I'm just chiming in here after years of absence on Tinnitus Talk to offer some positive feedback and advice.
I experienced similar issues to yours back in 2015 after an acoustic incident (gunshot). My hearing was severely affected—I couldn't stand certain loud or high-pitched noises. My tinnitus was in the 4-5/10 range, fluctuating in intensity. New tones would pop up and disappear, sometimes mimicking external sounds. I also dealt with Tonic Tensor Tympani Syndrome (TTTS) that would occur randomly or be triggered by certain sounds, including my own voice. Needless to say, I went off the deep end for a while (and who wouldn't?).
The good news is that all my symptoms faded, and I'm very confident yours will too.
From what I'm reading, you're doing all the right things: you're being cautious around noise, allowing your ears to rest, and, most importantly, you're young, which gives you a very good chance of healing.
It took about a year of non-linear progress for my tinnitus to stabilize and diminish over time (it's at a 1/10 now, and it rarely bothers me anymore). My hyperacusis took about 12-18 months to gradually improve. Now, I'm still careful around noise and wear earplugs when necessary in loud environments like the metro or on airplanes. I can enjoy acoustic concerts or live classical music occasionally, with earplugs. Depending on the type of movie and theater, I might use earplugs or not. I now produce electronic music in my home studio at reasonable volumes, with breaks, and with no problems. I sometimes listen to podcasts with good open-back earphones without issues. These are all activities I couldn't do initially, but I gradually reintroduced them into my life as I became more comfortable.
I now live a decent life that's 90-95% of what it was before. It mostly takes time to get better. In the meantime, try to reevaluate your life and find meaning in new, cool things (walking in nature, new hobbies, maybe a new career, etc.) while living healthily with good food and exercise.
Thanks for sharing your story,
@Sebastians. I've read all of your posts from the beginning, and your description of being in the wrong place at the wrong time perfectly sums up how many of us experienced the onset of tinnitus and hyperacusis.
I'm not sure if you're still active, but if you are, I would really appreciate it if you could answer some questions about your experience with TTTS (tonic tensor tympani syndrome):
You mentioned that it improved over time. If I understood correctly, the TTTS fluttering is still present for you, but due to habituation, your brain no longer interprets it as a threat, so it feels better overall. Is that correct, or has the fluttering disappeared completely?
When you said your ear flutters when you play certain tones on your guitar, I can totally relate. I've been playing the piano since childhood, and certain notes cause the spasm, while others don't. I wonder if the tones that initially caused the acoustic trauma are the ones that continue to trigger the spasm.
Also, did you experience any feelings of ear fullness or tickling sensations along with your TTTS? My TTTS tends to worsen in the evenings, causing an extreme sense of fullness and discomfort in my ears. I'm not sure if that's related to TTTS, but it makes me feel like I need to perform the Valsalva maneuver, though it doesn't provide any relief.
Occasionally, I also experience a tickling sensation in my ears during the day, but I'm not sure if that's connected to TTTS.
The only thing that helps with the fullness and TTTS is wearing earplugs 24/7. However, from everything I've read, wearing earplugs constantly is not recommended for TTTS, as the muscles need to be exposed to normal and louder sounds in order to calm down and stop reacting as if loud sounds are dangerous. In general, muscles need to be trained or desensitized to reduce spasms or pain.
Did you do anything specific to support the recovery of your TTTS symptoms, like listening to pink noise or something similar?