MemberIt has been a while since I wrote something about the progression of my T on this forum.
But I feel the time is right now to do so.
Something I didn't believe when confronted with T after onset the replies telling that it will get better > In my case indeed it did/does get better and better!
I'm now 5 months into T and compared to the peak level, the 'left over' T is around 20% of that volume (in general only noticeable in (very) quite environments (like bedroom).
It also reacts less and less to the environment. In the beginning my T was very reactive to even moderate noises which drove me crazy and made me very afraid.
My progression and reaction towards T I believe is a combination of habituation and more important actual lowering of the volume and sound reaction.
What did I actually do;
- Infusion therapy in Germany (I still belief it lowered my T for 30-40%)
- Sound therapies like ACRN, notched music (which removed the high pitch 4kHz ringing, left over broadband alike noises)
- Started to take magnesium, zinc and B vitamins as well fish oil.
I believe magnesium and fish oil helped the most.
- Also I'm now on Sound Therapy Perth (I was and still skeptical) but it looks this provides another help in the reduction of my T to acceptable levels and sometimes it even feels I do no longer have T when plugging my ears (only to a level I always have had, like hearing the sea / white noise when putting a shell against your ear)
Honestly, I of course can't tell whether any of the things I do or did contributed to the current situation or that it is just my brain adapting (plasticity) on its own to the new situation. You never can tell for sure (since in fact I'm still in the post acute phase of T).
I also exposed myself to louder and louder sounds. I even went to events, of course with earplugs (26 dB reduction) where noise levels reaches levels of 100 dB and above.
Thanks to the earplugs my ears where OK afterwards.
Compared to the past my ears where always ringing after such events (like for the majority of people). I like the idea that I now protect my ears for further decline and regret not to find out earlier about earplugs. I still enjoy the music and the funniest part of it; I even can have better conversation with people around me than before using earplugs. Another benefit; myself is shouting less no hoarse voice anymore in the morning. Of course the first couples of times I was afraid of exposing myself to these levels. What if….
However, it looks I can withstand (fingers crossed) these levels when using earplugs. I know this will not count for everyone with T and I don't know what the future will hold for me as well.
But it is told many times, also on this forum, try to pick up your 'normal' life again and do the things you did before onset of T. Taken into account the necessary precautions and sensibility of course.
With the last event Carnival reception for the new local prince (Yep I live in a region of the Netherlands where they celebrate this thing called Carnival.) my girlfriend finally concluded that the noise levels reach ridiculous levels indeed (shouting to each other to have a 'conversation')
See decided, although see does not yet have T (although a slight ring when searching for it, but no negative reaction towards it (yet)), that it is wise to use earplugs.
Man, I'm so glad see finally realized this. I told her that the investment of 150/200 € is all spent well. That is no investment considering the possible consequences of T and the hearing loss over time!
Even some other people around me are slowly realizing that it could be wise to wear earplugs in such environments! Also when I told them that wearing earplugs improves the conversations and that the experience of music isn't jeopardized at all!
I will continue to write about my progression, hopefully this gives some hope to others on this forum, that indeed it can get better overtime. How hard to believe initially, especially when just confronted with this dreadful T.
Hopefully the progression continues positive (fingers crossed) and I finally can say that T became an non issue and I can live life as before again (of course protecting my ears in noisy environments).
Maybe I can consider myself lucky as one of the 80% for which it will get better overtime and even better one of the people who get rid of T.
I wish all of you (and my heart goes out to the ones with severe T) the same positive progression of T as I currently experience.
However, still afraid that in the future it may get worse again, therefore, still hoping for the magic medication or cure but again I can't look into the future and try to live life again to the fullest!
But I feel the time is right now to do so.
Something I didn't believe when confronted with T after onset the replies telling that it will get better > In my case indeed it did/does get better and better!
I'm now 5 months into T and compared to the peak level, the 'left over' T is around 20% of that volume (in general only noticeable in (very) quite environments (like bedroom).
It also reacts less and less to the environment. In the beginning my T was very reactive to even moderate noises which drove me crazy and made me very afraid.
My progression and reaction towards T I believe is a combination of habituation and more important actual lowering of the volume and sound reaction.
What did I actually do;
- Infusion therapy in Germany (I still belief it lowered my T for 30-40%)
- Sound therapies like ACRN, notched music (which removed the high pitch 4kHz ringing, left over broadband alike noises)
- Started to take magnesium, zinc and B vitamins as well fish oil.
I believe magnesium and fish oil helped the most.
- Also I'm now on Sound Therapy Perth (I was and still skeptical) but it looks this provides another help in the reduction of my T to acceptable levels and sometimes it even feels I do no longer have T when plugging my ears (only to a level I always have had, like hearing the sea / white noise when putting a shell against your ear)
Honestly, I of course can't tell whether any of the things I do or did contributed to the current situation or that it is just my brain adapting (plasticity) on its own to the new situation. You never can tell for sure (since in fact I'm still in the post acute phase of T).
I also exposed myself to louder and louder sounds. I even went to events, of course with earplugs (26 dB reduction) where noise levels reaches levels of 100 dB and above.
Thanks to the earplugs my ears where OK afterwards.
Compared to the past my ears where always ringing after such events (like for the majority of people). I like the idea that I now protect my ears for further decline and regret not to find out earlier about earplugs. I still enjoy the music and the funniest part of it; I even can have better conversation with people around me than before using earplugs. Another benefit; myself is shouting less no hoarse voice anymore in the morning. Of course the first couples of times I was afraid of exposing myself to these levels. What if….
However, it looks I can withstand (fingers crossed) these levels when using earplugs. I know this will not count for everyone with T and I don't know what the future will hold for me as well.
But it is told many times, also on this forum, try to pick up your 'normal' life again and do the things you did before onset of T. Taken into account the necessary precautions and sensibility of course.
With the last event Carnival reception for the new local prince (Yep I live in a region of the Netherlands where they celebrate this thing called Carnival.) my girlfriend finally concluded that the noise levels reach ridiculous levels indeed (shouting to each other to have a 'conversation')
See decided, although see does not yet have T (although a slight ring when searching for it, but no negative reaction towards it (yet)), that it is wise to use earplugs.
Man, I'm so glad see finally realized this. I told her that the investment of 150/200 € is all spent well. That is no investment considering the possible consequences of T and the hearing loss over time!
Even some other people around me are slowly realizing that it could be wise to wear earplugs in such environments! Also when I told them that wearing earplugs improves the conversations and that the experience of music isn't jeopardized at all!
I will continue to write about my progression, hopefully this gives some hope to others on this forum, that indeed it can get better overtime. How hard to believe initially, especially when just confronted with this dreadful T.
Hopefully the progression continues positive (fingers crossed) and I finally can say that T became an non issue and I can live life as before again (of course protecting my ears in noisy environments).
Maybe I can consider myself lucky as one of the 80% for which it will get better overtime and even better one of the people who get rid of T.
I wish all of you (and my heart goes out to the ones with severe T) the same positive progression of T as I currently experience.
However, still afraid that in the future it may get worse again, therefore, still hoping for the magic medication or cure but again I can't look into the future and try to live life again to the fullest!
Founder
