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Meniere's Disease
- Thread starter Teri
- Start date
Member1MW
Member
- Nov 25, 2014
- 614
- Tinnitus Since
- 2008 but cured and relapsed from benzos
- Cause of Tinnitus
- ssnhl/benzos/unknown
And says you thar you have meniere... I suggest to you to search more and monitor all the tiny details you observe.
I have meet several neurototologists some of them sayed me that i have menieres but these was not experts
All experts say meniere is description of sympoms such as headache a cause is unknown
because it is difficult to find but is not impossible to find if you search very well.
To search every aspect you need time research and of course money.
The easy way is to say you you have meniere the hard is to find the etiologic cause.
Several cases diagnosed with meniere and the in the future found that it was some diferent and more systematic
than meniere.
I have meet several neurototologists some of them sayed me that i have menieres but these was not experts
All experts say meniere is description of sympoms such as headache a cause is unknown
because it is difficult to find but is not impossible to find if you search very well.
To search every aspect you need time research and of course money.
The easy way is to say you you have meniere the hard is to find the etiologic cause.
Several cases diagnosed with meniere and the in the future found that it was some diferent and more systematic
than meniere.
good luck with that.
I suspect I know why my hydrops started, but there's no proof that the incident caused it and it wasn't some other incident. What does it matter?? It happened. No test is out there that says the incident is or isn't the culprit or whether it was a separate incident.
No searching on the internet is going to produce the answer to what caused my hydrops.
I suspect I know why my hydrops started, but there's no proof that the incident caused it and it wasn't some other incident. What does it matter?? It happened. No test is out there that says the incident is or isn't the culprit or whether it was a separate incident.
No searching on the internet is going to produce the answer to what caused my hydrops.
1MW
Member
- Nov 25, 2014
- 614
- Tinnitus Since
- 2008 but cured and relapsed from benzos
- Cause of Tinnitus
- ssnhl/benzos/unknown
When i have bad symptoms (when T get loud and H develops) if i get 16mg or 32mg methyprednisolone
T stops (almost 0db or exactly 0db) H stops hearing improving and i feel cured but these lasts for 1.2-3 days.
All ENTs say me that steroids do nothing in T H and hearing problems but i don't hear them because i notice huge improvement. This is the reason i think i have not lost my hearing because i hit steroids when the things are bad
and not wait a doctor to do it for me or an audiogram show hearing deterioration.
I do screening audiogram in home with my headphones if i notice any slight deterioration and increased
T i hit steroids.Yes they have serious side effects but T and H for me is more serious.
I know that is not cure but with this strategy maybe preserved my hearing these years until i find a real cure. Also i found that good sleep improves the symptoms.
T stops (almost 0db or exactly 0db) H stops hearing improving and i feel cured but these lasts for 1.2-3 days.
All ENTs say me that steroids do nothing in T H and hearing problems but i don't hear them because i notice huge improvement. This is the reason i think i have not lost my hearing because i hit steroids when the things are bad
and not wait a doctor to do it for me or an audiogram show hearing deterioration.
I do screening audiogram in home with my headphones if i notice any slight deterioration and increased
T i hit steroids.Yes they have serious side effects but T and H for me is more serious.
I know that is not cure but with this strategy maybe preserved my hearing these years until i find a real cure. Also i found that good sleep improves the symptoms.
All you, keep your stress levels down and sleep good.
8 good weeks now with MD. The record so far.
I gotta say i have bad feelings in my ear. Might be the dental problem, too.
Tinnitus feels slightly louder now than during the last weeks.
i got my dental night guard yesterday (mouthguard, bite guard, many names)
it tastes like soap and feels like any mouthguard for, say, martial arts. Price is a bit different.
Firstly: how can people sleep with those? I find it hard to breath with it.
The dentist told me to practice keeping it on when watching tv in the evenings.
8 good weeks now with MD. The record so far.
I gotta say i have bad feelings in my ear. Might be the dental problem, too.
