Mild Tinnitus Got Much Worse + Developed Moderate to Severe Hyperacusis & Distortions

I think the closest thing that would relate is stories of barotrauma from scuba divers and see how they panned out years later.
Yeah, I went on those websites. Almost every single one of them got vertigo and hearing loss. And I didn't read one story that did not have at least one. I guess I could be a special case. And some of them went diving again after their surgery.
 
Thank you Mr. @Matchbox for the suggestions.

If I start talking too much, my ears begin to crackle and pop and that's my cue that I should stop talking. I get more sensitive to sound and tinnitus acts up. I'll look into diuretics.

I've been reading your posts about steroids and I think you may be on to something. Mainly how you say that it can trigger a rebound effect and how the ear issues were gonna happen in due time but steroids sped up the process. I was on Methylprednisolone for 6 days starting at 24 mg and taper. I think that is what happen to me as I could see my hyperacusis and tinnitus developing to intrusive levels. It never even did anything for me other than change my tone into a low rumbling sound and temporary distortions where people's voice sounded robotic.

I don't know though. This is all hard to predict and understand.
 
Update: Major breakthrough with hyperacusis. I've been holding this off for about 1 week and half to see if this was a fluke or not, but I'm happy to report that my sound tolerance has gotten much better. Sounds that caused me discomfort don't cause me as much discomfort anymore. I can talk normally now, instead of whispering, water faucet running, doors closing do not bother me as much. I'm not sure how this turn around happen.

Here are things I've done:

I started taking Boswellia supplement a week before this improvement. I ditched earmuffs at home for the most part. I still avoid TV, but I started to listen to beach waves and some soft music at low levels of volume on my iPad. I've also been homebound during all this time. My brother went away for the week, and he left me his dog to take care for the week I started to notice improvement. Dog is quiet for the most part, but made some sounds that caused me discomfort. I took the discomfort and did not let the anxiety of me getting worse. Don't get me wrong, I'm still sensitive at times, but I can take the discomfort much more well than before. Loudness is still there and my hearing perception still feels strange at times.

Tinnitus is still an unpredictable mess. It's loud, quite reactive and indescribable. It's usually calm in the morning, but it ramps up as the day goes on. I think I have 2 of the variations for reactive tinnitus unfortunately. My tinnitus will spike after exposing myself to too much sound. The other variation where tinnitus competes in volume with external sound, I do believe I have that to a degree. It happens when the air condition is on. Makes this quite distressing.

Anyways, the hyperacusis improving gives me hope.

If anyone has any questions about the specifics, I'm happy to answer.
 
Update: Major breakthrough with hyperacusis. I've been holding this off for about 1 week and half to see if this was a fluke or not, but I'm happy to report that my sound tolerance has gotten much better. Sounds that caused me discomfort don't cause me as much discomfort anymore. I can talk normally now, instead of whispering, water faucet running, doors closing do not bother me as much. I'm not sure how this turn around happen.

Here are things I've done:

I started taking Boswellia supplement a week before this improvement. I ditched earmuffs at home for the most part. I still avoid TV, but I started to listen to beach waves and some soft music at low levels of volume on my iPad. I've also been homebound during all this time. My brother went away for the week, and he left me his dog to take care for the week I started to notice improvement. Dog is quiet for the most part, but made some sounds that caused me discomfort. I took the discomfort and did not let the anxiety of me getting worse. Don't get me wrong, I'm still sensitive at times, but I can take the discomfort much more well than before. Loudness is still there and my hearing perception still feels strange at times.

Tinnitus is still an unpredictable mess. It's loud, quite reactive and indescribable. It's usually calm in the morning, but it ramps up as the day goes on. I think I have 2 of the variations for reactive tinnitus unfortunately. My tinnitus will spike after exposing myself to too much sound. The other variation where tinnitus competes in volume with external sound, I do believe I have that to a degree. It happens when the air condition is on. Makes this quite distressing.

Anyways, the hyperacusis improving gives me hope.

If anyone has any questions about the specifics, I'm happy to answer.
I'm happy to hear that your sensitivity to sound is improving. Has your reactivity/spiking remained on exactly the same level, or has it improved somewhat?

Given enough time, I think you can do a good recovery,
Stacken
 
@ZFire, great news for you!

This shows that desensitizing works for you, even though it will take a lot of time and effort - and minor setbacks along the road.

...and maybe the dog helped you with getting out of "fight or flight" to calm down. Animals have that kind of calming effect on people. It probably also made you help shift your focus somewhat.

Take this a good sign for your progression forward. I'm positive you will get there in time!
 
