It's Not Worth It...

Holly1987

Member
Author
Benefactor
Sep 22, 2017
349
Tinnitus Since
09/2017
Cause of Tinnitus
Unknown
I went into counselling for my tinnitus and was advised to try and attend noisy social events (using protection) as I was becoming a recluse, I was told "you have to live your life" etc etc..

Now I'm not here to be an alarmist and I don't want to scare anyone but guys it's just not worth it... I attended an outdoor concert that wasn't even that loud, I sat up the back and wore ear plugs and it STILL spiked my tinnitus. The spike wasn't from anxiety about the concert, I was very relaxed and optimistic.

I will never attend another concert again, this week was dreadful and this spike has put me in a bad place again. It's really not worth it... I now know I absolutely cannot do these things anymore.
 
I hope your spike goes down soon. :huganimation:I have completely given up concerts too. It's such a bummer, but you're right, it's not worth the risk.

Don't become a recluse though. Just stick to quiet places.
 
Hello Holly Sorry to hear about your T. and the concert. I too am new to this and I too am facing some of the tougher questions, re. doing what you used to do, living a life. I don't know if this will help you, but I thought I would share how I am trying to 'habituate' aka. adjusting to the world of T. as I call it. I laid low for the first while, staying at home listening to the tv and music and sound therapy websites. To keep my sanity I would go out for a 1 hour walk at 1 in the morning when it is quiet. But I can't do that forever, and there are a number of things I love doing and what to get back to. I am off for the summer (I am a teacher) and I will be taking some time off to better control how I reintroduce my ears in the early stages of healing (the school I am in is a loud school, so my doctor agreed this would be a prudent action). I know I am very lucky in that I had this opportunity to control my conditions around me.


So I am starting slow and introducing my ears to experiences slowly and contained, but with the intent of learning to live again. I too have custom earplugs (25 bd) and I am getting used to them. I have ordered 15 db filters for them as well. I have started to go out to a Starbucks that is quiet in the early afternoon, have 1 small cup of coffee, breathe deeply and read alittle (something I love doing). I love driving (hence the 2 cars in the photo), but I have curtailed my longer trips in the Camaro as I was worried it affected my T., but I intend in the next couple of weeks to explore longer trips with different db earplugs. My 1970 convertible (the green car) can sit til next summer and that is a concern, but rather than focus on it, panick, I tell myself to deal with it later. I know deep down that my love for the open road need not die, the road will be there next year, and if all else fails I can get a quieter car than my Camaro not great, but not the end of the world.


So really what I am doing is changing my mindset to explore other aspects of living. You can view the problems of life as problems, or opportunities to grow and learn. I have choosen the latter. Sometimes, it is hard, my right ear is angry for 6 hours straight, and just when it quiets down, my left takes its place. I can only get through it by focusing past it, feeling it will get better, and that it will take time. It is that hope thing that really keeps me going. I feel lucky in some ways as it is fluctuating, and I think I have even had some quiet times in one ear or the other, but I know that unless I take care of my ears, and learn from my mistakes about what angers my ears, as you did with the concert, as I did by driving longer than I should, after which I too paid a price. My slowly going forward, incremental approach seems to be working for me. It is not fun, nor easy, but it is the road I am on and must take to heal and habituate. I suggest you read some of the posts in the Success Stories section on the home page (towards the bottom), and realize that can be you too.

I know I may make mistakes, and take a spike for it, but that just means I am human so long as I learn to make less of them as I attempt to not just survive, but also thrive in this world of T. I know by getting out I am redirecting my mind away from my T with distractions, which is very important, or you can too easily sit at home staring at the wall listening to it, which is not helpful. As I progress and as I heal I may be able to go to concerts to. I used to go to classical concerts and I enjoyed them very much. It just means that I must be more aware of what they are playing. Some classical pieces are wonderful, and not in your face, some of them end with a crash and band (William Tell's Overature, or the Overature to 1812) which I will have to avoid.

So one step at a time, with ear plugs, feeling like an overprotective parent to myself and slowly getting back to it. If I can do it, I know you can too. So here is to the both of us on our road to living.

Hope this helps.

JohnCC
 
I went into counselling for my tinnitus and was advised to try and attend noisy social events (using protection) as I was becoming a recluse, I was told "you have to live your life" etc etc..

Now I'm not here to be an alarmist and I don't want to scare anyone but guys it's just not worth it... I attended an outdoor concert that wasn't even that loud, I sat up the back and wore ear plugs and it STILL spiked my tinnitus. The spike wasn't from anxiety about the concert, I was very relaxed and optimistic.

I will never attend another concert again, this week was dreadful and this spike has put me in a bad place again. It's really not worth it... I now know I absolutely cannot do these things anymore.
Different doctors have different specialties. I think that's the problem here. Therapists just don't understand tinnitus. I would have consulted an audiologist.
 
Holly, sorry the outdoor concert caused your tinnitus to spike. It might also for me I just don't remember. Sometimes my T cooperates and sometimes it doesn't. I just never know so I take a chance at times and really hope for the best. I know I won't go to an indoor concert; those days are over...unless of course it's a McCartney concert, I might need to go to that. You know what's best for you. Possibly you'll try again in the future.
Please know that you are not alone with this. Most of us go through similar circumstances but we all understand.
Mike
 
Different doctors have different specialties. I think that's the problem here. Therapists just don't understand tinnitus. I would have consulted an audiologist.
I basically agree, but there are some therapists with tinnitus themselves, with knowledge of how to treat patients with it. On the other hand, I know a therapist with tinnitus, who habituated long ago, and has forgotten if it ever bothered him. He does not attempt to treat patients for it.
 
