I've Hit Rock Bottom

Ed209

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Jul 20, 2015
5,440
Tinnitus Since
07/2015
I can't think of anywhere else to turn. I generally bottle everything up inside which gives me no outlet, but right now my suffering has hit the stratosphere. I need to add that this is not tinnitus related, but the forum I used to use 15 years ago has long gone.

I've never told this to anyone and it has affected my life since I was 13. Only my mom, brother and wife know. I had something called pectus excavatum - I know from statistics it's likely many on here probably also have it. It developed when I was around 12 and caused me massive psychological and pyshical torment. Its a long story that ends with me getting a procedure done that wasn't the one I researched at the age of 17. I felt at the time if I didn't take the opportunity I'd never get it fixed so I did. I had something called the Ravitch procedure (I wanted the Nuss procedure) which is where they use a bone saw to cut your chest open, break every rib away from the sternum, reposition everything and then insert a metal bar to hold everything together for 6 months while it heals. After about probably 6 weeks, I went to the emergency room because I had a buldge by one of my ribs. I presumed the bar was slipping and went to get an X-ray at my local hospital (not the one that done the procedure). They refused to give me an X-ray, because the Dr said it was my rib, even though I strenuously disagreed and knew something was seriously wrong. I was sent home that night only to awaken the following day with the worst pain you can ever imagine. I was rushed back to the hospital that operated on me to be told the bar had carved through my rib and had landed on my heart. He said I was lucky to be alive as the bar was centimetres from slicing my heart. The torment of the whole thing clouds me to this day. To make matters worse I developed a serious infection which made my stitches burst open whilst an unstoppable flow of browny red infectious pus literally sprayed out of me uncontrollably. I could see my ribs through the open wound. I had to be rushed back again, this happened whilst I was at home.

Over the next two years I was severely depressed. They offered to fix the situation but I just couldn't put myself through it again; then one day I decided something had to be done, so I decided to go through with it. After the second surgery I realised I appeared to have significant tissue (muscle damage) which just added to all my problems. I had been training before all this and had well defined chest muscles that were now in my opinion butchered. To resolve this I sought the help of a top consultant on Harley Street. I had heard about this new permanent filler, that resembled muscle called bio alcamid. It was fairly new so he told me there wasn't any long term data on it but the 5 year data looked promising. I paid £5000 to have it done. I was really pleased for around the first two years but then I noticed it was migrating a little (which it wasn't supposed to) at this point my life was on the up so I kind of locked all this stuff away in a very dark corner of my mind. I never acknowledged it for the last 10 or more years; I genuinely thought it was over.

I don't know if it's the stress and anxiety I've been under recently that has bought about physical symptoms or not, but I started to notice a dull feeling in my chest that I just haven't been able to shake for the last 4 weeks. In the same way tinnitus works, the more I focussed on it the worse it got, until I couldn't tell anymore if the feelings were real or anxiety.

So, I started reading about bio alcamid which I haven't looked into since I had it injected. It's nothing but horror stories online. The product is no longer used and most people are having it removed because of infection complications and other serious issues. To say that dark corner of my brain was reopened is an understatement. I had an overwhelming flood of emotion that hit me like a ton of bricks. I was literally shaking. Obviously some part of me never let go and it has probably always been secretly lurking in the background but I've never acknowledged it.

Now I'm at a point where I can't handle the emotions and I can't function. The first place I thought of was here, because the support here is second to none. I've taken my own advice and going to book an appointment to see the consultant again who gave me the injections. Secondly I'm going to have to get counselling, because I realise I have some serious mental baggage that needs lifting. I've never wanted to go near anti-depressants, the gym has always been my sanctuary, but I might have to.

I never open up to anyone so writing this story is one of the hardest things I've ever done. Even my closest friends and family know nothing about any of this. At the time of my surgeries I made up fake stories about why I was in hospital, because I always felt intense shame at the thought of anyone knowing I had a pectus deformity. I can't even type that word I've got that many issues with it.

My fear now is that I'll never get over it again. I'm going to be left looking disfigured.
 
Sorry to hear that man, I figure it's an other heavy burden to carry. But you've gone through this all, I am sure you can deal with this as well!
Don't feel ashamed for medical conditions though!
 
This story sounds a lot worse than having tinnitus - steel bars sliding on the heart ! Holy crap I hope you get better mate.
 
Reading this it sounds like you are a real fighter @Ed209. Don't give into it fella. Your second to last paragraph sounds like a great plan to me ! You have to escape the negative thought spiral that comes with anxiety and depression. Its a common process.

How you do that is personal, but I am sure you will find your way. I do think your friends and family are worth confiding in. Sharing can be a massive relief even if they don't fully understand. A problem shared is often a problem halved.