I'm happy to hear that your sensitivity to sound is improving. Has your reactivity/spiking remained on exactly the same level, or has it improved somewhat?

Given enough time, I think you can do a good recovery,
Stacken
It's hard to say exactly, but there may have been improvement. It's certainly feels like a non linear progression. The spiking is quite unpredictable.

Last month, when I was taking a bath without earplugs, the water splashed (gave me ear discomfort as well) by accident and I got a new tone from it right afterwords. It took about 3-4 days for it to disappear. Nowadays when I expose myself to sounds and think I'm going to spike from certain noise, it's doesn't happen. Sometimes It will spike and those can last anywhere to a week. I had an accident 2 days ago, where I slammed my wrist into a metal doorknob, nothing came of it so far. I stop trying to dwell on it too much. I say to myself, this has to be temporary no matter how long it takes for it to settle. So things are slightly different now. I do get the feeling that my ears have gained more endurance to take on sounds without it spiking.
 
@ZFire, great news for you!

This shows that desensitizing works for you, even though it will take a lot of time and effort - and minor setbacks along the road.

...and maybe the dog helped you with getting out of "fight or flight" to calm down. Animals have that kind of calming effect on people. It probably also made you help shift your focus somewhat.

Take this a good sign for your progression forward. I'm positive you will get there in time!
Thank you @MindOverMatter. I'm a big fan of yours and enjoy reading your post. They give me hope and relief that people can improve significantly even years later.

I also just wanted to say I've started to take CBT sessions for tinnitus and hyperacusis. I was encouraged to some sort of action and do graded exposure to sound.

I have phonophobia to a degree. The fear of sounds and it's potential to make me worse is something I'm still having a hard time overcoming… I'm still afraid to leave my house (live in a noisy city). I was wondering if you have any advice on how to manage and overcome this line of thinking?

The dog definitely helped. He made me panic a lot more less and shifted my focus elsewhere. As you have been saying, getting the anxiety under control is a crucial step if one wants to see improvement.

This is the little Morkie I was watching over!

53105DFD-CA71-47A4-AEBA-46B4C9872A14.jpeg
 
I think starting with CBT counselling sessions, as you have done, is a great starting point towards phonophobia and issues related to this (y)

Particularly when it comes to fear of worsening, at this point even when you are surronded by everyday noises.

Understandably, if you live in a big, noisy city, it is more difficult to get back to "normal" as you will feel surrounded by potential threats everywhere.

I guess it's all about taking those small steps to slowly introduce those sounds again that you used to be okay with. All with moderation.

Maybe it would be an idea to get some custom molded musician's earplugs for you, for starters, and use these in the beginning when going out? This way you do get exposed to sounds more naturally than blocking sound out, but with dampened/lowered loudness and harshness.
 
I have severe tinnitus (reactive) and severe hyperacusis. I've also noticed my hearing is a little dull. I'm not sure If I have hearing loss or if it's just the hyperacusis but I experience tension/pain in my head when I try to watch tv or videos or listen to music even at low volume. My hearing decreases temporarily afterwards.
The dull hearing may be a reaction from the hyperacusis. The body protects itself in the presence of loud or moderate noise, it's like the body tries not to drive sound to the cochlea. For me this meant like a sore throat, pain in temples and throat, and pressure.. these are all symptoms of hyperacusis, which works in cycles of pressure, dull hearing, and then moments when all this resolves and when ears open up. Over time, setbacks can truly deteriorate hearing, so hearing quality worsens, and hearing loss may appear.

So does your hearing fluctuate?

This may be related to the endolymph of the Organ of Corti. People who suffer from endolymphatic hydrops may benefit from changes in diet and some medication.

"The organ of Corti, surrounded in potassium-rich fluid endolymph, lies on the basilar membrane at the base of the scala media. Under the organ of Corti is the scala tympani and above it, the scala vestibuli. Both structures exist in a low potassium fluid called perilymph."

"Note that only the surface of the organ of Corti is bathed in endolymph (notably the stereocilia of the hair cells), whilst the main body of hair cells and support cells are bathed in perilymph. There are two types of perilymph: the perilymph of the scala vestibuli, and that of the scala tympani"​
 
I think starting with CBT counselling sessions, as you have done, is a great starting point towards phonophobia and issues related to this (y)

Particularly when it comes to fear of worsening, at this point even when you are surronded by everyday noises.

Understandably, if you live in a big, noisy city, it is more difficult to get back to "normal" as you will feel surrounded by potential threats everywhere.

I guess it's all about taking those small steps to slowly introduce those sounds again that you used to be okay with. All with moderation..
Hi once again @MindOverMatter.

