In Loving Memory of Allan1967

[Martin69]

R.I.P. Heartbreaking.
I hope you have silence now.
Really bad news.

Guys, stay strong. All of us.

 

[Rajin]

RIP. My condolences to family and friends.

This why we need a treatment that works. These devices seem like hit or miss. But he was suffering, so I am happy he can finally get the silent he deserves.

No one deserves to suffer 24/7 the way he did. He always talked how severe his tinnitus was. Tinnitus needs to be taken more seriously.

May God give Allan peace that he seeked.

 

[DaveN]

RIP Allan.

Hopefully he is in peace and found silence.

 

[Candy]

I'm very sad to hear this news.

Rest in peace Allan.

 

[Liam_Cairns]

God damn, this is so upsetting.

Goodbye Allan, I am so sorry that you are gone.

 

[Alex Matyjasek]

RIP.

 

[Carlos1]

People that say it's just a noise, get used to it, have no clue the amount of suffering we go through.

Prayers, RIP.

Stay Strong everyone.

 

[dayma]

I am saddened to see this news. Praying for him and his family.

 

[morgothaod]

Hope he is tinnitus free in reincarnation. I find his avatar really disturbing and sad .

 

[Barbara777]

May Allan sleep in peace. I wish I could have held his hand and hug him in his last moments...

 

[Nate52]

Thoughts and prayers for Allan and his family. RIP.

 

[Jeebs]

I just read this and it made me weep. Whilst I have just joined Tinnitus Talk, I don't know who Allan is and how much he must have meant to all of you, this saddens me so much.

Just please have all my best wishes. Stay strong as I at least try to...

 

[Tweaker]

Tragic news. So sad for his family. Severe tinnitus is so devastating.

 

[alex1975]

So sad to hear, may he Rest In Peace...

Sorry I'm not the best at saying much in these sad events.

 

[Sash]

It's desperately sad and devastating news. Can imagine the torment Allan went through and now his family are suffering too.

Life is so precious and hope whatever the circumstances are, we look after ourselves and others too. There has to be more support and empathy.

 

[acute]

I can no longer add anything new to what everyone has said in the thread. I didn't want to get into this thread because I was still in shock. This is not fair. This is not fair. This is not fair. It's not fair.

I feel so bad about Allan. But also happy if this is what he wanted and if he is calm and in peace now. But all the suffering he's been through was bad. I can't explain. I think I understand perfectly what he experienced in the last months. I wish I could have helped him... He was suffering so much and was in terrible pain, like most of us, but even more...

I hope you are in peace now. You will always be remembered.

 

[jss]

I rarely post here but had to say something. So Sorry Allan that you had to endure the torture of severe tinnitus. This breaks my heart, may you rest in peace.

 

[TuxedoCat]

Are the BTA aware of Allan's passing? He posted on their Facebook page quite frequently and had a Top Fan designation for a while. Allan had a way with words. I liked the way he advocated for research and pointed out the obvious answers to BTA's proposed studies. I will miss that.

I also find it interesting that no one has come forward to help the Tinnitus Talk community deal with the grief some of us must be feeling.

Where are the psychologists when you actually need them? Have they at least made an inquiry if we are alright?

I don't know the circumstances of his passing and only suspect it was related to his tinnitus. He obviously struggled but at the same time did everything a sufferer can do to ease the struggles.

At the moment I see only failure on the part of the NHS and the BTA. Shame on you. You need to do better. That's what Allan was asking of you.

TC

 

[Jazzer]

Are the BTA aware of Allan's passing? He posted on their Facebook page quite frequently and had a Top Fan designation for a while. Allan had a way with words. I liked the way he advocated for research and pointed out the obvious answers to BTA's proposed studies. I will miss that.

I also find it interesting that no one has come forward to help the Tinnitus Talk community deal with the grief some of us must be feeling.

Where are the psychologists when you actually need them? Have they at least made an inquiry if we are alright?

I don't know the circumstances of his passing and only suspect it was related to his tinnitus. He obviously struggled but at the same time did everything a sufferer can do to ease the struggles.

At the moment I see only failure on the part of the NHS and the BTA. Shame on you. You need to do better. That's what Allan was asking of you.

TC

But could anyone say anything that would help us to feel better?

We are only too aware of the brutality of this thing.

Don't we have to make our own adjustment to it?

 

[LukeYoung]

But could anyone say anything that would help us to feel better?

We are only too aware of the brutality of this thing.

Don't we have to make our own adjustment to it?

Yeah I think this is spot on.
Words are nice but in the end they don't fix the issue.

Some people cope better than others I guess.

 

[Jazzer]

Allan suffered unbelievably.

I suffer unbelievably.
All of us with 'severe' tinnitus suffer unbelievably.