Hope you find some peace today buddy.
 
Sorry to hear that man, I figure it's an other heavy burden to carry. But you've gone through this all, I am sure you can deal with this as well!
Don't feel ashamed for medical conditions though!

Thanks Jurgen. This literally ruined my childhood and gave me serious depression. It stopped me from going swimming (which I loved), going to beaches etc There was always that girl issue, will they freak out etc. I used to wear a vest that would never come off no matter what. I can honestly say for 10 years it's had no affect on me, but psychologically it probably has, because they say mental baggage like this gets compartmentalised if it's not addressed.

I haven't slept all week and those old suicidal thoughts come straight back, as if it was only last week that that bar nearly killed me. It's been relentless, just raw emotion pouring out of me that I can't hold back. I've had to cancel work and I haven't really been able to get out of bed to face the world.

Of course I've got mega tinnitus on top of this, because in my case, stress is like a barometer that sends my T crazy. The last time I felt like this was when my T first worsened and I joined this forum. Thats the only pain I could relate to the suffering that the T caused me was my history. I kind of felt pre-trained, or hardened to extreme suffering on some level which probably helped me. Everyone has a tipping point though and right now I'm not coping at all. It was like a switch was flicked and my life just fell to pieces.

I have genuinely been doing really well the last few months. Everything was on the up, and I just wanted to give something back on here for the support I received, by hanging around and trying to help out in my own way.
 
Sorry to hear of your situation @Ed209 It must have taken a lot for you to divulge something so personal. Life is problematic and each of us have our turn at the wheel. I agree with @JurgenG, there's nothing to feel ashamed of. The positivity and wise counsel that you have given to so many in this forum, will now give you the strength and determination to succeed in whatever comes your way.
I wish you well.
Michael
 
Sorry about your problems. Wishing you all the best. I think we could all talk about other problems which we keep bottled up, I certainly do.
You've been a great support on here for so many people, we are here for you.
 
Hi Ed209, just to let you know, one of my best mates have the condition same as yours!! I met him as a swimmer we never saw him different !! i remember he use to tell us about how good the excersise of lap swimming was to him, so just to let you know how things were from the outside .
 
Hi Ed!

I am so sorry to hear that you're having a hard time right now, you have always been a great supporter of everyone here at the forum since you joined. I wish I could help you in some kind of way, and if there is anything anyone here can do, let us know.

I know you can overcome this, but I know it is hard and probably many detours ahead until you get onto the right path. Please don't feel ashamed of your medical condition, there is nothing wrong or weird about it at all. We know how it is to suffer behind a smile or a fake image we make up to hid it from others to see, and I am happy that you found the courage to share it with us here. I hope you feel better both mentally and physically soon and don't hesitate to share your thoughts of feelings here. We might not be able to take the pain away from you but we will be here to listen and support you. Just like you have done for so many of us throughout the year.

You are a fighter and I believe in you, you will make through this and you will find your way out of the dark place you are. You are an amazing person and don't ever forget that.

Best of luck, I am rooting for you!
 
Ed209,
I know life can be tough and everything your going through on top of tinnitus is going to take strength and time and counselling.
Thank you for opening up to your friends on here and everyone you have given help and support too.
Depression is hard and really bring you down but with time and support and medication you will start to rebuilding your life and self worth and confidence and find the happy you again.
We will all help you and know you are loved by us all on here.
Dont put no pressure on yourself and off load stress and try to relax.
Our Mind can run a race with feelings and over thinking things but try to deal with one hour or day at a time.
You will get through this I know you will.
Keep posting .....lots of love glynis x
 
Thanks for the support everyone. I know this pops up a lot on here but I too have feelings of guilt for accepting the ravitch procedure. The £5000 I spent trying to correct other issues that it caused would have paid for the much better and much more modern Nuss procedure. But what did I know, I was 19 when the procedure was finally done. It still haunts me, but I've locked all this away for the past 10 years. After reading about the dangers of Bio Alcamid my mind just lost it. I feel like I've gone back in time to square one again, on something that I thought was ancient history. I had my tinnitus problems to worry about! I start to get through that and then I get this all over again.

I've booked an appointment to see the consultant but the earliest he can see me is the 24th March. I think he will say it needs to be removed and I fear for my sanity on what lies beneath it. My mind and anxiety is saying I'm going to look grotesquely disfigured, and I've just stopped functioning because of it. I still don't know if the feeling in my chest is real or just anxiety causing hypersensitivity. In either case it's forced me to face this head on. My wife would tell you that in the last 10 years I've never looked in a mirror with my top off. Basically, if I caught a view it could potentially distress me but I learnt to bury the emotion and it stopped bothering me entirely. I honestly can't believe this is happening.