I've laid out a plan for myself where I'm slowing and methodically introducing myself to outside city sounds. I went outside for the first time last week (maybe like 2 minutes) and I will say I was overwhelmed, but at the same time relived that I finally took some action.

So the plan has been to open some windows in my apartment throughout the day and take in the ambiences of city noise. Then when it's really late into night (midnight) where noise is mostly decent (NYC is never fully quiet lol), I will step outside and take it all in. I'll start at maybe 5 minutes and keep increasing the time a minute or 2 each day. I'll be staying outside my apartment building and walk up a little bit up the block.

Right now I'm starting to feel comfortable with windows open since no ones blasting their air conditioners nearby anymore… so listening to outside city ambiences is much more pleasant now. There are still times however where I have to pluck my ears because of constant ambulances that keep passing by. Helicopters/ambulances/construction noise still make me very anxious.

What do you think? If you have any other suggestions or advice, I'll gladly take it into consideration as I feel like my situation is somewhat similar to yours when this all started for you over 2 years ago. Plus I consider you an expert at this point and also love the mindset you have when confronting hyperacusis, reactive tinnitus, distortions…

Cheers.

PS. You also post the best quotes on this site :).
 
Hey @ZFire.

I think you are doing great by doing what you do now - gradually exposing you to ambient, everyday sounds again.

You need to do this in your own speed, which is exactly what you do now.

When some time have gone by doing this, you should start getting some positive associations to sound again. Maybe you also have some music you can listen to on a low volume on high quality speakers in your place from time to time.

It's all about slowly building tolerance, and positive vibes towards sounds. If you gonna continue living in NY it is so essential to feed your auditory system with input of ambient city sounds. I have been to NY twice, so I know how loud it can get. You can't escape sound there, that's for sure :)

I can fully understand that helicopters/ambulances/construction noise still make you very anxious. I don't like them either. But then again, I never did. But i get less anxious by it now then before.

Just a small tip; maybe I did mention it before. But you cold consider getting sine custom molded musician earplugs with a 10-20 ddBb filter. Filters can be changed on many of them. The new ones I get now has a 15 dB filter, and they block the sound sort of like a sealed earplug when a sudden, loud noise appear (hybrid plugs). I will only wear them when its necessary though.

Ears should be free when they can - but for you maybe some plugs like this could be good to have in handy - especially in a city like NY.
 
Thanks for the response @MindOverMatter, I have an appointment lined up soon for custom molded plugs. The hybrid plugs sound very interesting and I'll ask them about that. Looking forward to it.
 
I've been debating on whether to get ACS Custom or Sensaphonics. I have Westones and I don't even wear them. They don't keep a seal unless I use tons of that ear goo stuff.

I've read the ACS have a port that is supposed to cut down on occlusion. Do yours have a lot of occlusion?
Little to no occlusion (y)
 
Update: I have been going outside late at night for 10 minutes daily so far. Slowly but surely I'm getting comfortable with the outside sounds. My biggest issue right now is when I'm outside, the distortions become "activated". Yesterday, as I was outside, there was a car parked nearby that had their engine running, the distortions started to picked up as i got closer to it. Describing it is hard at the moment, but i would say it sounds like fast pace bubble effects mixed in with Morse code if this makes any sense. When it comes to phonophobia, I'm still in a high alert mode outside. I'm constantly surveying my surroundings and making sure no "threats" are nearby. The puts me in anxious state, so to counter this a little bit, i asked my brother to come outside with me and to engage in random conversations to distract myself from these thoughts... Still very difficult, but it works to a degree.

Tinnitus feels somewhat elevated when I'm back home after spending sometime outside, but settles down afterwords(usually by next morning). I can hear my tinnitus when I'm outside, so that's kind of a bummer. I will need to come to terms with this in the meantime. Hoping overtime there will be a reduction or I don't notice it as much. I went to a nearby grocery to pick up some essentials (earmuffs on). There was a lot of action happening inside, but i turned out okay...

The last 2 days, I had difficulties with hyperacusis again. I'm experiencing a new symptom like a mild burning sensation in one of my ears. Afflicted areas feel warm and the burning seems to be inside my ear canal, earlobe, and the TMJ area. Not sure if its hyperacusis or a possible outer ear infection, but creaking doors are slightly irritating my ears at the moment. Sound tolerance is still pretty good for the most part. I keep reminding myself Ive improved by reflecting where the improvements are.

I'm slowly trying my best to return to normal, but its clear that its going to take some time. I was invited to a thanksgiving family gathering, but I'm definitely not ready for it. My CBT specialist also agreed. Going to continue this gradual exposure...

