@Whitney
Hello!
I developed tinnitus from an original injury to my eardrums after a bad cold. And I was left with eustachian tube dysfunction so we share some commonalities! I was wondering what surgery you had to correct the "negative pressure balance in your ears?" I currently have a bad cold and my ETD has come back. I'm hoping I don't get a worsening of my tinnitus. Anyway, if there's any way I could improve my eustachian tubes I'm up for it.
Any information is so appreciated!
jazz
Hi Jazz!
I'm so sorry to hear you also have this condition - I recently had bilateral grommet insertion (myringotomy with grommets) performed and while it has not cleared up the eustachian tube dysfunction completely, it has decreased the full feeling in the ears a bit. The grommets are not a cure-all, and the results are not immediate. I may need another set put in in another few months. They basically allow air flow into the ears in hopes that the oxygen will allow the ears to heal themselves over time. I did, however, notice that the tinnitus went away completely in one ear, but came back after two weeks. I think this had to do with the fact that they suctioned out excess moisture and that helped tremendously. However, if your ears can't regulate the moisture by themselves it could come back.
Anyways, I'm not 100 percent certain that my ears will ever recover completely, but the grommets do provide some modicum of much-needed relief.
Getting the tubes was a nightmare though! I saw at least three specialists, two nurse practitioners and four doctors until I found an ENT who not only knew what the surgery was, but was willing to perform it.
I received a lot of false advice along the way. For instance, one ENT told me it was allergies and to just take antihistimines (I've had allergies all my life, but the tinnitus only came on following an ear infection....), another ENT told me that the ear popping was good because it meant that it was healing (my ears should be cracking and causing me extreme discomfort months after the ear infection had cleared????) and the (I then believed to be competent) nurse practitioner who had initially diagnosed me with a eustachian tube dysfunction told me that they cannot perform the surgery on adults.... Oh, and of course none of the GPs had a clue...
However, I eventually found a wonderful ENT and he performed the surgery. He did tell me before the procedure that it is not guaranteed to cure the eustachian tube dysfunction, but it has greatly relieved the discomfort for me.
One caveat about the surgery though...I can no longer swim underwater because my ear drums could rupture with the grommets in. So scuba diving is definitely out, but flying is actually more comfortable with the grommets. Ask your doctor for more info.... If this is a sacrifice you are willing to make for an increased chance of recovery or at least some relief, then I would recommend going for it.
Lots of luck!
Whitney
Here are some links about the surgery:
http://www.ent-info.nhs.uk/E1_grommet.htm
http://www.patient.co.uk/health/Glue-Ear-Grommets-and-Other-Operations.htm