How Many of You Have Also Herpes Simplex Virus?

[leledany]

I guess there is some correlation between herpes and T because it is know that this virus can affect nerve fibers.
Some of a very kind support person would be so gentle to start an official sondage on this topic?

 

[leledany]

Why nonody respond? Are you sure this virus has no rule on T? Please answer the question

 

[DebInAustralia]

I have hsv1 (cold sore) long b4 i developed t

 

[vermillion]

According to my first neurologist, whom i don't trust anymore, herpes family viruses such as EBV can cause tinnitus, as a symptom of a possible brain inflammation known as hepres encephalitis. However that can be a serious condition. I am not able to get into details as i am not a doctor and i haven't researched the topic. I just know this cause i got this diagnosis from him which in my case was simply BS. Go figure...

 

[leledany]

I think herpes rarely case T But I think it could be a contributing factor! Recently doctors discover that herpes could lead to facial paralysis (when the virus affects facial nerves) that could vanish after some months.

 

[linearb]

the vast majority of adults have some form of the herpes virus. Test rates are >80%

 

[leledany]

Yes but most of them has the virus silent, my question is how many of you have somehow outburst of the disease? Example I have sometimes (once per year or less frequent) labial herpes

 

[Mikie_Mike]

HSV1 long before Tinnitus, but my ENT stated the ear infection that started all this was viral and probably one of the herpes virus. I've had chicken pox/shingles too, but got a shingles vaccine a couple of years ago. Also had EBV early in life. If I were to guess, I'd guess it was HSV1 because I do get cold sores on rare occasions still.

 

[Siri]

I do but I've had it long long before the Tinnitus.

 

[Mettafort]

I have had HSV-1 since as long as I can remember. After many many hours researching how I had "idiopathic" sensor neural hearing loss, I believe categorically that I lost it due to HSV-1, and not Menieres. It is quite easy for the virus to move down the trigeminal ganglion (where it lays dormant) and take a wrong path into the ear nerves. The nerves around the ear, especially the inner ear, are highly susceptible to inflammation.

I get at least one cold sore a month if I am lucky, often once a week. The probabilities of HSV-1 causing my hearing loss, and the result ear problems (tinnitus and hyperacusis), is very high. One specialist told me HSV-1 is more common as a source of hearing loss than anything else. Since my own research started a few months ago, I admittedly conclude the same. HSV-1 can cause herpes encephalitis - they arent a different virus, just a different classification based on location/infection site.

 

[JasonH]

I just got infected with HSV (likely hsv2) 2 months ago and am now in physical hell.

Among one of the symptoms I am getting is strong tinnitus which I've never had before. This started around 3 weeks post infection.

I can only assume that the virus is affecting a nerve that is setting this off. It has yet to subside a month later.

I have started taking Valacyclovir (500mg twice a day) 3 days ago but no change yet.

Has anyone had similar and improved?

 

[Gman]

the vast majority of adults have some form of the herpes virus. Test rates are >80%

Yes and I believe something like 30% of these are symptomatic and the rest just carriers.

It could be a contributing factors but no one knows. I read somewhere (Wikipedia I think but it's been edited out) menieres might somehow be influenced by HSV.
Anyway like most ear related things no one knows very much.

 

[linearb]

Yes and I believe something like 30% of these are symptomatic and the rest just carriers.

Sure, but either way it's living in your cranial nerve. I think there must be an element of the genetic lottery as far as who is apt to have more recurrent outbreaks, but anyone who's carrying it is likely to become symptomatic if their immune systems get compromised.

I used to get more frequent cold sores that were quite painful; now I almost never do (one in 2017) and when I do they're a shadow of what I used to get.

I'm reasonably confidant that if I returned to my lifestyle from a decade ago, I'd be right back to frequent, painful outbreaks.

 

[JasonH]

I just noticed today I am getting hit with "hyperacusis". I've never experienced it before and feel like I'm only sinking further into hell.

 

[JasonH]

Is there any way to stop this madness?

 

[Suzerman]

I've been diagnosed with Epstein Barr virus for the second time.

 

[Cheza]

I used to get more frequent cold sores that were quite painful; now I almost never do (one in 2017) and when I do they're a shadow of what I used to get.

I started getting cold sores when I was a little kid. It was awful. Probably the virus was transmitted in utero, because my mother is the only other one in the family who gets them.

When I was in my twenties, my doctor recommended lysine, which if you take it every day, will help most people to avoid outbreaks. It's a cheap supplement and good for you anyway. Avoid arginine, either supplements or foods rich in arginine.

