How Far Will You Go to Get Rid of Tinnitus?

[threefirefour]

WRONG! That might be what your definition of it is, but i sure as hell have not given up on my life at all. Neither have many of the good folks on this wonderful site. It takes a lot of courage and heart to live with tinnitus and many including myself live productive lives with tinnitus. Sure, it can be a little challenging, but I still live my life and many folks on here do it as well.

Giving up is never an option for me......NEVER!

Didn't you say you had it for 30 years? You gave up then you just don't remember.

 

[Paulmanlike]

And they will fail I'm sure. I wish it weren't true but that's the nature of the beast. And even if they do succeed then it just cures hearing loss; not tinnitus. Tinnitus is sparked by hearing loss but getting rid of it won't get rid of tinnitus. Only thing I think could maybe work is RL-81, and that's intended for epilepsy.

As for habituation it's just code for giving up. I'm not going to pretend it's an actual thing and not just a meme invented by (((Jastreboff))) to sell a scam that happens naturally. We all give up when there is no winning.

I suppose time will tell if they're successful in treating hair cell regenerations if it will have an effect on tinnitus. How will the brain react to an increased input from new hearing cells? In the first place it is speculated that the brain turns up the volume to compensate for the lost input, so maybe the brain will turn down the volume from an increased input?

RL-81 looks interesting, let's hope it's more effective than Trobalt without turning people blue and giving them milky man tits.

Perhaps giving up is one way to alleviate the fear and anxiety that accompanies tinnitus, leading to habituation - the next best thing to a cure.

 

[fishbone]

Didn't you say you had it for 30 years? You gave up then you just don't remember.

I have had it for 30 years and never gave up. and will never give up. Your mentality and mine are very different, speak for yourself........

If you have given up, then that's your thing, don't label and speak for the masses.....

 

[threefirefour]

I have had it for 30 years and never gave up. and will never give up. Your mentality and mine are very different, speak for yourself........

If you have given up, then that's your thing, don't label and speak for the masses.....

Our mentalities are different. You're optimistic, and I'm right. Habituation is just giving up. If we didn't fall for the habituation meme there's a good chance we would be much farther along in tinnitus research.

 

[threefirefour]

I suppose time will tell if they're successful in treating hair cell regenerations if it will have an effect on tinnitus. How will the brain react to an increased input from new hearing cells? In the first place it is speculated that the brain turns up the volume to compensate for the lost input, so maybe the brain will turn down the volume from an increased input?

RL-81 looks interesting, let's hope it's more effective than Trobalt without turning people blue and giving them milky man tits.

Perhaps giving up is one way to alleviate the fear and anxiety that accompanies tinnitus, leading to habituation - the next best thing to a cure.

I absolutely hate the concept of habituation and how we fell for it; but I agree with you on RL-81. I think it will definitely help with tinnitus. Here's hoping.

 

[threefirefour]

Are you Amber?

Sorry You've got the wrong chap squire . Who's amber? Another likeminded user or someone who left?

 

[eldudebro]

Habituation is just giving up.

Habituation isn't perfect. It's not a cure. When I first encountered tinnitus I had the attitude that nothing less than total removal of the noise in my head was acceptable to me. Turns out three years on that habituation is perfectly acceptable.

To say "Habituation" is just giving up, sorry I just don't understand your reasoning for that. How is getting your quality of life back giving up? Giving up is letting this condition consume you and wrecking your life. The majority of people with tinnitus habituate. I am not diminishing those that don't, I know tinnitus is not a binary condition and some people experience it to a paralysing degree.

Habituation is all we have. Any "cure" is years away.

 

[threefirefour]

Habituation isn't perfect. It's not a cure. When I first encountered tinnitus I had the attitude that nothing less than total removal of the noise in my head was acceptable to me. Turns out three years on that habituation is perfectly acceptable.

To say "Habituation" is just giving up, sorry I just don't understand your reasoning for that. How is getting your quality of life back giving up? Giving up is letting this condition consume you and wrecking your life. The majority of people with tinnitus habituate. I am not diminishing those that don't, I know tinnitus is not a binary condition and some people experience it to a paralysing degree.