I thank you all sincerely. Your words really do make a difference when everything just seems unbelievably cruel. No one knows mental torture better than tinnitus sufferers.

@glynis, I know you're not doing too well yourself, so I hope you're being looked after. Take care.
 
@Ed209,
Be proud of who you are and what you look like as our bodies are only a vessel and its the person inside that is most presious regarding of size or shape or colour or disability......
I had to have my top teeth out not long ago and they looked lovely and now a lovely denture but I dont like looking in a mirror with out them in but hey...the mirror wont get the better of me so If I do look at my self with no teeth in I give my self a big gummy smile!!!
Hope your laughing now ....lots of love glynis xxx
 
Hi @Ed209

I'm sorry that you have to deal with this now.

The thing is, you are stronger than you think, and you've gone through a lot of crap related to this already. More of it is not going to break you. It's just a blip on your life curve, and once you deal with it it'll just be a bad memory.

The good thing about science is that it just improves with time. While it is probably scary to think that you'd have to get back into the arena, you now have access to much better tools, information, and knowledge. Not only that, you are now a much more experienced human being who will be able to challenge doctors when you feel they are not taking care of you appropriately.

Try to stay away from catastrophic thinking as you know it is not rational and has no bearing with reality.

We are all rooting for you in here, and we're here when you need us, just like you are here when we need you.

Good luck!
Take care.
 
I'm not good with words so I'll just say: you can do this Ed, you're stronger than 99% of people. It's just an another thing you will have to go through.

I'm so sorry it's happening to you.

Take care Ed.
 
I'm not good with words so I'll just say: you can do this Ed, you're stronger than 99% of people. It's just an another thing you will have to go through. I'm so sorry it's happening to you. Take care Ed.
Your words are poignant and sincere @maltese and that is all that matters. @Ed209 What doesn't kill us makes us stronger. Your character and inner strength will see you through to the finish line, and you'll look back and marvel at how far you've come...
All the best
Michael
 
Ed, im also not good with words ( and also i suck at writing in english )
but im glad you had the courage to seek support and share this very personal story, you have our support.

i dont wanna sound like a broken record, but tbh by reading yo your story i can easily tell you are a real fighter, you have the ability to overcome this!! your value as a human is limitless and you deserve to get through this and get so much better.
that last two paragraph you wrote sound to me like a plan, so you already know what to do, and im sure it will have a positive outcome, just get the attention you need.

i also can relate to you "some how" when i was growing up i had issues with my body (cause i was chubby) etc ( i know its not a big issue like having pectus deformity ) but i can imagine how you felt as a kid, because i was very depressed and it had a huge impact on my self esteem, so i think that getting counselling will be the best option out there. its gonna help you heal those open wounds from the past.

you deserve to feel better! sending you a hug and lots of good vibes man!
 
@Louise
And why is that ? He almost died following this procedure - Is this better than having tinnitus ?
 
@Louise
And why is that ? He almost died following this procedure - Is this better than having tinnitus ?

Yes, some people think so - there are people on here who want to die because of it, and purely because of it. You just insulted all those people.

Don't post any more, I'm not getting into a shouting match with you over it. I've said my piece.
 
@Louise

Insulting people who think T is worse than dying in pain from metal bars piercing ones heart ?

This thread is about fighting to stay alive.

What you wrote is insulting to the OP and to any one facing worse issues than T.
 
Yes, some people think so - there are people on here who want to die because of it, and purely because of it. You just insulted all those people.

Don't post any more, I'm not getting into a shouting match with you over it. I've said my piece.

Louise, I can assure you Bobby didn't mean anything by that. We have debated many things in the past, and I can safely say he has integrity. I respect anyone who sticks to what they believe and says it with conviction.

He knows how bad tinnitus is, and has stuck up for people many times on here from what I've witnessed. I'm well aware this is off-topic and I really didn't want to burden anyone here, but this morning had me broken. I just needed to speak to someone other than my wife about it.
 
@Ed209 I appreciate your pain. And everyone would welcome you here to find solace. The issue I have is with someone else casting judgement on whose pain is worse. I'm simply not standing for that. Not when there are genuine cases of suicide because of Tinnitus and many, many people who are suicidal purely because of Tinnitus.

I meant no offence to you at all.

Let's all leave it here now - I've said what I need to and have reported that earlier post.
 
I had an acquaintance growing up that was affected by this. Admittedly as young, stupid, boys we were shitty about it to him. It's nothing to hide though. I've got some mechanical / postural issues also.

