinnitus Talk in 2014/15 but could not make sense of the complexity of this site then.
Everything I tried to post was a mess.
Ended up in the wrong place, or I got something else wrong
......it was always a cock up. ('scuse me.)
(Should there be a tutorial to help newbies navigate this site properly?
We are not all natural wiz-kid technos!)
But I had to come back, and try again,
a year later, in desperation because I needed knowledgeable support from people who understood.
I tried again, and with the help of a couple of very patient members, @Philippe79
and @Kolisar, I managed to get started.
I already knew a huge amount about Tinnitus, of course, Tinnitus owners are the only experts on Tinnitus, are they not, and
I am a professor of Tinni-bloody-tus!
Anybody without Tinnitus is a
Tinnitus Thicko' of course.
I award ignoramuses 'letters after their name.'
F.F.F.A.
They know precisely
FOUR FIFTHS OF F**K ALL.
The relief of simply talking to people that recognised you, supported you, gave you a hug, or a friendly 'heart,'
that didn't feed you all sorts of irrelevant ignorant crap, about "oh yes, I get some of that - I just ignore it - that's what you need to do."
I made some really nice friends, encountered some quite angry young men - don't blame them by the way - Tinnitus is a 'crock o' SHIT' for everybody, but particularly for younger people who will have to cope with it that much longer.
I recently checked my T volume against the chart on the Tinnitus Loudness Scale, and would put mine at 9, for volume, as it is totally unmaskable, and I hear it permanently in all conceivable acoustic scenarios.
However, I am not a typical 9 because I do not now despair.
The chart needs to be separated into
Volume - and emotional response.
Knowing my volume was very high, I scoured the TT pages hoping to find a member who would admit to the same degree of severity as myself.
I needed somebody to give me some hope that survival for me was actually a possibility.
I came across somebody called fishbone.
Now I don't want to embarrass him, yet again, and I know he's not the slightest bit interested in accolades, but I have to mention that what he said was 'manna from heaven.'
(.....hang on - I'm an agnostic....!)
He said:
"I can stand next to an eight lane highway, and still hear my Tinnitus over the top.
However loud your Tinnitus is, you can still habituate and lead a constructive life.
You can do it!"
WOW - That was the hope I was looking for!
Thank God! (Oops.)
I had just been given permission to go on and to get better.
We must keep giving each other HOPE.
"The most crucial aspect of this site is that we give each other hope. IMHO."
So now:
I take no meds.
I take no sleeping tablets.
I still meditate.
I can put myself 'right out' in seconds.
I have a permanently soft mouth,
a soft jaw and a soft tummy.
I live in loud noise.
I do not despair.
(I wrote all the above as an aid to those with insomnia - by the time you're half way through it you'll be asleep - and punching the zeds out......zzzzzzZZZZZ - snort - snort - ZZZZZ)
Jazzer
Dave xx
Nobody on here has escaped that devastation.
Nobody simply breezes through the onset of severe Tinnitus.
One of the most devestating things in the entire spectrum of human existence, for sure.
That sounds melodramatic doesn't it, but you all know the truth of it.
I joined Tinnitus Talk in 2014/15 but could not make sense of the complexity of this site then.
Everything I tried to post was a mess.
Ended up in the wrong place, or I got something else wrong
......it was always a cock up. ('scuse me.)
(Should there be a tutorial to help newbies navigate this site properly?
We are not all natural wiz-kid technos!)
But I had to come back, and try again,
a year later, in desperation because I needed knowledgeable support from people who understood.
I tried again, and with the help of a couple of very patient members, @Philippe79
and @Kolisar, I managed to get started.
I already knew a huge amount about Tinnitus, of course, Tinnitus owners are the only experts on Tinnitus, are they not, and
I am a professor of Tinni-bloody-tus!
Anybody without Tinnitus is a
Tinnitus Thicko' of course.
I award ignoramuses 'letters after their name.'
F.F.F.A.
They know precisely
FOUR FIFTHS OF F**K ALL.
The relief of simply talking to people that recognised you, supported you, gave you a hug, or a friendly 'heart,'
that didn't feed you all sorts of irrelevant ignorant crap, about "oh yes, I get some of that - I just ignore it - that's what you need to do."
I made some really nice friends, encountered some quite angry young men - don't blame them by the way - Tinnitus is a 'crock o' SHIT' for everybody, but particularly for younger people who will have to cope with it that much longer.
I recently checked my T volume against the chart on the Tinnitus Loudness Scale, and would put mine at 9, for volume, as it is totally unmaskable, and I hear it permanently in all conceivable acoustic scenarios.
However, I am not a typical 9 because I do not now despair.
The chart needs to be separated into
Volume - and emotional response.
Knowing my volume was very high, I scoured the TT pages hoping to find a member who would admit to the same degree of severity as myself.
I needed somebody to give me some hope that survival for me was actually a possibility.
I came across somebody called fishbone.
Now I don't want to embarrass him, yet again, and I know he's not the slightest bit interested in accolades, but I have to mention that what he said was 'manna from heaven.'
(.....hang on - I'm an agnostic....!)
He said:
"I can stand next to an eight lane highway, and still hear my Tinnitus over the top.
However loud your Tinnitus is, you can still habituate and lead a constructive life.
You can do it!"
WOW - That was the hope I was looking for!
Thank God! (Oops.)
I had just been given permission to go on and to get better.
We must keep giving each other HOPE.
"The most crucial aspect of this site is that we give each other hope. IMHO."
So now:
I take no meds.
I take no sleeping tablets.
I still meditate.
I can put myself 'right out' in seconds.
I have a permanently soft mouth,
a soft jaw and a soft tummy.
I live in loud noise.
I do not despair.
(I wrote all the above as an aid to those with insomnia - by the time you're half way through it you'll be asleep - and punching the zeds out......zzzzzzZZZZZ - snort - snort - ZZZZZ)
Jazzer
Dave xx
