Introducing Myself and Losing All Hope
- Thread starter Hania
- Start date
Hey
Thanks for the support, ive contacted the doctor ( Dr. De ridder) that did this procedure. Sadly and due to unknown reasons they have stopped this procedure completely :'(
Thanks for the hope but ive read such a treatment could cost up to 30 000 euro
I keep having hope but my life is falling apart due to loud and intrusive tinnitus.. Im even so hopeless that i started to save money in case they will find something that works
QUICK UPDATE:
As you guys know on the day of my 20th i had a new acoustic trauma , since then ive heard a NEW intrusive rattle sound in my left ear and louder t in my right. Luckily the rattle sound faded and is not as audible as it was two days after onset... i think god and oral steroid did the job. i STILL have a metalic sound in my left ear that sadly didnt went away but isnt as loud.. my right ear didnt get better sadly but im still praying to god that he will give me strenght or a bit reduction of the sound... starting an oral steroid course was a really good idea
As you guys know on the day of my 20th i had a new acoustic trauma , since then ive heard a NEW intrusive rattle sound in my left ear and louder t in my right. Luckily the rattle sound faded and is not as audible as it was two days after onset... i think god and oral steroid did the job. i STILL have a metalic sound in my left ear that sadly didnt went away but isnt as loud.. my right ear didnt get better sadly but im still praying to god that he will give me strenght or a bit reduction of the sound... starting an oral steroid course was a really good idea
MemberIf you're really thinking about suicide, find a psychiatrist as soon as possible.
Tinnitus is very hard at the beginning, gets easier, hang in there!
Yeah, a lot of people have it. I mean, if it bothers you now, don't worry, you'll get better but it takes time.
And please, find a health professional to help you deal with suicidal thoughts.
Best,
Zug
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
It didn't fail. It was never announced on enough platforms and lost it's support. I wouldn't call those testimonials of being cured a failure I would call the notion of the procedure not getting a fair amount of recognition a failure.
Its true, i heared that a guy in my country had such an electrode but he slammed his head somewhere and the battery went broke BANG back to 80 db tinnitus.. luckily some hospital had pity of him and made a CI in his ear to reduce the noise..
Those where the real lucky ones
Because of his stupidity or extreme case of being unfortunate...it was enough reason to stop the procedure.
What if he never received a traumatic blow to his head? Then what?
Maybe its extreme to call it a cure but it most definitely masked his t to the point where it no longer afflicted his life. I'm sure most people given that opportunity would opt for the procedure.
Reactive tinnitus is considered by some as just an extension or element of hyperacusis. Usually when the ears suffer acoustic trauma by loud noise, besides the tinnitus which is usually high pitched, hyperacusis may join in too. It can turn all sounds too loud and feel like brittle or metallic, as if someone is scratching glass. I know this too well, as I lived through both ultra high pitched T and hyperacusis. H is sometimes the harder one to accept as besides the hurtful sensation, it puts a limit on what you can go or do. This tends to isolate the sufferer and soon depression & anxiety (for fear of the unknown future) are all over us making it a lot worse. But if your H is one that comes after a loud acoustic trauma, it will mostly likely fade over time. Mine faded within the year. Many members report the same scenario with their H. So don't worry too much about the future.
Hi Hania
How are things with you. I know tinnitus sucks and the rattling you describe might be TTTS (where a muscle behind your eardrum involuntary contracts many times a second). This is known to be caused by extreme anxiety
I am guessing you are very anxious with everything that is going on and the key is to reduce anxiety, stop monitoring your T and surround yourself with soft calming music
Your audiogram looks good at face value but is limited as standard hearing tests only use speech frequencies which is limited to 8kHz - there may be an element of "hidden hearing loss" at higher frequencies if it were possible to test these clinically
There is hope - you have to believe....
How are things with you. I know tinnitus sucks and the rattling you describe might be TTTS (where a muscle behind your eardrum involuntary contracts many times a second). This is known to be caused by extreme anxiety
I am guessing you are very anxious with everything that is going on and the key is to reduce anxiety, stop monitoring your T and surround yourself with soft calming music
Your audiogram looks good at face value but is limited as standard hearing tests only use speech frequencies which is limited to 8kHz - there may be an element of "hidden hearing loss" at higher frequencies if it were possible to test these clinically
There is hope - you have to believe....
Hi ,
Im doing better but still bad due to my tinnitus changing sounds almost every frikkin' day
Im still hoping for atleast some sort of treatment in the future but im being sceptical about it
Im going to start taking some AD soon cus the anxiety isss craazzyyy on top of that they found something on my mri!!!! look below! They said it has nothing to do w my T but idk
Your hearing looks pretty good. It's the first time I see an audiogram that shows better hearing on high frequencies than low frequencies.
Her audiogram goes way past 8 kHz (perhaps into the 16+ kHz). Hidden Hearing Loss (HHL) is orthogonal to the frequency domain : you can have HHL anywhere on the spectrum. In other words, a "perfect high frequency audiogram" is no guarantee that you have no HHL.
What is it that they found? (if you are comfortable disclosing it)
I wonder how they can positively say that it's unrelated to T.
Yes, you're right - I only had a quick glance - however, perhaps Hania could give us an idea of what headphones were used - i.e. "normal ones" or big, chunky ones". There's reason for my query
Speculation is not what I'm asking. Perhaps it'll be easier for you if you take it out of context and answer the question this way: what's the difference between "normal" and "big chunky" headphones when it comes to PTA? (I'm not even sure what "normal" means - it would help if you could explain the difference)
This is completely independent from Hania. It could have been posted in a completely different thread.
I'm not sure why you are so hesitant in explaining your hypothesis. Whatever her answer may be, it doesn't devalue your hypothesis. Your discomfort is puzzling me.
I know you're not asking about speculation. My concern is the accuracy of Hania's PTA as you've pulled me up over my suggestion of hidden hearing loss (as I didn't look at the audiogram properly at first). I don't expect Hania to know the exact type of headphone used but special ones are required for extended high frequency audiometry (i.e. not standard audiometric headphones). How do I/we know that her thresholds at frequencies higher than 8kHz are accurate? -5/-10dB hearing thresholds at 20kHz for a 20year old with history of more than one acoustic trauma!? Wouldn't you be a bit skeptical?