Dynamiclear is a product that kicked my cold sores into the next universe. It was marketed for all herpes virus outbreaks. When I applied it, it felt like someone had punched me in the mouth. Really painful for a minute, but the cold sore healed much more rapidly than usual and I didn't have another outbreak for years. Even now if I do get an outbreak, it's really mild. It's sold on Amazon and I don't know if it's the same formula or not, but if it is, I recommend trying it.

 

[Tinniger]

I know labial herpes since childhood.....

A poll would be better if a correlation is assumed.....

 

[Shera]

I've had HSV-1 since I was little. Use to get really bad/painful colds and when I got sick. My mom put me on Echinacea and that stopped. I only get cold sores when I get a super bad cold or flu.

Though I only got T after an accident/injury, and it got worse when my TMD from the accident got even worse.

 

[leledany]

I am not able to make a poll in this site, if someone can it is really appreciated

 

[Aaron123]

I am not able to make a poll in this site, if someone can it is really appreciated

What do you hope to learn from a poll?

 

[leledany]

What do you hope to learn from a poll?

In order to find out If most of the people with T suffer or suffered of this virus

 

[Carolyn Goatley]

I started getting cold sores when I was a little kid. It was awful. Probably the virus was transmitted in utero, because my mother is the only other one in the family who gets them.

When I was in my twenties, my doctor recommended lysine, which if you take it every day, will help most people to avoid outbreaks. It's a cheap supplement and good for you anyway. Avoid arginine, either supplements or foods rich in arginine.

Dynamiclear is a product that kicked my cold sores into the next universe. It was marketed for all herpes virus outbreaks. When I applied it, it felt like someone had punched me in the mouth. Really painful for a minute, but the cold sore healed much more rapidly than usual and I didn't have another outbreak for years. Even now if I do get an outbreak, it's really mild. It's sold on Amazon and I don't know if it's the same formula or not, but if it is, I recommend trying it.

I started getting cold sores when I was a little kid. It was awful. Probably the virus was transmitted in utero, because my mother is the only other one in the family who gets them.

When I was in my twenties, my doctor recommended lysine, which if you take it every day, will help most people to avoid outbreaks. It's a cheap supplement and good for you anyway. Avoid arginine, either supplements or foods rich in arginine.

Dynamiclear is a product that kicked my cold sores into the next universe. It was marketed for all herpes virus outbreaks. When I applied it, it felt like someone had punched me in the mouth. Really painful for a minute, but the cold sore healed much more rapidly than usual and I didn't have another outbreak for years. Even now if I do get an outbreak, it's really mild. It's sold on Amazon and I don't know if it's the same formula or not, but if it is, I recommend trying it.

I hope you don't find this offensive but Dynamiclear is snake oil. I know a lot of people in the herpes community that tried it and it did nothing for them. I am glad to hear you don't suffer real bad though. It could just be that your immune system kicked in and is doing a good job fighting it. That can take months to years for some people.

It's extremely rare for someone to acquire HSV in utero. I have seen a lot when it comes to herpes and the only time I have seen that the baby didn't have a brain. The virus destroyed everything but the stem. The mother had contracted it while pregnant. The common way to get either type of HSV is through skin on skin contact. You can get either type anywhere on your body that way.

As for others who think HSV caused their tinnitus. I think it's possible but would most likely be rare. I'm going to have to look into it more. If the cells that cause tinnitus are the type of cells that HSV like to replicate in then it could definitely be a cause. Ocular herpes is the number one cause of infectious blindness and is mostly caused by HSV-1. Someone stated that it travels down the pathway but takes a different path and that's the usual way it causes ocular herpes. So I think it's true that it could travel to the inner ear or anywhere else on the head. In order for it to cause encephalitis it has to get into the CNS. That usually happens with the first outbreak and most people that happens to don't do well, if they make it at all. If you have never had encephalitis caused by HSV, don't worry. You probably won't. I had to add that because I don't want to scare people. HSV is stigmatized unfairly. I don't want to make it worse as I have witnessed suicides because of it.

My main reason for coming on this site was to ask if people knew of any vaccines that caused tinnitus. I'm pro-vax but had someone tell me tinnitus was a side effect and I don't believe it. I can do more research but wanted to hear from other peoples perspective. I have had tinnitus for years before contracting HSV so I know it has nothing to do with my tinnitus.

 

[Mettafort]

This past 12 months I have read over 500 papers about HSV and sudden sensor neural hearing loss (and tinnitus). My current specialist believes 100% that HSV-1 was a probable cause of my hearing loss. I purchased 4 books on virology and microbiology to see if there was anything what I read, and I myself believe 100% that the cold sore virus was the cause.