Tinnitus feels slightly louder now than during the last weeks.
i got my dental night guard yesterday (mouthguard, bite guard, many names)
it tastes like soap and feels like any mouthguard for, say, martial arts. Price is a bit different.
Firstly: how can people sleep with those? I find it hard to breath with it.
The dentist told me to practice keeping it on when watching tv in the evenings.
tastes like soap? are you washing it with soap? lol
can you try letting it sit in mouth wash for a little bit? at least it will have a familiar minty taste, better than soap!
can you try letting it sit in mouth wash for a little bit? at least it will have a familiar minty taste, better than soap!
ha ha.... actually, it needs maintaining like teeths do. brushing with toothpaste. funny.
The dentist told me not wait miracles but to be honest i am. There´s a possibility to get rid of the facial numbness and pain in the ear area. Perhaps lower my T.... now i am pushing it!
The dentist told me not wait miracles but to be honest i am. There´s a possibility to get rid of the facial numbness and pain in the ear area. Perhaps lower my T.... now i am pushing it!
It won't hurt to try it.
I have my ups and downs with the ear pressure/pain. Do you suppose that the ear pressure and pain will be something that eventually we will get habituated to? My brother has had it for years and said he doesn't seem to be as bothered by it. His is caused from autoimmune (Lupus).
I have my ups and downs with the ear pressure/pain. Do you suppose that the ear pressure and pain will be something that eventually we will get habituated to? My brother has had it for years and said he doesn't seem to be as bothered by it. His is caused from autoimmune (Lupus).
sure wont hurt to try. after all this suffering i have put lots of hope in that mouthguard.
I think it´s possible to habituate to mild or moderate pain.
Pain is like T, hard to measure and hard to handle.
I have had "feelings" in my right side of face/ear for the whole of this year. The pain/ear pressure/numbness vary. I can spend hours withouth thinking of it, not days unfortunately. But when the pain reaches certain level it takes all my energy. It´s the same with tinnitus. When it´s mild i am kinda OK.
4,5 half years now with clogged ear. Like when on an airplane. Mild. For normal people it´s an unpleasant feeling, but for them it goes away quickly. Mine never goes away. Yes i am habituated to it.
I have started to think that if i can maintain this level (or if Mr. Meniere can) of symptoms i might actually start to live again. I like that thought. "me like it".
I think it´s possible to habituate to mild or moderate pain.
Pain is like T, hard to measure and hard to handle.
I have had "feelings" in my right side of face/ear for the whole of this year. The pain/ear pressure/numbness vary. I can spend hours withouth thinking of it, not days unfortunately. But when the pain reaches certain level it takes all my energy. It´s the same with tinnitus. When it´s mild i am kinda OK.
4,5 half years now with clogged ear. Like when on an airplane. Mild. For normal people it´s an unpleasant feeling, but for them it goes away quickly. Mine never goes away. Yes i am habituated to it.
I have started to think that if i can maintain this level (or if Mr. Meniere can) of symptoms i might actually start to live again. I like that thought. "me like it".
That is exactly what my brother has said about his ear pressure/pain. It is up and down but never goes away. For the most part, he has habituated to it but he said when he gets a cold or sinuses it gets worse and he is bothered with it.
The genetic side of MD/ear/jaw problems is interesting. Your brother has T and ear pain, my brother has displaced TJM. It doesnt bother him all the time but occasionally. He´s 6 years younger than me. I have to ask him about T.
from my mother´s side many of us seem to have some problems in the ear area.
from my mother´s side many of us seem to have some problems in the ear area.
9 good weeks now. i feel almost normal... like a human being not a zombie.
dont know why but this morning my friend T got from 7 to 7.5 in scale of 1 to 10.
2 full nights with that dental night guard. cant tell a difference but i keep on hoping.
dont know why but this morning my friend T got from 7 to 7.5 in scale of 1 to 10.
2 full nights with that dental night guard. cant tell a difference but i keep on hoping.
Hope you flight went well, Sue. I have been keeping busy with all the holiday prep. So far, so good with my ear. It is hissing away but low to moderate so I can manage that. The dizziness is less I am happy to say. I hope it stays that way!
