Unfortunately, this is indeed the typical response. People want a solution but they either don't want to help out, or they are so jaded from all the hypes and scammers that they don't trust anyone.
That said, we've only just launched, so we need to keep chipping away at it, and keep trying! Thank you for doing your best to support the cause
We are working on an intro video, and a ton of other video content too, coming soon...
Until I got tinnitus, I didn't realize how "abandoned" the overall community was. Unfortunately, I came face to face with this harsh reality after having it. I want to thank both
@Markku and you for creating such a platform. If there is a place called heaven, I am sure there is a special spot reserved for you guys there.
In the support groups I joined before, I saw many people say they wanted to do "something" about tinnitus, even planning to meet with the health minister or famous people to work on a solution or create short films to raise awareness. But when their spike periods passed, they vanished without looking back and deleted their accounts. This happened not just once or twice but with dozens of people.
At first, I understood these people because no one wants to remember and live with such a cursed illness constantly. But later, when I realized that their promises and the actions they said they would take gave other sufferers a glimmer of hope, I began to resent them.
For instance, even when I am not in a spike period, I still support and help people in forums and communities in my country. If we all act like those people I mentioned, we won't create awareness or get closer to a cure, not in 2024 or even in 3024. Even if my tinnitus and hearing problems completely disappear tomorrow, I will continue to support this process as much as I can for the rest of my life.
I don't rely on others or some device someone else might develop. I know we need to cut the knot ourselves. I am not a doctor; I don't know in what way or how this illness can be treated or if it is even physically possible. But I don't want to sit idly by, and I won't.
As I mentioned in my previous post, I believe some people can do promotion work better than I can. When I looked at the list of volunteer jobs, I didn't see anything I could do because Tinnitus Talk is the first forum I have ever joined, and I don't have the skills mentioned. However, I am eager to support both Tinnitus Talk and Tinnitus Quest. Given these conditions, I am not sure how I can contribute.