The virus goes dormant in the trigeminal ganglia nerve center. It is a hub center with three major pathways - one path goes to the mouth area, one goes to the nose and the other goes to the ear - another goes to the eye too. One of the effects of the virus is its affect on cells that get infected - a programmed cell death (apoptosis). With respect to nerve cells around the ear, I read that HSV-1 can affect the nerves that attach to the ear and when they die, cell regrowth can still happen but whether it results in a re-attachment of the nerve to where it was before isn't clear cut.

All viruses are just dumb structures of either DNA or RNA (for the most part). They get released for whatever reason, then it's about luck where the virus particles (virions) end up; mouth, eyes, ear.

I should state that I suffer from cold sores pretty badly. Lack of sleep, stress, perhaps the wrong food, and I have an outbreak. I am typically fighting the virus a lot. I was tested and I also have a missing gene that helps fight the virus. It was a matter of time I believe, before the dumb virus went down the wrong pathway.

I believe this to be true for my situation.

 

[Carolyn Goatley]

The cell death happens in epithelial cells. That's from lytic infection which is the cold sore you see when a person is having symptoms. The virus actually infect sensory neurons in the trigeminal ganlion. Once it's in a nerve, it doesn't leave or cause death to the nerve. It turns off the ability for opoptosis in the nerve. This is one way that it maitains latency. Plus a few other tricks. I'm sure you read about the LAT gene. Any of the infected neurons could have up to 50 copies of the virus. Each one could send out varions at any time to cause lytic infection and yes they can come out another pathway and go to the locations you mentioned. Some people suffer from some pretty severe neuralgia pain which is usually associated with Shingles. The same thing happens with genital herpes as well. I read about possible regrowth of neurons as well but that was from a long time ago and I don't know if that research has been replicated. Those neurons were not destroyed by HSV. They were destroyed by other means. As stated before I think it's possible that HSV is causing tinnitus in some people but it could be hard to tell how. Is it in the nerve or did a lytic infection destroy some tissue in the pathway or in the ear and it's causing bad signals? I know that inflammation around an infected neurons which is getting hit with toxins from CD3, CD4, and CD8 T cells can cause the nerves to misfire and that is what researchers think is causing the neuralgia. So it make me wonder if that could also be causing the tinnitus. I you really think HSV is causing your issues, why not try antivirals? They are pretty safe. I know people who have been on Valtrex for over 30 years and they are healthy. If that doesn't work then see a neurologist and try neurotin or some other drug for nerves. They may be hard to take. I know some people who are on that for herpetic neuralgia and it took a while to get used to. But it might be worth it if it stops or gives some relief of tinnitus. It's just a thought and may be worth discussing with your doctor. If the antivirals don't knock a dent in it, and then the neurotin doesn't knock a dent in it, then there may be another cause.

 

[Gman]

The cell death happens in epithelial cells. That's from lytic infection which is the cold sore you see when a person is having symptoms. The virus actually infect sensory neurons in the trigeminal ganlion. Once it's in a nerve, it doesn't leave or cause death to the nerve. It turns off the ability for opoptosis in the nerve. This is one way that it maitains latency. Plus a few other tricks. I'm sure you read about the LAT gene. Any of the infected neurons could have up to 50 copies of the virus. Each one could send out varions at any time to cause lytic infection and yes they can come out another pathway and go to the locations you mentioned. Some people suffer from some pretty severe neuralgia pain which is usually associated with Shingles. The same thing happens with genital herpes as well. I read about possible regrowth of neurons as well but that was from a long time ago and I don't know if that research has been replicated. Those neurons were not destroyed by HSV. They were destroyed by other means. As stated before I think it's possible that HSV is causing tinnitus in some people but it could be hard to tell how. Is it in the nerve or did a lytic infection destroy some tissue in the pathway or in the ear and it's causing bad signals? I know that inflammation around an infected neurons which is getting hit with toxins from CD3, CD4, and CD8 T cells can cause the nerves to misfire and that is what researchers think is causing the neuralgia. So it make me wonder if that could also be causing the tinnitus. I you really think HSV is causing your issues, why not try antivirals? They are pretty safe. I know people who have been on Valtrex for over 30 years and they are healthy. If that doesn't work then see a neurologist and try neurotin or some other drug for nerves. They may be hard to take. I know some people who are on that for herpetic neuralgia and it took a while to get used to. But it might be worth it if it stops or gives some relief of tinnitus. It's just a thought and may be worth discussing with your doctor. If the antivirals don't knock a dent in it, and then the neurotin doesn't knock a dent in it, then there may be another cause.

You seem to be very knowledgable. What do you think it would imply if an HSV antiviral made ones T spike badly, rather than improving it? Does it mean there's HSV in the auditory nerves? I once stupidly took Famvir for a coldsore and it triggered a bad spike, that eventually went away.