Habituation is all we have. Any "cure" is years away.

You know what? Habituation is all we have because we settle for it. People with epilepsy actually complain about their epilepsy, and we just deal with our bad treatments. Result: epilepsy has a ton of medicines, and RL-81, the best shot for treating tinnitus, is exclusively for epilepsy and *might* help with tinnitus. We're just riding on its curtails. Habituation is actually worse than giving up, because it's got people with tinnitus essentially telling eachother to give up. Refer to my quote about enemies and traitors :^)

 

[eldudebro]

You know what? Habituation is all we have because we settle for it. People with epilepsy actually complain about their epilepsy, and we just deal with our bad treatments. Result: epilepsy has a ton of medicines, and RL-81, the best shot for treating tinnitus, is exclusively for epilepsy and *might* help with tinnitus. We're just riding on its curtails. Habituation is actually worse than giving up, because it's got people with tinnitus essentially telling eachother to give up. Refer to my quote about enemies and traitors :^)

Sure, tinnitus research is vastly under-funded and as a whole there is a lack of general awareness of it. However I think comparing tinnitus and epilepsy is a false equivalence. Tinnitus is subjective. Epilepsy has some very real physical characteristics. It's always been the case that it's the invisible conditions are given less importance. Sad but true.

No one who is habituated is telling anyone to give up. Plenty of people habituated with the condition advocate more awareness of it with the goal of expanding research to help those like yourself who are suffering. I'd certainly never tell anyone with tinnitus to "Give up".

 

[threefirefour]

Sure, tinnitus research is vastly under-funded and as a whole there is a lack of general awareness of it. However I think comparing tinnitus and epilepsy is a false equivalence. Tinnitus is subjective. Epilepsy has some very real physical characteristics. It's always been the case that it's the invisible conditions are given less importance. Sad but true.

No one who is habituated is telling anyone to give up. Plenty of people habituated with the condition advocate more awareness of it with the goal of expanding research to help those like yourself who are suffering. I'd certainly never tell anyone with tinnitus to "Give up".

You just told me that habituation is best. Might as well have told me to give up. I don't see the false equivelancy. Their both real brain conditions. Maybe it's the fact they convulse but they're suffering more than the people watching. And at least they have it in bouts. Tinnitus is always their. I would gladly trade for epilepsy.

 

[eldudebro]

You just told me that habituation is best. Might as well have told me to give up. I don't see the false equivelancy. Their both real brain conditions. Maybe it's the fact they convulse but they're suffering more than the people watching. And at least they have it in bouts. Tinnitus is always their. I would gladly trade for epilepsy.

Indulge me for a second. If you can't accept habituation, then what are you aiming for?

They are both brain conditions, you are correct. However as I said, subjective conditions have always been seen as a less urgent

When I was in a bad way early in my tinnitus days I would gladly have traded both my legs to be free of it. I remember my thinking was so distorted I even entertained the idea that something terminal like cancer would be welcome, at least it would finish me off without having to do it myself. The tone of your posts remind me a lot of how I was back then. Your rational thinking is distorted. I emphasise with you, I've been there.

 

[threefirefour]

Indulge me for a second. If you can't accept habituation, then what are you aiming for?

They are both brain conditions, you are correct. However as I said, subjective conditions have always been seen as a less urgent

When I was in a bad way early in my tinnitus days I would gladly have traded both my legs to be free of it. I remember my thinking was so distorted I even entertained the idea that something terminal like cancer would be welcome, at least it would finish me off without having to do it myself. The tone of your posts remind me a lot of how I was back then. Your rational thinking is distorted. I emphasise with you, I've been there.

You will find that I am extremely rational. First you think I'm just edgy, which is partly true, then you will think I'm right a lot but still wrong a lot. Eventually you will realize that I'm very spot on.

And I've had tinnitus for a year and a half. It's not a phase.

 

[eldudebro]

You will find that I am extremely rational. First you think I'm just edgy, which is partly true, then you will think I'm right a lot but still wrong a lot. Eventually you will realize that I'm very spot on.