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I went into counselling for my tinnitus and was advised to try and attend noisy social events (using protection) as I was becoming a recluse, I was told "you have to live your life" etc etc..

That's a bit of an odd piece of advice. Generally the advice tries to encourage you to socialize, but I've never heard of encouragements towards "noisy social events". There are plenty of social events that aren't noisy. The goal is for you to not become a recluse, not for you to be exposed to loud noises.
 
Different doctors have different specialties. I think that's the problem here. Therapists just don't understand tinnitus. I would have consulted an audiologist.

Audiologist dont know Tinnitus either. My AUdiloigist has noise induced tinnitus and still has a hard time understanding things like ear fulness, hyperacusis, what a drop on 4khz means, etc.
 
That's a bit of an odd piece of advice. Generally the advice tries to encourage you to socialize, but I've never heard of encouragements towards "noisy social events". There are plenty of social events that aren't noisy. The goal is for you to not become a recluse, not for you to be exposed to loud noises.

It was something he encouraged so I could see that attending something such as a concert so long as I took precautions (wore ear plugs and sat up the back) wasn't a terrifying or dangerous thing.
 
I went into counselling for my tinnitus and was advised to try and attend noisy social events (using protection) as I was becoming a recluse, I was told "you have to live your life" etc etc..

Now I'm not here to be an alarmist and I don't want to scare anyone but guys it's just not worth it... I attended an outdoor concert that wasn't even that loud, I sat up the back and wore ear plugs and it STILL spiked my tinnitus. The spike wasn't from anxiety about the concert, I was very relaxed and optimistic.

I will never attend another concert again, this week was dreadful and this spike has put me in a bad place again. It's really not worth it... I now know I absolutely cannot do these things anymore.

I would be so afraid of going to a concert. I wouldnt do it if somewone gave me one million. I am too afraid of making it even worse as is. Even if I had MILD T I wouldn't go either.
 
I would be so afraid of going to a concert. I wouldnt do it if somewone gave me one million. I am too afraid of making it even worse as is. Even if I had MILD T I wouldn't go either.


It was one of my biggest fears and something he felt I needed to address (I'm also scared of the movies, restaurants, shopping malls in case of fire alarms) I thought I was just extremely paranoid and maybe going a bit mad but I'm bloody not!! My fears are all completely justified.
 
It was one of my biggest fears and something he felt I needed to address (I'm also scared of the movies, restaurants, shopping malls in case of fire alarms) I thought I was just extremely paranoid and maybe going a bit mad but I'm bloody not!! My fears are all completely justified.

Last night I was exposed to a very loud car alarm in my garage. Guess what nothing happened? I guess when you have Severe T it cant spike further lol
 
It was one of my biggest fears and something he felt I needed to address (I'm also scared of the movies, restaurants, shopping malls in case of fire alarms) I thought I was just extremely paranoid and maybe going a bit mad but I'm bloody not!! My fears are all completely justified.
This is why I am skeptical about CBT for tinnitus. CBT is great when you're afraid of things you shouldn't be afraid of. If you're afraid of a kitten, get CBT. If you're afraid of a lion, stay away from lions.
 
This is why I am skeptical about CBT for tinnitus. CBT is great when you're afraid of things you shouldn't be afraid of. If you're afraid of a kitten, get CBT. If you're afraid of a lion, stay away from lions.

CBT and TRT are crap. Unless THEY can reduce my T from a 8 to a 2 and get rid of my hyperacusis so when I urinate it dosent hurt my ears, or when I talk, or when others talk...then SURE. We need to stop pushing for TRT and push for medical treatments that will help us. Even people who have Mild T have to push for a cure/treatment. I know they live ok lives but they can do us who are suffering immensely to get some relief, also if their T gets worse they have something to fall back on.
 
I know most people on this forum do not have chronic pain. As someone with chronic pain there are a lot of things that I can't do anymore. Over the course of three years I've had to mourn for the things that I can't do and have tried to find new things to fill up and add to my life instead. I am at my year mark for tinnitus and I have to say...

Tinnitus is very, very comparable to chronic pain in a lot of ways. Just like it, I think we have to be aware of what kinds of things actively harm us (and what does harm us varies from person to person). We have to discontinue things that harm us no matter what. But, just like with chronic pain, I've found that there are certain kinds of loud sounds that I can tolerate in small doses.

Concerts are certainly not one of those however. Hope you find something to replace your loss soon! Hope that whatever it is you come to love and cherish.
 
I have to say good bye to many things... But, I can not find new replacements.
There is a word to describe the situation -- "DISABLED".

I'm torn on the subject. Because like I said I also have chronic pain in addition to tinnitus. And while you're not wrong per say... I don't really feel comfortable saying that tinnitus is in the same league as that and other disabilities?

If your tinnitus is loud enough to the point where you can't concentrate, then yeah. Otherwise, I'd say most of the limiting factors for people with tinnitus is just that the modern era is so noise polluted. I'm sure a concert is very enjoyable but tinnitus or no tinnitus, it's just not healthy for your ears, and not natural at all.

Fireworks, headphones, movie theaters, fire alarms... these aren't things that we are really meant to be subjected to. Tinnitus certainly seems to limit one's ability to socialize because for some reason social activities lean towards loud events.

The Chronic pain side of me says, there are absolutely new things to fill your life with. Perhaps try and engage in some that are more physically inclined.
 
"Tinnitus accounts for almost 10% of all new VA claims and over 7% of total VA disabilities being compensated. Of all recipients of VA compensation; over 1.4 million veterans are receiving compensation for tinnitus; 50% more than the next highest disability, hearing loss."

Over 1.4 million of American veterans receive disability compensation. They serve the country by exposing their ears to loud weaponry and other loud environments. My salute to them !
 

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