Now the dilemma: tinnitus after exposing to loud noise and MRI scans who shows the NVC.
You have still more possibility of relief, Do not despair. Very often to find the right way, it takes time. Be stubbornly patient. Do you have hearing loss???
I do feel my ear a bit clogged, or lacking the dynamic range it had. What I perceive as hearing loss is my hyperacusis. I feel that certain high frequencies come out distorted, or are absent, (like a bad encoded mp3 file, how I detested those...). I am terribly annoyed by high frequency sounds, like a plastic bag, or even paper getting dragged on a desk! Could be the tinnitus tone that affects them, of course... Or that instead of these nice high frequency sounds, due to cochlear damage, I do hear something else now: My "beloved" T!
My audiogram starts falling at around 6000 where it reaches 8000 at 20db or more. Some docs find it that 6000Hz hit the 20db mark and at 8000Hz I must go up to 40 to listen. Nobody did a tinnitus measuring, no one did OAE Testing, or ABR. They just say there is some POSSIBLE (!)hearing loss at high frequencies and that's it. Of course, an audiogram that goes beyond 8000 hasn't been done (asked for it the answer was there is no such thing). A few other said I have a capability of listening to very high frequencies, so I perceive my Tinnitus as being too loud, although it exists in high frequencies. I do hear up to 16000Hz or more, but still that does not give me comfort. If that is the case, I wish I didn't have so good haring!
One doctor said that if I had an acoustic trauma the hearing loss should be around 4000Hz and more than 20 db. What I have doesn't qualify, so, something else is what I have. And the MRI of the ears confirmed it was indeed mvc.
If nvc is the responsible of yur tinnitus ou will hear the difference with the tegretol 200mg 1 pill at morning, and if it loose efficacy after 1 month, you have a reason to write an email to Dr. Vanneste in Belgium with your story...because there is not only dangerous surgery NVC but Vagus nerve stimulation. Be clear, VNS is under investigation but more promising in the treatment of refractary epilepsy, tremors, and tinnitus (UNILATERAL PURE TONE TINNITUS)
I thought it is for staccato type T... Anyway, traveling to Belgium for an ambiguous therapy like this doesn't seem so appealing at first glance: It requires 20 or more days of staying there just in the hope of being at the 50% to get that 43 percent of reduction... I don't exclude it (what else can I do) but seems to me it is difficult to do with less than satisfying results.
Pure tone tinnitus that fluctuates (in good days...) is the most disturbing sound I have. Other than that, a morse code-telegraph tinnitus is my secondary or third sound, and there is a hissing like water through a pipe. All of these I've heard before the acoustic trauma. I remember them. They didn't bother me then, I didn't have hyperacusis, or the sensation that I lack certain frequencies then. They where also not so loud. But it DID have decreased tolerance to sound this summer (before the acoustic trauma in September)!
Complicating isn't it?
Consider that "lucky" you are still not cronic and i pray that one day not far, you will wake up without tinnitus.
In my final opinion you must remove Gabapentin...make 2 week of complete wash-out and then try Tegretol!
This is what I would do. Does not mean you have to listen to me. I'm not a doctor so I'm not reliable. You can be the best doctor of yourself because you know suffering.
Best wishes
Your opinion is highly noted my friend, and is happily accepted with less skepticism than a LOT of those docs I 've visited... I can't thank you enough for your advice! I wish I could persuade my doctors about these meds, they are stuborn although they provide no results whatsoever!
PS: Note that currently I am also under celestone chronodose (corticosteroids), 3 injections in 3 weeks, along with neurobion 3 shots a week. Last Friday I did my third injection of celestone. I don't know if I will go on. Can't say it did much other than brief (one day or two) periods of less sound but could be due to my Tinnitus flexibility... The last 2 days have been rather calm, so I will decide in a few more days when the monster comes back full force!