I'm Literally on the Verge of Ending It. Please Give Me Hope I Can Get Better.

Rojo

Member
Author
Jan 5, 2019
56
Tinnitus Since
October 2018
Cause of Tinnitus
Neomycin/Xiflaxin
I had digestive issues and GERD for 5 years - really badly for a year.

Then Neomycin gave me tinnitus and hyperacusis that have just gotten progressively worse over the past 6 months from both noise and taking practically any medication. I went from just not being able to stand loud restaurants and crowds and busy city streets, to now sitting in my basement in silence with discomfort, burning ears, and insane TTTS that spasms to every sound.

Can I still get better somehow? Has anyone? I'm addicted to and being destroyed by benzos, I have Lyme disease, my nerves and brain are probably just fucked from the MDMA I did twice right before my digestive issues started, I just keep deteriorating, the hospital won't take me, doctors don't do anything even though I keep giving myself more acoustic trauma every time I drive to one. They just send me in circles and refer me to someone else.

I've tried practically every supplement under the sun. For some reason even multivitamins send my CNS and ears into overdrive and haywire.

When you've literally brought the knife down into the bed with you but you're too cowardly to do it, you desperately need some sort of hope. It's not like they would even deafen me to let me keep living as a deaf person. This seems so awful that 3 days of Neomycin has resulted in the end of my life. But I see no hope left.

I think I will likely kill myself before the end of the day.
 
Rojo, I'm really sorry, your suffering is horrible, much worse than mine, and mine is bad.

You said the hospital won't take you... and I don't know where you live... I wonder if you could go somewhere else... Benzos... they often make people suicidal... and exacerbate hyperacusis and tinnitus... My own experience.

Could you perhaps try a slow taper... The Ashton method?

Keep trying to get some help buddy, I really feel for you... Daniel.
 
Problem with GERD (I have done all of this) you end up taking PPI - which work, but you also use Benzos for anxiety and tinnitus, which if you look at the literature they spike acid production in the stomach. Plus GERD acid actually get up the Eustachian tube into the inner ear and causes hearing damage and then tinnitus. It ends up been this absolutely horrible cycle that you need all the medications to maintain equilibrium. The worst part is using benzos and getting sleepy means you lay down in the middle of the day to escape the tinnitus with the benzos, your GERD spikes and hurts throat/neck/ear even more.

In my experience the only way to begin to deal with GERD and reduce the whole cycle is to avoid daytime naps after taking benzos. This means to reduce Benzos which of course is very hard.

In my case I am self employed and I can always make time for a nap if I want.

All I can say is the up and down effect of the Benzo cycle has a horrible effect on mood and general life outlook. Plus they seem to shift your whole circadian rhythm toward nighttime and then of course you get hungry and go on kitchen raiding bender...

My advice as someone who has grappled with this cyclic effect is force yourself up earlier, don't nap/eat/nap/eat. Get out of the house.

Join a gym. Buy a motorbike. Go on a holiday. Break the routine no matter what. We are all dealing with tinnitus but we have be strong and build mechanism to cope.

Vitamins often spike tinnitus through many pathways. Stick to Zinc/Magnesium avoid the vitamin B's they seem to elevate stress hormones like cortisol and irritate the T.

Typing this message I can hear this infernal noise. I accept there is really nothing I can do about it.

You are not alone. Be strong.
 
@Rojo do you have any family you can talk about with this or you can stay with? I think there are many many moving parts here regarding your tinnitus and hyperacusis, which when fixed may fix all the other issues. I really think the benzos are causing you a serious problem.

Can you find a psychiatrist that specializes in tinnitus in your area or any other doctor who does? They may be able to help you! Also look for an audiologist.

Please don't give up and keep trying to find a solution.
 
In some instances the acid can actually enter the Eustachian tube and get into the middle ear and cause infection and inflammation. I have GERD and I am certain that from laying down after meals allowed it to damage my ear. I would always get a sore ear and acidic throat from it. I then noticed my hearing in the right ear became less sharp and 3 months later tinnitus developed. I would say that controlling GERD/eating and sleeping habits to avoid reflux as well as general throat and stomach health.
 
@Rojo
Hearing Regeneration Trials
Frequency Therapeutics - FX-322
in Phase 1.5 (Results: December 2018)
Phase 2 (begin 2019)
Audion / Regain Trial
Phase 1/2 ongoing in the UK
Genvec / Novartis - CGF166
Phase 1/2 ongoing

Trials to begin in 2019 / Things to look out for in 2019
Neuromod (MuteButton)
launching their new device in January 2019 starting in Ireland, then Europe, then the US
results of their latest trial: 1H2019
Xenon Pharma - XEN-1101
Phase 2, expected to wrap up in 2nd quarter 2020
Frequency Therapeutics
Phase 2
Otonomy
1H19: OTO-313 (reduce tinnitus) Phase 1/2
1H19: OTO-413 (repairing synaptic damage) Phase 1/2
OTO-6XX (hair cell regeneration)
2H18: candidate selection
2019: Phase 1/2
University of Minnesota (device for tinnitus)
Phase 3 ?
University of Michigan (device for tinnitus)
perhaps updates on their currently ongoing trial
Estimated Primary Completion Date: September 2022
Estimated Study Completion Date: January 2023
 
In some instances the acid can actually enter the Eustachian tube and get into the middle ear and cause infection and inflammation. I have GERD and I am certain that from laying down after meals allowed it to damage my ear. I would always get a sore ear and acidic throat from it. I then noticed my hearing in the right ear became less sharp and 3 months later tinnitus developed. I would say that controlling GERD/eating and sleeping habits to avoid reflux as well as general throat and stomach health.

Assuming there is damage done to the Eustachian Tube/middle ear, is there any way to repair it?
Would taking better care help?
 
Rojo, please hang in there. Get off the benzos, slowly, then reassess. Talk to a doctor or do the slowwwwww taper on valiums. Read up on Ashton... We all care here and know you're in pain. Let us now how you're doing...ok...

Peace
 
With all the crap thats in our foods its no wonder most of us have digestive issues. For example carrageenan is very widely used in a lot of dairy products. Ice cream and coffee creamers for starters Its in tons of stuff. Guess what? It plays havoc on your digestive system . You go to the doctors and get a pill that causes more issues . The cycle continues and the drug companies are getting richer. Read your food and medication labels and side effects.
 
With all the crap thats in our foods its no wonder most of us have digestive issues. For example carrageenan is very widely used in a lot of dairy products. Ice cream and coffee creamers for starters Its in tons of stuff. Guess what? It plays havoc on your digestive system . You go to the doctors and get a pill that causes more issues . The cycle continues and the drug companies are getting richer. Read your food and medication labels and side effects.

Do you have GERD or any digestive issues that mess with your hearing?
 

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