@LisaW1, first things first. You are still very early. You need to make sure you cover all the things you can do after early onset or you might regret it later. Prednisone, intratympanic steroid injections etc… you need to call around to force yourself into an ENT appointment.
The fact that you are still so early means that there is a lot of room for improvement, so I see a lot of positives there.
—— in case your new uninvited friend decides to stick around for a longer time, although you won't believe me, it is still not the end of the world ——
1. You will be able to live with this. I inherited a hyperfocus gene from my dad, so I'm the worst type of person to get tinnitus as tinnitus is mostly about focus (my dad has tinnitus too and on antidepressants because of it) and even I am able to live with this. It took me about 2.5 years to learn how, but promise me you believe me when I guarantee you'll be able to smile again.
I've been through hell and back. I will save you the details, but it includes being rushed away in an ambulance with blaring sirens through Berlin (I was there on a business trip).
2. Don't compare today's volume to yesterday's. Part of the daily struggle with tinnitus is comparing, which makes you focus again. Please accept (and every time I use the word "accept" here, understand that I know it's very hard, but doable) that tinnitus will fluctuate, it's an intrinsic part of the disease.
3. You will be able to sleep with this. I used to have to sleep with a masker in my bedroom, most quiet room in the house. Now, I just lie there, with the buzzing. It's hard to explain and you'll probably only believe me when you've actually reached that point but after a while your anxious response to (what still is an annoying sound/feeling) diminishes. In the beginning you're like a squirrel staring into the headlights of a car: OMG OMG, OMG... but OMG!
Now I'm more like a more composed deer watching into headlights: oh yes, there it is , oh well, yeah, not fun, I guess I'll go stand somewhere else.
4. Keep busy. I'm currently building a garden shed by hand, with wood and everything. I do this because I have tinnitus. Before tinnitus I would have bought a ready made shed and have it installed by professionals. I want to be outside as much as possible.
A while back I went to the Polish/Ukraine border to help refugees. I did this because I have tinnitus, before tinnitus I would have never done anything like that.
While I was in Poland, I rarely had time to listen to my tinnitus (it was still there strong as ever, in my hotel) but I had so much other stuff on my mind that I didn't have time to listen and panic over it.
This is also a thing that helps: attach positive connotation to your tinnitus (again, I know it's hard), but it sort of "disarms" tinnitus: "I would have never done this, if it wasn't for this crappy condition that I have."
5. Don't feed your brain regret-cookies. Biggest part of my earliest struggles were me feeling bad about how I did this to myself. I was feeling so bad/guilty it hurt.
After a while your brain becomes addicted to this feeling. Like any other addiction.
Some moment in the day you suddenly feel a bit better, but then your brain is like "no no, that's not allowed, ... here, some bad thoughts to bring you down again" > brain satisfied.
I always thought my brain would be on my time, but I learned if you let it, it can destroy you.
A very simple technique that worked for me is loosely based on EMDR. Every time I thought about "OMG, I did this to myself and it's for the rest of my life", my brain was like a dog, expecting a cookie filled with regret and guilt, but in stead, I was forcing myself to imagine a 3D strawberry, looking at the strawberry in detail, spinning it around in my head.
After a while, my brain seemed to respond to it: "Hmm, I'm trying to make him feel bad, but in stead of a cookie, he is showing me a strawberry, this sucks" - it's all about neural pathways and trying to "reroute" them.
I have a lot of videos on YouTube that totally mask my tinnitus, and they are different based on how loud it is that day. Important is to play it on a good speaker with a deep bass (I'm using a Google Home device - the big version).
I'll just call out the videos by name, so you can find them on YouTube.
I used to sleep with this one:
"
Starship Sleeping Quarters | Sleep Sounds White Noise with Deep Bass 10 Hours"
During the day, this one covers up my buzzing on most days:
"Boost Your Aura" Attract Positive Energy Meditation Music, 7 Chakra Balancing & Healing"
On days when it's low, I can get away with just some jazz, cause it has a deep bass. I can still hear my tinnitus in the more quiet pieces though:
"
4K Cozy Bedroom in Paris with Relaxing Piano Jazz Music for Sleeping, Studying"
Please don't flip out if none of those videos work for you. Tinnitus is very broad ranged and you ll probably need to find what works for you.
Last question: does your buzzing get louder/respond to anything high frequency? Like water running into the sink, MacBook fan blowing hard.
I have that - so that is, for me, the best proof that my buzzing is related to my high frequency hissing (that I have too) and my little drop on my audiogram at 8000 Hz.
You also mentioned
Tensor Tympani: If you have the same as me, it is not that. Two reasons:
1) I was diagnosed by the leading Tensor Tympani Professor in Cambridge (remotely). He says my symptoms do not reflect it.
2) I sometimes have ear spasms, the inside of my buzzing ear starts to flutter, THAT is my Tensor Tympani fluttering, it is completely different than my buzzing noise.
Let me know if you have any questions.