RunningMan
Member
- May 8, 2023
- 599
- Tinnitus Since
- HiFrq ~2000, Increased 2022, LoFrq ~2020
- Cause of Tinnitus
- Loud noise - clubs, stereos, cycles, headphones, engines,etc
My doctor didn't know anything about Quviviq. I had done my own research on it and told him about it. Some people have better results after a few weeks of taking it every day, and it seems almost everyone starts at or bumps up to 50 mg, including me, very soon. And then some people say it stops working for them after days or a couple of weeks, or that it doesn't work at all, or they complain about sleep paralysis, nausea, headache, or drop in mood.Ah okay! I'm taking it some nights. My sleep doctor said 50 mg; giving it two weeks is an adequate trial. Have you ever had a sleep study done? Most these days are at home with a little ring on your finger, or you can get a more accurate in-lab one done.
On nights when I get more deep sleep (confirmed by my Apple Watch), my tinnitus is reduced the following morning and day. Quviviq seems to help with that. But so does Gabapentin/Mirtazapine.
So, I'll just see how it goes once I'm on 50 mg. I'll only have about nine nights on 50 mg before I need to order another month because of the delay with the physician prescribing and the additional time for the pharmacy to order the drug that they don't stock. As long as I don't have a bad reaction, that additional refill will give me over a month on 50 mg to see if it's going to work for me.
I have a Fitbit, that I bought because it was supposedly more accurate for sleep tracking and oxygen variation. My oxygen variability looks good, but I don't trust any of the sleep stage info, even if it says I'm asleep. Most mornings, when I'm lying wide awake in bed, it will say I'm in light or REM sleep much of that time because I'm lying still. I haven't found any correlation between my sleep and tinnitus. Tinnitus seems to have its own variable cycle.
My doctor wouldn't consider Gabapentin. He probably wouldn't prescribe Mirtazapine, either, but I'm trying to avoid it due to the likely weight gain and other potential lasting serious side effects and withdrawal effects.