Any thoughts or suggestions are welcome!
 
I'm experiencing a new symptom like a mild burning sensation in one of my ears. Afflicted areas feel warm and the burning seems to be inside my ear canal, earlobe, and the TMJ area.
This is a quite common, but distressing, symptom of hyperacusis. It can be more common when you start to expose yourself to sounds again (like you do know), but it should be temporary. In my personal experience, the burning/warm sensation is more present when stressed and ears are fatigued.

Yes, it will take time to return to "normal". I'm in it for the long run myself...

It is a challenging road to go down, but you are doing "the right" - even though you will always speculate about that on the harder days.
 
I've laid out a plan for myself where I'm slowing and methodically introducing myself to outside city sounds. I went outside for the first time last week (maybe like 2 minutes) and I will say I was overwhelmed, but at the same time relived that I finally took some action.
If you are doing this without wearing hearing protection, I think it is a really bad idea, as at some point, some day, there is going to be the unexpected super loud sound that will definitely kill your ears or produce a very bad setback. Do not do this if you have moderate / severe hyperacusis, as you said...
 
This is a quite common, but distressing, symptom of hyperacusis. It can be more common when you start to expose yourself to sounds again (like you do know), but it should be temporary. In my personal experience, the burning/warm sensation is more present when stressed and ears are fatigued.

Yes, it will take time to return to "normal". I'm in it for the long run myself...

It is a challenging road to go down, but you are doing "the right" - even though you will always speculate about that on the harder days.
Thanks for the reply. I actually have been stressed the last few days, so I think you may be onto to something given your experience as well.
 
If you are doing this without wearing hearing protection, I think it is a really bad idea, as at some point, some day, there is going to be the unexpected super loud sound that will definitely kill your ears or produce a very bad setback. Do not do this if you have moderate / severe hyperacusis, as you said...
I've been going out very late past midnight to reduce this chance. I've spent 10 minutes max outside daily near my apartment building. I have my earmuffs around my neck just in case. If I'm going to a store I'm definitely going to protect for the time being. I will still be wearing ear protection once I return to normal. Right now I really need to hear these outside city sounds again because I've become way too sensitive to it and the phonophobia has been reducing my quality of life.
 
If you are doing this without wearing hearing protection, I think it is a really bad idea, as at some point, some day, there is going to be the unexpected super loud sound that will definitely kill your ears or produce a very bad setback. Do not do this if you have moderate / severe hyperacusis, as you said...
I think he lives in NYC too...

Protect until you're in a park or a little away from traffic...
 
I think he lives in NYC too...

Protect until you're in a park or a little away from traffic...
I hear you. Over 10 million people live here all right on top of each other. You can't expect random people to accommodate the health of your ears. That's where you have to rely on yourself and I plan on protecting when i go out in broad daylight. Right now I need to focus on desensitization and retrain my brain to process these sounds again. I've avoided them for far too long now. However, I'm still taking precaution by going out very late at night with ear muffs over my neck. There is nothing really going on late into these hours. A few cars pass by my block and they have to ride slow because there's bump stop on the road. No construction because it's illegal at this time, very little traffic, few people walking their dogs... the only thing to watch out for is an ambulance in the distance. But honestly the sounds it produces isn't all too bad (I still protect regardless).
 
If you are doing this without wearing hearing protection, I think it is a really bad idea, as at some point, some day, there is going to be the unexpected super loud sound that will definitely kill your ears or produce a very bad setback. Do not do this if you have moderate / severe hyperacusis, as you said...
Yes and no... part of what I think he's doing is conquering his fear of sounds and over time it should yield benefits. Yes it's risky, but it's a gamble I'm sure he's aware of.
 
Yes and no... part of what I think he's doing is conquering his fear of sounds and over time it should yield benefits. Yes it's risky, but it's a gamble I'm sure he's aware of.
Thanks for articulating it well @Wrfortiscue. When I compared myself last year to now, it's completely depressing… I wouldn't care or even notice the background noise when walking the streets of New York… Now I'm in a hyper-alert state constantly monitoring all sources of sound and their threat levels… I hate it so much… I feel like it's going to be really difficult to get back to my original mental state. The CBT exposure is helping a lot at the moment, but there is still so much to do. With hyperacusis, I do feel that I need to adapt a bit and change my ways like wearing ear protection when it's definitely needed.

I just finished another outside session 10 minutes ago. The more I expose, the less scared I feel. Today was more quiet than usual... was pleasant.
 
