Hi, has anyone tried this? I have searched the forum and couldn't find anything so apologies if it's come up before. I know it can't 'cure', but was hoping it could reduce the emotional reaction to the tinnitus and therefore aid habituation ....
Probably wishful thinking
Yes. I have tried it. I know/believe hypnotherapy to be useful. But not for tinnitus.
I have done hypnotherapy in the past and I am also able to practice self-hypnosis. However, I have not found any relief when it comes to tinnitus. Last year when I saw the famous (to some, infamous) tinnitus specialist, dr. Wilden, I learnt his overall opinion is the same (and he meets as many tinnitus patients in a year as the average GP sees in a lifetime). Dr. Wilden is an opponent of psychological therapies when it comes to "treating" tinnitus. His justification is that tinnitus is such specific disorder that no amount psychological therapy will have any effect. I agree with his views (unfortunately). It is for this reason that I am not a believer in TRT, either. And it is for that reason I have turned to "hardcore" medicine in order to get better.
If you do want to try it, you need to seek out a "hypnotherapist" and not a "hypnotist". You also need to be willing to give it a few tries. Hypnotherapists make use of two tools: suggestive techniques and regression techniques. But again, these techniques are extremely useful for anxiety and phobias (much more so than psychotherapy is) - but not for tinnitus.
If you do want to go the psychological route: TRT is only way forward (even though I am not a believer). Dr. Nagel on this forum is, and he can obviously give you better information than I can.
Yes. I have tried it. I know/believe hypnotherapy to be useful. But not for tinnitus.
I have done hypnotherapy in the past and I am also able to practice self-hypnosis. However, I have not found any relief when it comes to tinnitus. Last year when I saw the famous (to some, infamous) tinnitus specialist, dr. Wilden, I learnt his overall opinion is the same (and he meets as many tinnitus patients in a year as the average GP sees in a lifetime). Dr. Wilden is an opponent of psychological therapies when it comes to "treating" tinnitus. His justification is that tinnitus is such specific disorder that no amount psychological therapy will have any effect. I agree with his views (unfortunately). It is for this reason that I am not a believer in TRT, either. And it is for that reason I have turned to "hardcore" medicine in order to get better.
If you do want to try it, you need to seek out a "hypnotherapist" and not a "hypnotist". You also need to be willing to give it a few tries. Hypnotherapists make use of two tools: suggestive techniques and regression techniques. But again, these techniques are extremely useful for anxiety and phobias (much more so than psychotherapy is) - but not for tinnitus.
If you do want to go the psychological route: TRT is only way forward (even though I am not a believer). Dr. Nagel on this forum is, and he can obviously give you better information than I can.
Forgive me for going somewhat off topic, but I know you have done a tremendous amount of research and undergone some medical-based tinnitus treatments so I wanted to ask your opinion. My audiograms have shown my hearing to be well within the 'normal' range and my tinnitus is around 6 KHz. I was not exposed to any loud sound prior to it starting. When I first heard it, it distressed me immensely and triggered very high levels of anxiety. So, would you say that psychological factors can contribute to the embedding of tinnitus, making it chronic? But once it's there, psychological therapies will not work to remove it? In the absence of any obvious physical damage I'm not sure what options are open to me if psychological therapy won't have any effect? My anxiety has been successfully treated medically, but I still want to treat the tinnitus. I appreciate you're not a medical doctor but would value your thoughts.
Forgive me for going somewhat off topic, but I know you have done a tremendous amount of research and undergone some medical-based tinnitus treatments so I wanted to ask your opinion. My audiograms have shown my hearing to be well within the 'normal' range and my tinnitus is around 6 KHz. I was not exposed to any loud sound prior to it starting. When I first heard it, it distressed me immensely and triggered very high levels of anxiety. So, would you say that psychological factors can contribute to the embedding of tinnitus, making it chronic? But once it's there, psychological therapies will not work to remove it? In the absence of any obvious physical damage I'm not sure what options are open to me if psychological therapy won't have any effect? My anxiety has been successfully treated medically, but I still want to treat the tinnitus. I appreciate you're not a medical doctor but would value your thoughts.