I use the word 'Unbelievably' because nobody without this condition has any idea of the pain of noise we have to bear.

We can tell people, our doctors, our friends, our partners even, and they can be sympathetic, empathic even, but of course, they can never truly 'know.'

The loneliest condition in the world.

Perhaps the only thing we can do is
'hold each other's hand.'

 

[UKBloke]

Are the BTA aware of Allan's passing?

I've wondered the same about Neuromod because I believe Allan was still effectively a patient of theirs.

Don't we have to make our own adjustment to it?

Probably. And I'm going to go out on a limb here and say that everyone has shown great restraint but I believe as a community we need to know the circumstances of Allan's passing.

 

[Markku]

We have a member who has been in touch with someone from Allan's family, but thus far we there's no line between me/Hazel and the family. We obviously want to let them grieve in peace, so it's up to the family if they want to get in touch with us (they have our information now). For what it's worth, we'd be very much willing to honor Allan's legacy by having a research fundraiser in his name (something similar to what we did with @Danny Boy where the donors decided where the funds go). We'd also like to create something about him in terms of raising awareness of tinnitus and the plight the severe tinnitus sufferers face. One thing that many remember about Allan is that he didn't shy away from discussing the glaring issues in the field of tinnitus; for example, the lack of research funding on both here and social media. He could be found on the Facebook pages of all major tinnitus organizations trying to advocate for the cause. He did all this while suffering himself so greatly, remaining civil and dignified. I will never forget him - he was unlike many others in the community. If the community had more members like Allan with his relentless pursuit of better treatments, better advocacy, better research priorities, we'd be much better off.

I'll let everyone know of any new updates.

Are the BTA aware of Allan's passing?

I know that in the funeral notice, the family asked to donate to BTA in lieu of flowers.

I've wondered the same about Neuromod because I believe Allan was still effectively a patient of theirs.

Neuromod is aware.

 

[Violetdusk]

For the past 2 years, I too have thought about suicide every single day. My tinnitus and hyperacusis is severely worse... to the point I know live in isolation. I know the struggles of anyone with these conditions. Still I am very sad to hear of his passing.

Rest in Peace Allan, I hope you are somewhere in a world far removed from these maladies.

 

[UKBloke]

We have a member who has been in touch with someone from Allan's family, but thus far we there's no line between me/Hazel and the family. We obviously want to let them grieve in peace, so it's up to the family if they want to get in touch with us (they have our information now). For what it's worth, we'd be very much willing to honor Allan's legacy by having a research fundraiser in his name (something similar to what we did with @Danny Boy where the donors decided where the funds go). We'd also like to create something about him in terms of raising awareness of tinnitus and the plight the severe tinnitus sufferers face. One thing that many remember about Allan is that he didn't shy away from discussing the glaring issues in the field of tinnitus; for example, the lack of research funding on both here and social media. He could be found on the Facebook pages of all major tinnitus organizations trying to advocate for the cause. He did all this while suffering himself so greatly, remaining civil and dignified. I will never forget him - he was unlike many others in the community. If the community had more members like Allan with his relentless pursuit of better treatments, better advocacy, better research priorities, we'd be much better off.

I'll let everyone know of any new updates.

I know that in the funeral notice, the family asked to donate to BTA in lieu of flowers.

Neuromod is aware.

Thank you for the update.

There's also an option on the funeral notice to leave a message and a virtual candle for Allan should any Tinnitus Talk members wish to do so.

 

[Agrajag364]

Truly heartbreaking. My condolences to the family.

Despite the torment caused by his tinnitus, he always was a true gentleman in his comments on here.

This is very true. He always sounded very polite and decent.

 

[El BUZZ]

I've been hesitant about pronouncing myself in this thread as I always feel really awkward at communicating my ideas and feelings. Besides English not being my first language but one I've fully learned by myself.

Allan's decision is one that I know is filling many of us with multiple and rough feelings. We who are battling the battle every single day know better than anyone not only what severe tinnitus means but what losing a member of our community is. It has a tremendous impact on our moods. The climbing becomes harder. I fully respect and understand his choice as the idea of giving up is part of my constant reality. I just canät accept it has been caused by something whose answers should be closer by now. I deny the existence of such a twisted event as this severe tinnitus is.

My heart goes out to the family. My heart goes out to Allan and every second of his experience as a human being. My hugs go to every member of this community fighting this fight.

 

[Dja]

Indeed, to God we belong and to God we shall return.

RIP.

 

[Daniel Lion]

Love to Allan's family.
This really hurts.
You are not forgotten my dear friend, RIP Allan.
Love.

 

[Steve G]

So very sad. Rest in peace, my condolences to Allan's family and friends.