I helped my friend with her kindergarten class on a field trip at our local Children's Museum. It was LOUD, LOUD, LOUD. I did put some ear plugs in and it all went okay. My T spiked up a little louder than normal afterwards, but I can live with it.
I helped my friend with her kindergarten class on a field trip at our local Children's Museum. It was LOUD, LOUD, LOUD. I did put some ear plugs in and it all went okay. My T spiked up a little louder than normal afterwards, but I can live with it.
I think I will just have to expect motion sickness. Not too bad, luckily. Other than that, doing okay.
Glad to hear you're hanging in there too!
Glad to hear you're hanging in there too!
You too!! I'm down in Florida with my mom, sister, two nieces, and brother in law! Brought one of my sons with me too. <3
Oh, and today's my birthday!
Oh, and today's my birthday!
1MW
Member
- Nov 25, 2014
- 614
- Tinnitus Since
- 2008 but cured and relapsed from benzos
- Cause of Tinnitus
- ssnhl/benzos/unknown
A serious percentage of patients diagnosed with "meniere" observed that have negative pressure in middle ear.
So i suppose that meniere may be result of eustachian tube dysfunction.
Have you tried corticosteroids for "meniere" symptoms ? For example oral methyprednisolone (medrol) 24mg ?
So i suppose that meniere may be result of eustachian tube dysfunction.
Have you tried corticosteroids for "meniere" symptoms ? For example oral methyprednisolone (medrol) 24mg ?
Happy b-day, Sue.
Florida? Omg, like teens say. Must be nice and warm there. One day i have to travel to US again.
Ive been only to L.A., Las Vegas and San Diego and i loved every minute. People were friendly, cheap gas, great food, it was warm.... sun shining every single day. 120 Fahrenheit in Vegas.... ha haha. amazing. i actually liked it.
It was that summer i started having those stage 2 vertigos as i like to call them. i was still able to manage somehow and move around.... walk. i had two of them during that trip.
If I may interject an opinion, I agree with 1MW's statement. To elaborate, Meniere's disease represents a triad of symptoms described in the 19th century by French physician Prosper Meniere. Endolymphatic hydrops seems a far better term to help understand a common underlying problem.
As mentioned above, multiple conditions can generate the triad of symptoms that Dr Meniere described: tinnitus, vertigo, and hearing loss. The list includes autoimmune and immune responses to external stimuli. My personal experience suggests that food sensitivity is often responsible for these symptoms. Food sensitivity is not the same as a typical allergic response, mediated by histamine. Sensitivity to grains is quite common. Wheat, corn, cow-dairy, and soy products often produce symptoms.
I also agree that the fear response can trigger or exacerbate an immune system response. (The fear response includes anxiety, along with other negative emotions of fear, anger, frustration, guilt, shame, sadness, remorse, etc.) My experience suggests that children raised in a fear filled environment are far more likely to develop autoimmune disorders than those raised in an environment filled with love and support. A fearful environment for a child may include physical, emotional, or sexual abuse.
As a result of such early conditioning, it is as though the body's inner guards (immune system responses) are constantly hyper-vigilant, poised to attack any perceived threat from inside or outside the body. The attack response often becomes disproportionately large and inappropriate for the actual threat.
Bless you,
Dr Charlie
Charles Smithdeal MD, FACS
@Dr. Charlie
Thank you, Doc, for your thoughts. Lot´s of interesting views there. I have to do a lot more reading again.
As for myself here I have had the most worst anxiety of my life right before and during my battle with Meniere´s.
So if all these symptoms are some weird way of mind and/or body to show me something it sure has been one
true bizarre way of doing that.
One more interesting point is that You mention a fearfull childhood environment. I might have experienced that myself, too. Not violence or anything like that but utter loneliness (and those sadness, quilt and shame you also mentioned yourself, too) and feeling of being lost in life as a child. I remember now what must have been out-of-body experiences. Those happened mostly before the age of 10. Usually it was the feeling of falling in a dark narrow tunnel.