Thanks for replying. I did see an ENT who specialises in steroid injections a few days after my tinnitus started. But there was no sign of any infection or inflammation so he saw no reason to use steroids. I know it's too late but is there a school of thought that steroids could be beneficial when no obvious damage?
I understand from a previous post you had laser treatment with Dr Wilden and that your audiometry is improved to normal levels, indicating that the inner ear has healed? Therefore, if you don't mind my asking about your personal situation, why do you think that you still have tinnitus?
I did consider the AM101 study but unfortunately concluded I would be ruled out by their criteria. I am hoping phase 2 of Autifony might be feasible if/when that happens, though I might be ruled out by being on other medication.
I am following with interest your conversations and potential treatment of HIFU... so yes, I am prepared to approach my tinnitus situation aggressively, and aggressively empty my bank account if necessary!
Well, ear, brain, whatever I hope someone comes up with something that works soon.
I don't agree with this characterization of the (neuro-)auditory system. For starters, I wouldn't characterize it as an electric circuit. It is not electric and it is not a circuit. I read another post somewhere here the other day in which the poster felt that a loud sound had sent an electrical overload up the auditory wiring and damaged his brain. This is just not right....The auditory system consists of the (inner) ear, auditory nerve, and brain. It is an electric circuit. When tinnitus occurs, there is a pathology in that electric circuit. Something in the inner ear is sending a false signal to the brain. There are therefore two ways to deal with the situation: fix the transmitter of the signal (ie. the inner ear) or destory the receiver (ie. the brain)...
Well to use a very British phrase - "Crikey". That intensive care episode sounds awful, a great relief you came through it ok.
Would you still want to try the HIFU given the opportunity? Would Prof J be prepared to accept you? Will he insist you try TRT first?
Do you know anything about Autifony's product? I understand that company has big money behind it, I guess an effective pill would be the pharma company's profit dream (and ours too)
I wish I could believe in TRT and have my tinnitus become 'like a pair of pants' but at the moment they would be an extremely uncomfortable pair of pants that I can't help but be aware of!
At-the-age-of-science... My tinnitus came a few hours after having my ears syringed while taking azithromycin, I have the chance to take part in the am-101 trial, I have studied the am-101 phase 2 results, and it is my feeling that the drug probably does have efficacy in lowering the volume for a subset of patients - did this ent doubt efficacy altogether, what are your thoughts on the drugs mechanism, etc?... They really should be doing MRI studies in this trial, they'll do them on rats but not on humans
You seem knowledgable and I have one other question about my onset... I got on a course Of prednisone 96 hours after my onset, I was on it for 10 days, then two weeks later I did another 20 day taper, interestingly originally my tinnitus was in my left ear, during the 20 day taper my tinnitus in the left ear completely disappeared, that was about a month and a half ago and it has been gone since, my right ear started ringing about 2 weeks after onset and it is still ringing but for the past week I have been having silent periods for the first time, I know the original tinnitus in my left ear was probably due to trauma since it began right after the ear syringing, the t in my right ear is much more reactive and I was wondering if you think the t in that ear is more likely idiopathic... Maybe caused from a limbic system on high alert, etc... Do you think t that is straight tonal has a different etiology than reactive t?
I don't agree with this characterization of the (neuro-)auditory system. For starters, I wouldn't characterize it as an electric circuit. It is not electric and it is not a circuit. I read another post somewhere here the other day in which the poster felt that a loud sound had sent an electrical overload up the auditory wiring and damaged his brain. This is just not right.
Cellular connections in the auditory system are chemical. There is only so much stored chemical (neurotransmitter) at any connection. Unlike the case in an electric circuit, a damaging sound or a massive erroneous signal cannot pass from cell to cell. Only signals within a normal range can pass.
Further, there is information being transmitted both upward from ear to brain and downward from brain to ear. There are multiple pathways for each direction of flow and multiple levels of "up" and "down." There are also both excitatory and inhibitory chemical connections.
