I'm approaching the 6 week mark on my second treatment cycle of Lenire. In terms of events of note I had a period of 3 days a couple weeks ago that were so good that for the first time I started to imagine it was possible to get better. Sadly that remarkable streak hasn't repeated. Other than that all is the same as with my previous reports. That is the tinnitus I experience is lowered slightly but significantly under this treatment. I am trying to get a replacement tongue tip for when this one dies out, a bit more tricky than it should be as they don't ship directly to the US, and intend on using this in some form for the long term.
My overall person experience with Lenire is that my quality of life is better.
Objective(-ish) measurements:
I still have tinnitus 24/7 which due to its high frequency is relatively difficult to mask, but it is both objectively (for a sound that only I can hear
) quieter and less 'mobile'. Prior and between treatments (I took a 3 month break) it was an incredibly rare circumstance that I wouldn't be able to hear it in the shower, now it is a 50-50 event. Prior to treatment it was never maskable in a noisy car, now maybe 10% of the time it gets drowned out. In terms of 'mobile' sounds, I mean crackles, electric shocks, cricketing and the like, these were always the worst for me both because they are more difficult to not actively notice and that they push into ever higher more painful frequencies. Prior and between treatments almost every day, especially later in the day I would have 'mobile' sounds, now it is maybe one day in five that I experience some form of this.
Subjective measurements:
So the other marker I am using in considering the efficacy of Lenire is whether I am behaving less like an injured animal. There are probably a lot of things that I can cite, but I'll focus on three. 1) I complain about the tinnitus far less. I've confirmed this with my wife. 2) I can watch TV with my family. Before and between treatments watching TV, trying to focus on the dialogue, was just too painful. It just sucked. There is a very clear behavioral marker that I now watch TV with the family without really much thought. 3) I feel/think about/notice the tinnitus much less. Before I started the treatment in January I noticed/thought about the tinnitus >95% of the time. Towards the end of the first round of treatment maybe that dropped to 30% of time. I don't have a stop watch on it but I imagine that now I am actively aware of it around <20% of the time. Which means at least 80% of the time I feel somewhat habituated.
I still have the occasional bad day or portion of a day, but I haven't had a multi-day/week tough ride since week 2 of the the second round of the treatment.
Last thoughts and plans going forward:
I was uncertain as to the efficacy of Lenire during my first round of treatment because I wasn't sure how much of what I was experiencing was a natural habituation/healing that may have taken place regardless. When I did my 3 month washout after about 6 weeks I regressed to my pre-treatment state. Upon restarting treatment I returned to my improved state within the first 2 weeks and appear to be remaining there. Due to this I am quite certain that my improvements are not placebo effect.
Based on my limited experience it does not appear that the improvement is permanent. I believe this is consistent with what Susan Shore reported with her treatment.
Going forward I am interested in figuring out what a sustaining protocol might look like. Are washouts advisable? I believe that Neuromod knows very little about what variations in use would do. I won't do it (I'm afraid) but what if you did 1.5 or 2 hours a day? Is 30 minutes enough? Does turning up the intensity make difference? After getting a benefit can I use it every other day? I never got a reprogramming - PS1 only, does it make a difference? I would love to hear from other long time users to learn if any self designed protocols helped or hurt.
If you are considering using Lenire I would recommend reading user experiences,
@PeterPan's data analysis, and understand that if it works for you it is likely not a cure but something that may soothe your symptoms somewhat. For me it is making a real difference in my life. The improvement is not enough but it is making a real meaningful difference in my quality of life. It gives me hope that there is real promise behind bimodal neuromodulation treatment for at least some of us and that there will be further improvements in treatment into the future.
Peace out.