I had absolutely no idea what it was back then, naturally, being a child and all.
What wonders me is why it would have took some 30+ years for these symptoms to develop?
Happy New Year!
Thank you, Doc, for your thoughts. Lot´s of interesting views there. I have to do a lot more reading again.
As for myself here I have had the most worst anxiety of my life right before and during my battle with Meniere´s.
So if all these symptoms are some weird way of mind and/or body to show me something it sure has been one
true bizarre way of doing that.
One more interesting point is that You mention a fearfull childhood environment. I might have experienced that myself, too. Not violence or anything like that but utter loneliness (and those sadness, quilt and shame you also mentioned yourself, too) and feeling of being lost in life as a child. I remember now what must have been out-of-body experiences. Those happened mostly before the age of 10. Usually it was the feeling of falling in a dark narrow tunnel.
I had absolutely no idea what it was back then, naturally, being a child and all.
What wonders me is why it would have took some 30+ years for these symptoms to develop?
Happy New Year!
@Dr. Charlie
http://www.californiaearinstitute.com/ear-disorders-endolymphatic-hydrops-ear-institute-bay-area.php
This site seems to make a distinction between endolymphatic hydrops and Meneire's disease:
"Individuals who have Meniere's disease have a very severe form of endolymphatic hydrops, but individuals with endolymphatic hydrops do not always progress to Meniere's disease."
If Meneire's disease is a progressive disease that attacks the inner ear, then is endolymphatic hydrops typically progressive as well?
The article states that it is important to try to maintain hearing or if hearing. With endolympatic hydrops or Meneire's disease, hearing is up and down and the fluctuation is unpredictable. I take the diuretic, follow diet restrictions recommended by my doctors as well as other recommendations. The ear pressure is constant with varying degrees. How often should I test hearing and monitor? If it drops, what else should I be doing?
Thanks for your support and professional perspective, Dr. Charlie!
P.S. I know you are a dog lover as I am and I wanted to share with you that I made my little poodle/yorkie mix a cute little sweatshirt for Christmas.
http://www.californiaearinstitute.com/ear-disorders-endolymphatic-hydrops-ear-institute-bay-area.php
This site seems to make a distinction between endolymphatic hydrops and Meneire's disease:
"Individuals who have Meniere's disease have a very severe form of endolymphatic hydrops, but individuals with endolymphatic hydrops do not always progress to Meniere's disease."
If Meneire's disease is a progressive disease that attacks the inner ear, then is endolymphatic hydrops typically progressive as well?
The article states that it is important to try to maintain hearing or if hearing. With endolympatic hydrops or Meneire's disease, hearing is up and down and the fluctuation is unpredictable. I take the diuretic, follow diet restrictions recommended by my doctors as well as other recommendations. The ear pressure is constant with varying degrees. How often should I test hearing and monitor? If it drops, what else should I be doing?
Thanks for your support and professional perspective, Dr. Charlie!
P.S. I know you are a dog lover as I am and I wanted to share with you that I made my little poodle/yorkie mix a cute little sweatshirt for Christmas.
Teri i share your symtomps. Constant ear pressure, hearing comes and goes... T. Well, you know me.
Luckily you dont get vertigo attacks. It´s a strange feeling i am having right now. Exactly one year ago, new year´s eve i was suffering from a 6 -hour violent vertigo attack. That was my start for the year 2014, the most F-word´d up year of my life.
Anyhow... Happy new year to all you Meniereans and all the others too.
Luckily you dont get vertigo attacks. It´s a strange feeling i am having right now. Exactly one year ago, new year´s eve i was suffering from a 6 -hour violent vertigo attack. That was my start for the year 2014, the most F-word´d up year of my life.
Anyhow... Happy new year to all you Meniereans and all the others too.
1MW
Member
- Nov 25, 2014
- 614
- Tinnitus Since
- 2008 but cured and relapsed from benzos
- Cause of Tinnitus
- ssnhl/benzos/unknown
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