This is a T forum, but I think its fine to vent about anything.
 
I can't think of anywhere else to turn. I generally bottle everything up inside which gives me no outlet, but right now my suffering has hit the stratosphere. I need to add that this is not tinnitus related, but the forum I used to use 15 years ago has long gone.

I've never told this to anyone and it has affected my life since I was 13. Only my mom, brother and wife know. I had something called pectus excavatum - I know from statistics it's likely many on here probably also have it. It developed when I was around 12 and caused me massive psychological and pyshical torment. Its a long story that ends with me getting a procedure done that wasn't the one I researched at the age of 17. I felt at the time if I didn't take the opportunity I'd never get it fixed so I did. I had something called the Ravitch procedure (I wanted the Nuss procedure) which is where they use a bone saw to cut your chest open, break every rib away from the sternum, reposition everything and then insert a metal bar to hold everything together for 6 months while it heals. After about probably 6 weeks, I went to the emergency room because I had a buldge by one of my ribs. I presumed the bar was slipping and went to get an X-ray at my local hospital (not the one that done the procedure). They refused to give me an X-ray, because the Dr said it was my rib, even though I strenuously disagreed and knew something was seriously wrong. I was sent home that night only to awaken the following day with the worst pain you can ever imagine. I was rushed back to the hospital that operated on me to be told the bar had carved through my rib and had landed on my heart. He said I was lucky to be alive as the bar was centimetres from slicing my heart. The torment of the whole thing clouds me to this day. To make matters worse I developed a serious infection which made my stitches burst open whilst an unstoppable flow of browny red infectious pus literally sprayed out of me uncontrollably. I could see my ribs through the open wound. I had to be rushed back again, this happened whilst I was at home.

Over the next two years I was severely depressed. They offered to fix the situation but I just couldn't put myself through it again; then one day I decided something had to be done, so I decided to go through with it. After the second surgery I realised I appeared to have significant tissue (muscle damage) which just added to all my problems. I had been training before all this and had well defined chest muscles that were now in my opinion butchered. To resolve this I sought the help of a top consultant on Harley Street. I had heard about this new permanent filler, that resembled muscle called bio alcamid. It was fairly new so he told me there wasn't any long term data on it but the 5 year data looked promising. I paid £5000 to have it done. I was really pleased for around the first two years but then I noticed it was migrating a little (which it wasn't supposed to) at this point my life was on the up so I kind of locked all this stuff away in a very dark corner of my mind. I never acknowledged it for the last 10 or more years; I genuinely thought it was over.

I don't know if it's the stress and anxiety I've been under recently that has bought about physical symptoms or not, but I started to notice a dull feeling in my chest that I just haven't been able to shake for the last 4 weeks. In the same way tinnitus works, the more I focussed on it the worse it got, until I couldn't tell anymore if the feelings were real or anxiety.

So, I started reading about bio alcamid which I haven't looked into since I had it injected. It's nothing but horror stories online. The product is no longer used and most people are having it removed because of infection complications and other serious issues. To say that dark corner of my brain was reopened is an understatement. I had an overwhelming flood of emotion that hit me like a ton of bricks. I was literally shaking. Obviously some part of me never let go and it has probably always been secretly lurking in the background but I've never acknowledged it.

Now I'm at a point where I can't handle the emotions and I can't function. The first place I thought of was here, because the support here is second to none. I've taken my own advice and going to book an appointment to see the consultant again who gave me the injections. Secondly I'm going to have to get counselling, because I realise I have some serious mental baggage that needs lifting. I've never wanted to go near anti-depressants, the gym has always been my sanctuary, but I might have to.

I never open up to anyone so writing this story is one of the hardest things I've ever done. Even my closest friends and family know nothing about any of this. At the time of my surgeries I made up fake stories about why I was in hospital, because I always felt intense shame at the thought of anyone knowing I had a pectus deformity. I can't even type that word I've got that many issues with it.

My fear now is that I'll never get over it again. I'm going to be left looking disfigured.

I wonder if part of it is due to the numbness you feel in your chest due to the nerves being cut and combining that with the anxiety which can cause pain in the chest and then the focusing on it. Combine that with the high anxiety and depression state of your mind, it is a very powerful situation. Then again, something could seriously be wrong so you should get that checked out. I hope you feel better soon.
 
I'm overwhelmed by the support; it just shows how truly awesome this place is. I thank you all wholeheartedly for taking the time to write messages. It honestly all means A LOT to me. I didn't realise how much of an impact the written word would have on my soul.

Thanks everyone.
 
Ed , many of your posts helped me even though i don't think my t is that bad. I hope you can get through this and i am sure you will!
 

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