 

[Mettafort]

The cell death happens in epithelial cells. That's from lytic infection which is the cold sore you see when a person is having symptoms. The virus actually infect sensory neurons in the trigeminal ganlion. Once it's in a nerve, it doesn't leave or cause death to the nerve. It turns off the ability for opoptosis in the nerve. This is one way that it maitains latency. Plus a few other tricks. I'm sure you read about the LAT gene. Any of the infected neurons could have up to 50 copies of the virus. Each one could send out varions at any time to cause lytic infection and yes they can come out another pathway and go to the locations you mentioned. Some people suffer from some pretty severe neuralgia pain which is usually associated with Shingles. The same thing happens with genital herpes as well. I read about possible regrowth of neurons as well but that was from a long time ago and I don't know if that research has been replicated. Those neurons were not destroyed by HSV. They were destroyed by other means. As stated before I think it's possible that HSV is causing tinnitus in some people but it could be hard to tell how. Is it in the nerve or did a lytic infection destroy some tissue in the pathway or in the ear and it's causing bad signals? I know that inflammation around an infected neurons which is getting hit with toxins from CD3, CD4, and CD8 T cells can cause the nerves to misfire and that is what researchers think is causing the neuralgia. So it make me wonder if that could also be causing the tinnitus. I you really think HSV is causing your issues, why not try antivirals? They are pretty safe. I know people who have been on Valtrex for over 30 years and they are healthy. If that doesn't work then see a neurologist and try neurotin or some other drug for nerves. They may be hard to take. I know some people who are on that for herpetic neuralgia and it took a while to get used to. But it might be worth it if it stops or gives some relief of tinnitus. It's just a thought and may be worth discussing with your doctor. If the antivirals don't knock a dent in it, and then the neurotin doesn't knock a dent in it, then there may be another cause.

Hi Carolyn-

You have a very deep grasp of the science - far more than me. My point about the apoptosis is not about how the virus resides dormant in the nerve cells, but the effect of the cold sore out break itself around the ear. That is, I was stressed at work, lack of sleep, and so I had a cold sore outbreak. On this occassion the virus went down the pathway to the ear. There the infection took place, and that active process and how the virus works, contributed to the initial event of vertigo, nausea and vomiting and subsequent hearing loss. So my hearing loss was potentially a result of a cold sore outbreak.

I do not believe HSV1 or 2 has any contributing factors to my tinnitus- my Tinnitus started 7 days after i lost my hearing and has endured ever since. I believe the T is just a by product of the damage the out reak caused - much like encephalitis can do, creating irreparable damage.

I am not a doctor however. Regarding valtrex - before my incident i had asked my doctor numerous times to let me go on a low dose program, because I was constantly fighting cold sores. He refused and asked to wait another 6 months. During that wait I believe I had the mother of all cold sores which was the cause of my hearing loss. I am on 1000mg a day of valtrex now - closing the doors after the horse has bolted, but preventative at least of any further damage.

Thanks,

Mf

 

[1MW]

I have HSV1.
When I first got SSNHL the treatment besides corticosteroids was antivirals like valacyclovir.

I used valacyclovir sometimes for lip herpes and works if you take it early.

I didn't notice any effect on tinnitus.

 

[Mettafort]

Just wanted to add, if you have the grit for it, applying capsicum cream (0.05%) to a cold sore tingle will hurt like hell, but it works 8/10.

 

[Bobster59]

I've had a bad case of herpes for 35 years. 6 months before I had a sudden hearing loss in march 2017 I had a shingle show up on the left side of my face , same side as hearing loss . I doubled up on my acycolvir which got rid of the sore in a week but the nerves were sore for over a month. Here it is over one year later and I've had 4 hearing drop outs in past 3 weeks with H , dizziness and t spikes . ENT says I have meniere's. So I joined the meniere's forum. Some meniere's people have had success with anti-viral acyclovir. My ENT told me to try lipo flavanoid for my tinnitus. Well I've been doing both . I've doubled my acyclovir, though the recommended is 1600mg I'm doing 800 and also started lipo flavanoid with an extra 500mg of vit C , 400 iu of E and 1000 iu of D. My tinnitus has stopped spiking for a week now. It use to spike to 8 or 9 , 5 days out of the week since my first sudden hearing loss . I actually started to habituate because I excepted my fate. I'm now hovering at 3-4. Whatever I'm doing it's working. I will probably never drop below what I have now due to age 63 and hearing loss. But if these spikes go away I'll be much better off. Do I believe in the herpes connection for some but not all with meniere's and T too. I had noise induced T for many years but after the SHL it was awful. So something caused that. Was it herpes virus ? I think there's a good chance though I can't prove it.