Introduction — Would Love to Hear from Other Music Lovers (and Anyone Else of Course!:)

Manny

Member
Author
Podcast Patron
Benefactor
Apr 14, 2018
1,432
United States
Tinnitus Since
1/2018
Cause of Tinnitus
central gain << NIHL
Hi everyone!
I've been reading posts here since my tinnitus began, which was just about three months ago, and I just joined and wanted to introduce myself. This is gonna be long...

Music used to be the absolute most important thing in my life. I would listen to it for 6+ hours every day, and I recently bought a piano at considerable expense because I wanted, in my early twenties, to finally learn to play. I won't rehash my entire history, but music was the path to my emotions, and it was the absolute most important thing in my life by far.

And then, over the course of a single night, everything changed. Toward the beginning of January 2018 I attended a party at a New York bar. The music was so loud it hurt bad, and I was right under the speakers for a little while too, playing pool - BIG mistake of course!! No earplugs. Of course, I've been kicking myself over and over for not realizing to leave, especially because the noise really hurt at the time too. But, what's done is done.

Several days after the party, I developed tinnitus. The tinnitus has only gotten worse over time (additional tones, more intrusive). The main sound is ultrahigh frequency broadband (centered around 14 khz), and there's also a more faint helicopter-like sound. The noise is super-grating, makes concentrating difficult, and drives me to tears at times. Some hyperacusis set in as well, but thankfully my hyperacusis is mild and is not anything more than a minor annoyance. I do not have any vertigo symptoms.

I also experienced a subtle but significant hearing loss. My audiogram (250-8000 hz) is technically "normal", though not for my age. Most of my air-conduction thresholds are between 5 and 15 dbhl, but for several frequencies they are 15-20 dbhl, more so in the left ear, which was closer to the speaker that night.

I also tried ultrahigh frequency tests on a phone app which I calibrated, and they reveal significant losses above 10 khz (totally out of norm for my age), which become progressively worse as the frequencies are raised. Even at the highest possible volume with headphones, which probably exceeds 100 db, my left ear completely dies out at around 14 khz, and my right at around 16 khz. (I would assume this is why my tinnitus is centered around 14 khz.) Also have some difficulty hearing in noisy situations or in rooms with bad acoustics. As is common knowledge, an audiogram does not by any means screen the entirety of the auditory system.

I did make it to my GP less than a week after the event, but he did not have any recommendations beyond Sudafed (?!!), and he didn't even do a pitch fork test. As all too many of us know, despite its often devastating effects on quality of life many doctors do not seem particularly knowledgeable or caring about tinnitus and minor hearing loss. By the time I got steroids and (expensive!!!) HBOT it was way too late. Although, they may not have helped earlier either. ACRN has been of minor help for the tinnitus (thank you generalfuzz!). Also trying Gingko, Magnesium, homeopathy and Dr. Sarno/Louise Hay, just cause why not try.

Finally and critically, as to music. I can definitely still hear the melody, can sing on tune, even my pitch discrimination is fine. But, I lost the "edge" of my hearing and with it the "edge" of the music. Bass sounds a bit muddy, treble kind of flat, and violins have lost their beautiful haunting character. Songs sound disturbingly flat and, oddly enough, like they're going too fast. Not to mention the tinnitus that now accompanies every song. I had always enjoyed emotional and intricate music in particular, and I am devastated and feel as if there is a giant black hole in my life. I can still read literature, poems, learn new things, and I suppose I should be grateful for that...but music was really my passion by any measure.

I do draw inspiration from several individuals whose both hearing loss and musical abilities are exponentially greater than my own: Andrew Huang (successful music youtuber), Mandy Harvey (super-talented deaf singer), Chris Martin of Coldplay (tinnitus - don't know about hearing loss for him), even Beethoven I suppose. I really liked Mandy Harvey's book Sensing the Rhythm. I am not in any way equating my level of hearing loss, and definitely not my musical abilities, to that of the above individuals, but I try and tell myself that if they could continue with their life, and even with their music, I can too. But...

Disclaimer: I am obviously aware that many have unfortunately experienced a much worse hearing loss, and I am not comparing my experience to that of everyone on this forum. The effects on myself remain. And tinnitus SUCKS!!

To a cure soon!!
 
Mine is not from noise and I do not have hearing loss, but there are many different combos that cause tinnitus. Many posters back track themselves for their cause, and others just know. Just get your wits about it going forward. it is a process to understand it.

The music part I listen to music/masking sounds on the radio, no headphones or plugs, but when you put hyperacusis in the mix, please read alot of threads about both.

Due to T And H need alot of time to heal.

Also, you are not alone with tinnitus.
 
@Manny I'm sorry for the T and its intrusion and changes to this important area of your life. I suggest you decide on re-reviewing your attachment to music in 6-12 months, and not micro-analyze what negative effects you can detect. One can always find fault and not focusing on what is not available may help. You may want to find some musical genre that "fits" with your T and hearing range and not aggravate your memory of what things used to be like. And meanwhile focus energy on HEALing.