And I've had tinnitus for a year and a half. It's not a phase.

You didn't answer my question.

If you don't believe habituation is achievable. What is your course of action?

 

[threefirefour]

You didn't answer my question.

If you don't believe habituation is achievable. What is your course of action?

I didn't answer it because I thought it was already answered. If giving up isn't an option, then fighting for a cure is. That's what I hate about the habituation half of the tinnitus community, They're in the way. The way we will find a treatment fastest is if we work towards something together. We fell for the habituation meme once, and look where it got us; 2017, where we have supercomputers in our pocket, there's eyedrops that remove cataracts, and self driving cars and civilian space travel are around the corner, yet we don't even have a semblance of a cure for tinnitus. Why? Because we didn't do anything for it, and until we actually do; that won't change.

If you keep following the road; you will end up where it leads.

 

[eldudebro]

I didn't answer it because I thought it was already answered. If giving up isn't an option, then fighting for a cure is. That's what I hate about the habituation half of the tinnitus community, They're in the way. The way we will find a treatment fastest is if we work towards something together. We fell for the habituation meme once, and look where it got us; 2017, where we have supercomputers in our pocket, there's eyedrops that remove cataracts, and self driving cars and civilian space travel are around the corner, yet we don't even have a semblance of a cure for tinnitus. Why? Because we didn't do anything for it, and until we actually do; that won't change.

If you keep following the road; you will end up where it leads.

What are you doing to fight for a cure ?

We can't really compare self driving cars and civilian space travel to a neurological condition. Especially when we still know so little about the human brain. Cold reality is we have no "cures" for most conditions. Even heavily researched and invested ailments like dementia are still nowhere near cure. Hell we can't even cure the common cold.

It's a laughable assertion that people who are no longer bothered by their tinnitus have "given up". This forum itself is full of individuals who consider themselves habituated who dedicate their time to helping sufferers and advocating for the advancement of tinnitus research and treatments.

 

[threefirefour]

What are you doing to fight for a cure ?

We can't really compare self driving cars and civilian space travel to a neurological condition. Especially when we still know so little about the human brain. Cold reality is we have no "cures" for most conditions. Even heavily researched and invested ailments like dementia are still nowhere near cure. Hell we can't even cure the common cold.

It's a laughable assertion that people who are no longer bothered by their tinnitus have "given up". This forum itself is full of individuals who consider themselves habituated who dedicate their time to helping sufferers and advocating for the advancement of tinnitus research and treatments.

Want to know what I'm doing to find a cure? Nothing. By nothing I mean I'm also not getting in the way. The habituation crowd is in the way.

No we don't have a cure for everything, but we have treatments for most conditions. Except for tinnitus because medical professionals usually don't care.

And a lot of the """""habituated""""" lingerers are the problem. If they're telling people to habituate and not worry then They're in the way. If they're actually not getting in the way then they've got the best of both worlds. They're rare though and generally the tinnitus community has more members who are shooting themselves in the foot.

 

[eldudebro]

Want to know what I'm doing to find a cure? Nothing. By nothing I mean I'm also not getting in the way. The habituation crowd is in the way.

No we don't have a cure for everything, but we have treatments for most conditions. Except for tinnitus because medical professionals usually don't care.

And a lot of the """""habituated""""" lingerers are the problem. If they're telling people to habituate and not worry then They're in the way. If they're actually not getting in the way then they've got the best of both worlds. They're rare though and generally the tinnitus community has more members who are shooting themselves in the foot.

Whether you are doing nothing or "not getting in the way", what is the difference when the net gain is zero?

We will just have to disagree here. I hope you find some relief and better times soon.

All the best.

 

[threefirefour]

Whether you are doing nothing or "not getting in the way", what is the difference when the net gain is zero?

We will just have to disagree here. I hope you find some relief and better times soon.

All the best.

Thanks. It's not just net gain zero. The habituation crowd is costing us. They're more -1, I'm just 0. I want to get involved in trials but idk where to start.

Hope one day you begin to agree with me. Best of luck.