Hi Mark, Thanks for your reply. I have had some pretty dark days myself over the past year. Met with five different ENTs and three different audiologists. One audiologist who is a T and H specialist was particularly bad. I was truly losing all hope of bring able to function. Habituation to a car slat. Going off in my head just wasn't possible.
Everything that was supposed to help with the noise only made it worse. I tried masking hearing aids, acupuncture, chiropractics, craniosacral therapy, intra oral massage, TMD treatments, ultrasound followed by massage, TENS, and Neuromonics. Everything sent my noise screaming into the ozone. The Neuromonics especially gave me high-pitched screeching in both ears, and severe Hyperacusis.
Now, don't get me wrong, I am used to pain, and have a high pain threshold. I trained at the Olympic Training Center in cycling, was a marathon runner, high altitude mountaineer with a few summits in the Himalayas, and did 50k ski marathons. But this T and H is bringing me to my knees! After a year of suffering and searching, I finally found a neuro-otologist, who found the right neuro-radiologist, who found the reason for my sudden onset intractable, debilitating tinnitus: microvascular compression syndrome.
Apparently, it is rare to find this condition in a case of T, and even rarer to be a candidate for the surgery. I guess I did always like to be different. I am scheduled for brain surgery in two days, with a team of two of renowned neurosurgeons. I never thought I'd be looking forward to having a hole drilled in my skull, exposing my brain to decompress my auditory and vestibular nerves. No wonder I wasn't habituating, as I have no significant hearing loss, and excruciatingly loud T, because I have an active input in my inner ear.
I may have some mopping up to do with residual noise, from possible nerve damage, after a year of my cochleovestibular nerve being very angry. Your message gives me hope for that. Best, SV