A major reason for interest in the brain as the cause of tinnitus is that it constantly reorganizes, dropping some cell-to-cell connections and forming new ones. It reorganizes according to global needs (what is being stimulated by other parts of the brain) and by what is not being used. It reorganizes as well in response to stimulation by other cells that lead to the cochlea in the inner ear.
It is certainly possible that a "rebuilt" cochlea would end tinnitus for some people. I think it will, and I think we will have that technology one day if research continues. But I suspect that for many people the issue will prove to be changes that have occurred in the auditory brain, and in those cases, repairing the cochlea may not cure tinnitus or may result in its resolving after a period of time due to brain reorganization ("plasticity").
I also think that--probably for most of us--changes have occurred in brain areas related to attention, and those areas may or may not be problematic after a cochlear repair. Will we simply continue to hear the noise we have become so good at unconsciously monitoring? No one knows.
One thing I do know is that there is enormous power in the brain to shift its way of attending to stimuli. We do not passively receive the sounds and sights of the external world; we build them. And there is good evidence from many different directions that we can shift the way we build our perceptual experience.
But this is psychology and not electrical engineering or medicine.
Jim
Hi, has anyone tried this? I have searched the forum and couldn't find anything so apologies if it's come up before. I know it can't 'cure', but was hoping it could reduce the emotional reaction to the tinnitus and therefore aid habituation ....
Probably wishful thinking
Clinical Hypnosis for the Alleviation of Tinnitus
http://www.tinnitusjournal.com/detalhe_artigo.asp?id=29
First of all, you do not have to "believe in" TRT in order for TRT to be successful. If you think otherwise, you have bought into a myth.
And second, of course right at this moment your tinnitus would be an extremely uncomfortable pair of pants. Why wouldn't it be? The goal of TRT is to make your tinnitus into a comfortable pair of pants. If your tinnitus were a comfortable pair of pants today, you would not even be on this board!
Stephen Nagler
Any antibiotic with the product name ending in -mycin is amongst the most ototoxic antibiotics available. These drugs really are ototoxic (unlike eg. Aspirin).
I consulted with a senior physician at the University Hospital of Leipzig (I will not name him). The reason for doing so is because I have been trying to get hold of AM101, off-label for the last month. I initially suceeded with another clinic, but "some things" went wrong. Here is what the physician had to say: the results from the phase II trial were "not that good" and for that reason "off-label use will not even be considered". I received a copy of the phase II trial results which is 9 pages long. The frontpage conclusion reads as follows:
"Results: The study overall failed to demonstrate a treatment benefit based on the change in MML*. However, AM-101 0.81 mg/ml showed statistically significantly better improvement for tinnitus loudness, annoyance, sleep difficulties, and tinnitus impact in patients with tinnitus after noise trauma or otitis media. The subgroup of ISSNHL-related tinnitus patients did not show conclusive results. The study drug and I.T. injections were well tolerated."
MML = Minimum masking level.
Here's how I make decisions: if there is a chance that it could work and if the drug is relatively safe, then I would go for it.
Sorry, but I really can't comment on your tinnitus onset. I would have no way of knowing. You did the right thing by taking swift action and seeing a doctor for steriods 96 hours after onset. Personally, I would not have gone on a second taper for 20 days due to the side effects that can/will appear after long term use of steriods. But, I am glad it worked for you.
I'm just curious so even though the high dose group showed a statistically significant improvement your doctor wasn't impressed with this? I think it was almost twice as many people who reported a significant measurable improvement?
I am not really comfortable answering your question in a public forum even though I have the report in front of me (because I need to make sure that I am right). In any event, I saw the ENT in question for other reasons (as mentioned) - and got a report which I have then looked through since.
I need to refer you to this post which is probably the most reliable summary:
https://www.tinnitustalk.com/threads/am-101-tactt1-results-released.1994/page-22#post-39475
The reason I am conflicted is because if patients report an improvement in their tinnitus and their ability to function, then why wouldn't the objective measure of MML also show an improvement? It doesn't make sense to me. But again, I am not comfortable drawing conclusions.