I've been extremely hesitant to make a thread like this. I didn't want to post anything here until I was completely cured/fine again. But recent events have put some things in perspective for me and I feel like it's important to highlight it. I've begun to realize that as long as things don't get worse than they are now, I will probably be able to endure until there are better options on the table. There's nothing I'd want more than silence again, but yes... things could be worse. So I wanted to compare the good and the bad just to put things in perspective.
THE BAD
* Sleeping or taking a nap is still very difficult. I don't get nearly as much sleep as I would like. It's very frustrating and I often feel tired in the morning, tired in the midday, tired in the evening etc. Hearing about people who say they slept wonderfully for 8 hours etc makes me jealous and upset.
* Just knowing that I have tinnitus creates some tension and fear that it could always get worse. I've become very protective of my hearing since I got tinnitus.
* Occasionally I get spikes and they are hard to deal with for me.
* I have suicidal ideation sometimes. A lot less lately, but during 2020 it was like... every day.
* I feel like my soul is not at rest with this stuff. It's just an extremely annoying thing to have to deal with all the time. Body feels like a prison and I've more or less given up on becoming a writer, since the tinnitus fucks with my creativity and idea process.
THE GOOD
* The nature of my tinnitus is quite benign. I mean, the sound that I'm hearing is tolerable most of the time. I've heard about people who have a "tea ket pottle" type of tinnitus, I would never have been able to endure that. I have a whooshing type of tinnitus, a kind of electrical hiss in a way.
* Lenire helps. It makes it possible for me to go through the day without too much problem. I've recently begun using it again, but I'm restricting it to 3-4 times a week now.
*I only have tinnitus in my left ear. My right ear is dead quiet (normal). This makes me feel like I only have one foot in the twilight zone, the other foot is still in the normal world and it keeps me somewhat sane. It helps me remember what life was before tinnitus. It gives me a feeling that it could go back to normal one day. Occasionally I will get extremely mild tinnitus in my right ear after taking a nap or using Lenire. It lasts for 1-15 minutes, then goes away. To this day, it has always gone away. I have an enormous fear of developing permanent tinnitus in both ears, but I try not to worry about it.
* Video games is a tremendous help. I'm mostly able to forget about the tinnitus, even though it's always there.
* When I first got tinnitus in 2018, I had hyperacusis for 5 months. That was a freaking nightmare. I don't have that anymore, so I'm really glad.
* All in all, I still have two arms, two legs, two eyes that works fine, mental health could be better but I'm mostly fine. Tinnitus is just something I have to deal with for now.
There's something else that I also wanted to mention. The last few days I've made some "controversial" posts on my Facebook wall, something I would usually never do because I'm pretty sensitive to "judgement" from other people. I've begun to care a lot less about that, in fact, I've begun to see that my old personality, the one from pre-2012, when my life went to shit and I began to isolate, has begin to emerge again. I'm beginning to feel comfortable with confronting things head on again and I'm starting to feel proud of who I am. For a very long time it was imprinted on me that if you have "conservative values", you must be a piece of shit, an asshole by nature, because you don't get with the plan, the politically correct idea that society wants to imprint on you. So I mostly kept my mouth shut, even though I had some really different ideas about what's morally right and what's reasonable and true. After the firing of Gina Carano and noticing how the far left in the USA really operates, some very long discussions with friends and my brother, I've begun to realize that the unethical, immoral people are on the far left, not the right. The right also has problems, but I don't like extremes of any kind, so I was always opposed to both polars. I've begun to see there is a lot (a LOT) of people who think as I do and that makes me feel unafraid to voice my opinion, because I know they are not unique, snowflake ideas anymore. I met another girl from the Netherlands who also has autism like me and she is also a centrist politically, we discussed for hours and found that we agree on almost everything. That was extremely liberating and it made me feel that I'm not so out of place with my opinions anymore.