As an audiophile, you may be interested in a Mozart piece used in a study to treat Tinnitus.

https://www.ncbi.nlm.nih.gov/pubmed/23025336

Your education on this terrible malady is impressive. I wish you good luck!
 
Hi guys! Thank you for your responses.
MBH, yes after several months I am beginning to see that unfortunately this is very much a process...;/ not a transient thing.
@PortalNaut thank you for your kind and wise words. I'm kind of confused by that Mozart study by the way. Looks like the music just functioned as a stress reducer, as I can't imagine anything qualitatively unique about Mozart's symphony in regards to tinnitus.
Anyways...this piercing tinnitus is really, really wearing me down. I honestly don't know how people live with it for years and years. Although no two people are exactly the same. I've had it for 3.5 months and, well, I've just about had it...
Portalnaut, I've also read your intro thread "Coming in to a new awareness". I must say I am super jealous that you got Prednisone early... In any case, at risk of repeating myself, you seem super educated and intelligent! I feel like we would be great friends irl. Do you by any random chance live near NYC? I'd love to meet with you in a cafe or something. If this something that you are interested in of course.
Namaste.
 
Manny based on your post you sound like you're doing quite well regarding the initial shock. I wish I could do or say something to help you. All I can say is you're never alone here.
 
@New Guy thank you! It is really meaningful to hear that I am not alone in this.
I'm not sure what gave off the impression that I'm doing alright but unfortunately I'm really not doing too well at all.
Thank you for the support. It's genuinely appreciated.
As to you, here's hoping that you never move past "new guy" status!!
 
Manny, you've got the right attitude. I know you have bad times but I can tell you're an optimist and look for the good in things and that will make a difference.
 
you seem super educated and intelligent! I feel like we would be great friends irl. Do you by any random chance live near NYC? I'd love to meet with you in a cafe or something. If this something that you are interested in of course.
Namaste.

@Manny
Thanks for the kind words! I'm on the opposite side of the US, but would be glad to meet if ever out your way.

If that Mozart study is more about stress you are probably right. However, it also shows there is diminution of this condition...I suppose, if we find the right key. Note: the results include: "A significant improvement...could already be appreciated after a single exposure to Mozart's sonata." How much must our mind be a part of this!

However, nonetheless, I am hopeful of possibly re-awakening what damaged nerve cells that I can. And while I (and we) are not there yet, it seems for many...time...is a big part of the process.

Good luck!
 
Thank you PortalNaut. For me, keeping my mind in a state most conducive to healing is a most difficult task. But, it is surely a vital task as well.
Good luck to you too!
 
when my hyperacusis was mild I was having panic attacks and behaving extremely suicidal, haha it's funny how normies tolerate hyperacusis much better...

what's the point of bio-medical research for hyperacusis/pain when normies are so good at adapting to it?
 
Hey @Manny. I've wanted to post in this thread for a while. I also think music is the most fascinating thing ever and was devastated when I got the tinnitus. What genres of music do you enjoy?
I like electronic music a lot. Like this track:

I'm dying when I listen to this song.
 
Hey there @Audiophile_bg. I was mostly into slower music. I liked all different types of music but especially liked movie soundtracks and rock ballads. The music you posted above is cool!
I guess I still like the music but, it lost its heart with my hearing loss and tinnitus cause I can't hear it well anymore! I get depressed when I listen to my favorite songs cause they sound weird and are missing subtleties. TBH I'm just alive in the hope of fixing my hearing but that may not be realistic...
Can you still enjoy music?
 
I'm so sorry Manny, this is depressing that the tinnitus did this.
I still enjoy music. My tinnitus has improved. If it had stayed the same as in the beginning, I wouldn't be able to enjoy it though. I do have very awful anxiety and that somewhat deters me from living life normally.
 
I'm so sorry Manny, this is depressing that the tinnitus did this.
I still enjoy music. My tinnitus has improved. If it had stayed the same as in the beginning, I wouldn't be able to enjoy it though. I do have very awful anxiety and that somewhat deters me from living life normally.
Oh god. I am jealous. Do you have hearing loss?
And I am sorry about your anxiety. I had severe anxiety for a long period some time ago and it can be awful!
 
The doctor said that I didn't have hearing loss. Thank god, that would have sent me into crazy land knowing how i am. Do you have hearing loss? Yes the anxiety is awful, I don't know if I can ever live normally.

And of course I don't think I can get disability for anxiety.
 
I have hearing loss that doesn't show on the .25-8 kHz tonal audiogram.
 
@Manny just an observation. At my last hearing test in 2016 my right ear showed 30 dB at 3-4 kHz. I think those frequencies have probably been damaged gradually over the last 10 years or so from attending clubs and gigs.

Maybe this is why I have not had an adverse reaction to the results of the audiogram, music has not noticeably changed although maybe it's because my left ear is still good?

Do you think your hearing loss came on suddenly following that night at the bar?
 

Log in or register to get the full forum benefits!

Register

Register on Tinnitus Talk for free!

Register Now