I don't see much new information in this article that hasn't been discussed in previous papers.
I definitely don't keep up with the research as much as you guys, but if it's dated this month in the Frontiers in Neurology, my hope is more medical and research professionals will have come across it this month.
That depends, what kind of treatment are you looking for?
It's one-sided hyperacusis so I've thought maybe Clomipramine might not work, though I still want to try it after @Trafalgar D's great reviews months later. Then I have the Dr. Silverstein surgery as an option. He'll only operate on one ear at a time anyways, and one ear is all I need.
I don't think it's really difficult to get a Clomipramine script. Should definitely be feasible even without any supporting papers.
After reading your post, I looked up Dr. Boedts. His clinic is a 2-hour drive away from me, so it could be pretty interesting for me to go there.
Yeah, I don't think you need to commit to Lenire at all. I'd be willing to try it if I could tolerate it, but just last night, I tried a bimodal stimulation YouTube video for tinnitus relief and got almost immediate discomfort from the high-pitched tones. Kind of nuts that it could be so triggering. Clearly, something is wrong at those higher frequencies, and that has to be where a lot of us here have hidden hearing loss.
Thanks so much, man. I could use a vacation maybe this summer to some quiet region in Europe, but maybe I can make a stop through Gent. Europe is where I sustained my acoustic trauma in a nightclub. So maybe the cure or some relief is on the old continent too. It could've happened just as easily in the USA too. We're an unnecessarily loud nation, and I'd be willing to bet the US military sustains more noise injuries than any other population on the planet. It's actually a great data set and patient population, and I'm surprised the US doesn't have their equivalent of a Dr. Boedts yet. ENTs and neurologists don't want to fully own the issue, apparently, here.
I wish we could get some doctors to read these Johns Hopkins articles on hyperacusis and see if they can come up with some sort of solution.
Yes, the more I read, the more I think it's (tinnitus, hyperacusis, noxacusis) all pain based.
Yes, I saw that, thank you.
What is your opinion of Arnaud Norena's hypothesis?
What have tinnitus and loudness hyperacusis to do with pain, if they don't actually cause pain?
My tinnitus causes pain. If it didn't, it would just be noise. It is pain the same way that fingernails on a blackboard are painful to hear.
The ATA sent an email today on tinnitus research grants and I wish they would just divert some of that funding to this research. I wish this was enough of a theory for the neurology and pharmacology fields to repurpose an existing drug to treat hyperacusis.
Same here. Strong contractions in both ears (even my good ear) with the slightest mechanical sounds. Along with tinnitus and hyperacusis. I guess I've read it's a type of myoclonic tinnitus?
They do! Loudness hyperacusis is probably caused by the same nociceptors with the difference that you only get the uncomfortable feeling, not pain. For me, since a few months, tinnitus has become a constant pain. I can distinguish different types of tinnitus. My (variable) tinnitus (that is probably peripheral caused) is experienced as a constant pain. I also have different constant stable tonal tinnitus sounds in the brain, which can be annoying, but harmless. The problem is, up till recently, researchers only focused on the brain tinnitus; most of them still do.
When you talk about peripheral tinnitus causing you pain, is it somatosensory tinnitus (jaw, neck, Eustachian tube, etc.)?
Frankly, I think it's a good comparison. I can only compare the sound to a type of chronic pain in a qualitative manner -- it doesn't go away, can't really be treated, and saps your attention constantly.
Yes, I have had somatosensory tinnitus (neck/jaw) since it escalated in 2018. Currently, when I just talk a bit too much, my tinnitus gets worse. Then, for the next 1-2 days, I experience more pain, like someone has slapped me in my face/ear. My head feels like I have a hangover and went to a concert or party that was much too loud.
Bupivacaine [?] injections, tympanic patches and gel injected in my Eustachian tube, I think.
And none of it helped at all? I've got a video meeting with him next week. I was really hoping he could help.
Too bad it didn't bring you any relief. Where did he inject Bupivacaine? Didn't you get any relief at all, not even temporary?
He injected it in many places around my face. I don't remember exactly. No relief at all.
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