I hope this is going to help me focus better and maybe in turn it will help me forget about tinnitus. Strength of character is important and feeling comfortable with who you are is important. Maybe not a cure for tinnitus, but it definitely helps. I'm tired of being an emasculated, scared and anonymous nobody. I'm starting to find my strength again, my will to live and the power of my personality. Maybe I'll even try writing again.
THE BAD
* Sleeping or taking a nap is still very difficult. I don't get nearly as much sleep as I would like. It's very frustrating and I often feel tired in the morning, tired in the midday, tired in the evening etc. Hearing about people who say they slept wonderfully for 8 hours etc makes me jealous and upset.
* Just knowing that I have tinnitus creates some tension and fear that it could always get worse. I've become very protective of my hearing since I got tinnitus.
* Occasionally I get spikes and they are hard to deal with for me.
* I have suicidal ideation sometimes. A lot less lately, but during 2020 it was like... every day.
* I feel like my soul is not at rest with this stuff. It's just an extremely annoying thing to have to deal with all the time. Body feels like a prison and I've more or less given up on becoming a writer, since the tinnitus fucks with my creativity and idea process.
THE GOOD
* The nature of my tinnitus is quite benign. I mean, the sound that I'm hearing is tolerable most of the time. I've heard about people who have a "tea ket pottle" type of tinnitus, I would never have been able to endure that. I have a whooshing type of tinnitus, a kind of electrical hiss in a way.
* Lenire helps. It makes it possible for me to go through the day without too much problem. I've recently begun using it again, but I'm restricting it to 3-4 times a week now.
*I only have tinnitus in my left ear. My right ear is dead quiet (normal). This makes me feel like I only have one foot in the twilight zone, the other foot is still in the normal world and it keeps me somewhat sane. It helps me remember what life was before tinnitus. It gives me a feeling that it could go back to normal one day. Occasionally I will get extremely mild tinnitus in my right ear after taking a nap or using Lenire. It lasts for 1-15 minutes, then goes away. To this day, it has always gone away. I have an enormous fear of developing permanent tinnitus in both ears, but I try not to worry about it.
* Video games is a tremendous help. I'm mostly able to forget about the tinnitus, even though it's always there.
* When I first got tinnitus in 2018, I had hyperacusis for 5 months. That was a freaking nightmare. I don't have that anymore, so I'm really glad.
* All in all, I still have two arms, two legs, two eyes that works fine, mental health could be better but I'm mostly fine. Tinnitus is just something I have to deal with for now.
There's something else that I also wanted to mention. The last few days I've made some "controversial" posts on my Facebook wall, something I would usually never do because I'm pretty sensitive to "judgement" from other people. I've begun to care a lot less about that, in fact, I've begun to see that my old personality, the one from pre-2012, when my life went to shit and I began to isolate, has begin to emerge again. I'm beginning to feel comfortable with confronting things head on again and I'm starting to feel proud of who I am. For a very long time it was imprinted on me that if you have "conservative values", you must be a piece of shit, an asshole by nature, because you don't get with the plan, the politically correct idea that society wants to imprint on you. So I mostly kept my mouth shut, even though I had some really different ideas about what's morally right and what's reasonable and true. After the firing of Gina Carano and noticing how the far left in the USA really operates, some very long discussions with friends and my brother, I've begun to realize that the unethical, immoral people are on the far left, not the right. The right also has problems, but I don't like extremes of any kind, so I was always opposed to both polars. I've begun to see there is a lot (a LOT) of people who think as I do and that makes me feel unafraid to voice my opinion, because I know they are not unique, snowflake ideas anymore. I met another girl from the Netherlands who also has autism like me and she is also a centrist politically, we discussed for hours and found that we agree on almost everything. That was extremely liberating and it made me feel that I'm not so out of place with my opinions anymore.
I hope this is going to help me focus better and maybe in turn it will help me forget about tinnitus. Strength of character is important and feeling comfortable with who you are is important. Maybe not a cure for tinnitus, but it definitely helps. I'm tired of being an emasculated, scared and anonymous nobody. I'm starting to find my strength again, my will to live and the power of my personality. Maybe I'll even try writing again.