I was exposed to an unexpected bike horn maybe 20 meters away recently. It wasn't overly loud or anything, but definitely felt a tinnitus spike soon after. I guess this was my first real setback, fortunately it was short lived. The spike subsided after a few days (I did take NAC). There was slight decrease to my sound tolerance, along with some mild burning sensation in one of my ears, but I'm sure it was my anxiety/panic making it feel much more worse than it was. Anyways, I've become a witness to this non-linear progression people have mentioned here on Tinnitus Talk. This is a real thing. There are ups and downs, but in the end your progress heads in a positive direction. I've only improved since then.

The path to reclaiming most of my sound tolerance is still going strong. I'm not sure if I'll be back to 100%, but really happy where it is right now. I'm reaching new all time highs with each passing month.

I still protect 90% of the time when I'm outside, but when I go out late at night and take in a few sounds for at least 10-15 minutes, it has only strengthened my tolerance. I've noticed that by doing this, it has made me even more comfortable in the house. Spoons dropping on the floor, plates clanking, flushing toilets, and doors closing with moderate force have all become non issues for the most part. TVs are left at higher audible levels too. I think it's time to take a shower and if I turn out okay, that will be a major turning point.

Loud venues like theaters and concerts are out indefinitely. A little bummed out with the theaters as I was a heavy moviegoer. I'm not sure what the future for theaters will be like anyways. The COVID-19 pandemic has really shaken up a lot of stuff. Nowadays, most people I know watch new films through popular streaming services on their devices/TVs.

In the interest of not confusing people between reactivity and distortions, I'll just describe my remaining symptoms pertaining to hyperacusis, tinnitus, and other hearing related issues.

1) One or 2 of my tinnitus tones increases in volume when immediately to certain sounds immediately. I think this is a on/off thing for me, but it seems to come back every other week. It goes back to a low baseline immediately when I move to a quiet setting. I notice this when I go outside, I can clearly hear it more loudly when I'm out late at night, with decibel readings range at 50 to 60. It's also prevalent when my refrigerator turns on, the tinnitus tone increases in volume, but once the refrigerator turns off, the low and more calm baseline returns instantly. It's quite noticeable as it's weird to hear your tinnitus tone mixed into the sound of the refrigerator. It's tough but I had a few good moments where I was able to ignore by keeping my attention elsewhere.

2) Distortion effects have diminished since onset. People's voices have sounded normal for some time now, the only time I seem to have a distortion effect is during a crowd applause. When I hear a crowd applause on TV, I hear a rattling effect along it, almost sounds like a engine is running. The sound of a car engine running in a TV advertisement also sounds a little strange.

3) Music is interesting sometimes. My hyperacusis amplifies certain frequencies. Depends on the instruments being used maybe. Some frequencies have a little more kick to it. For example, if the sound of a trumpet is involved in the music, I will hear that more in terms of loudness over all the other stuff happening in the music at the same time like someone singing the lyrics or piano use.

4) The mimicry of external sounds (palinacousis) is happening less. Usually occurs when a nearby lead blower is being used or a nearby hovering helicopter. It can last anywhere from 15 to 30 minutes.

5) My hearing is really good according to audiograms, but at the same time I feel like I have some difficulty when background noise is involved. When multiple sounds compete with one another, there are instances where I'm able to process some of the sounds, while being unable to hear some of the others at the same time. For example, if I have a water faucet running full blast and a nearby ambulance siren is also heard nearby, I will only be able to hear the water faucet as that sound cancels out the ambulance sound weirdly. Is this normal? Maybe I'm overthinking this because I feel like my hearing is also good. I can lie down in my bed cover my ears with pillows and still hear conversations my brother is having in the other room quite clearly.

I may be overthinking some of these things since I've have dealt with OCD in the past and my new obsession are my ears now. It's like I completely forgot what normal ears are supposed to be like and I'm obsessing over it. I've never really paid much attention to this stuff before hyperacusis. Anyways, thanks to whoever reads and I hope it gives you a bit of relief.

Shower time!
 
Great hearing about your progression @ZFire (y)

I am sure you will be all fine with the shower, and will even find it calming again once you can leave you guard down.
I'm sure you're right. I can easily listen to it when someone else is showering. As a part of the gradual exposure, I started listening to the shower with the door closed, then with the door briefly open. Now I'm at the point where I'm ready to head inside.
 
I never had any issues with showering, except for maybe 2 weeks when I experienced a metallic, strange sound in my ears due to a lot of fullness etc.

But listening to water running, hitting the sink hard sort of, is not a preferable sound to put it nicely. I have no issues when I use the water myself. So it all comes a lot down to frequency and type of sound to me. Also, sounds we are in control of ourselves is probably easier to get around.
 

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