Mindfulness Is Key to Tinnitus Relief Research Reveals

[Ken219]

People are right that funding should go into developing an actual cure instead of these bogus studies.

3M should be contributing 10 million a year to Tinnitus research for their intentional harm! Profit before health! It'll cost the taxpayers more in disability per year! '
3M Company
A contracting company agreed to pay $9.1 million to resolve allegations that it knowingly sold the U.S. military defective earplugs.
The Minnesota-based 3M Company allegedly sold its dual-ended Combat Arms Earplugs, Version 2, to the Defense Logistics Agency without disclosing defects that decreased the actual effectiveness of the hearing protection the device offered.'

 

[Marko Nakovski]

Mindfulness can help sometimes but this isn't some rocket science that needs to be improved any further. What can they improve with this kind of investment?? I think that most tinnitus sufferers can habituate and improve their mindfulness over time by themselves. And this can happen only if the tinnitus level is mild and maybe moderate in some circumstances. For example most of the time my tinnitus was moderate and I didn't need any special mindfulness to manage it somehow.

On the other side the investing in tinnitus treatments let alone a cure is far from enough. They need to invest money in something that isn't in our hands. What about people with severe tinnitus? They need at least an effective treatment because mindfulness isn't even a possibility for them.

 

[Emanuel Lourenco]

Mindfulness can help sometimes but this isn't some rocket science that needs to be improved any further. What can they improve with this kind of investment?? I think that most tinnitus sufferers can habituate and improve their mindfulness over time by themselves. And this can happen only if the tinnitus level is mild and maybe moderate in some circumstances. For example most of the time my tinnitus was moderate and I didn't need any special mindfulness to manage it somehow.

On the other side the investing in tinnitus treatments let alone a cure is far from enough. They need to invest money in something that isn't in our hands. What about people with severe tinnitus? They need at least an effective treatment because mindfulness isn't even a possibility for them.

Whenever I hear that mindfulness is a solution for tinnitus it makes me laugh. Whoever says that clearly haven't been through an intense enough tinnitus. This coming from someone who did mindfulness, and who also used to have tinnitus at a much much lower level. You can't even compare the two... I wish people in medicine realised that tinnitus can range from just a very small annoyance to something that destroys you every second of everyday.

So now everytime I see mindfulness is key to tinnitus relieve I just wanna throw a chair at someone.

It would literally be the same as me saying paracetamol is the key to back pains cause I had a bad day, whilst some people have very serious back pain chronically. For them I'm sure that statement would be just as insulting. Like, "what are you talking about guys? why are you complaining so much just take a paracetamol and stop being babies". When I have no idea what actual serious back pains are like.

 

[Daniel Lion]

I don't think a lot of people hear get mindfulness. You have people diss mindfulness and they claim their tinnitus is from stress.

I want regenerative medicine to work. I want something to work, Neuromod, anything. My tinnitus is bad, it's 24 seven. I can't teach anymore because the schools were too noisy. I lost my job. I am a sculpture, a decade of projects I can't pursue. I have had to accommodate and make many changes. I also have children, boys, who like to wrestle and yell.

For me mindfulness is just trying to chill sometimes, I can't make it go away, but I can try my best to accept it. This does not by any means mean that I don't want a cure, it just means I need to be strong, brave, and try and make my life as meaningful and beautiful as possible.

Tinnitus, loud tinnitus, is awful, and I went from a happy guy to suicidal ideation.

I have turned a corner now. I don't meditate, wish I could. But my attitude has changed.

As a person who has suffered from anger issues and has sadly engaged in violence I don't see throwing chairs as a way of enlightening people.

People stink, and even on this forum, you will find racists, sexists, homophobes, Jew haters, you name it. It blows my mind. But it is what it is, I digress.

Mindfulness doesn't negate Liberman's research, or FX-322, but it's not a bad idea to try and change one's attitude and lifestyle when there are not many remedies out there.

Not well articulated, but I hope you get my jist.

 

[Tamara]

Emanuel,
Congratulations on your words!
You are a person who understands.

These people who have mild tinnitus that improves with mindfulness don't need to seek help and make people think that there are no more serious cases.

 

[Contrast]

Emanuel,
Congratulations on your words!
You are a person who understands.

These people who have mild tinnitus that improves with mindfulness don't need to seek help and make people think that there are no more serious cases.

They also forget factors like visual snow, noise induced pain and muffled hearing that can even accompany mild tinnitus.

 

[GlennS]

Mindfulness doesn't negate Liberman's research, or FX-322, but it's not a bad idea to try and change one's attitude and lifestyle when there are not many remedies out there.

Yes. This thread is one of the worst on this site, IMHO. It tends to bring out the snark in people.

When I challenged people by saying "OK, so what do you do to get through the day?" people got defensive.

You know why? Because at the end of the day, we're stuck with the condition we have and need to lean on any and all possible coping mechanisms. Should articles promote things as if they're solutions? No. They're not solutions. They're coping mechanisms, just like the coping mechanisms we all employ each and every day, some healthy, some not so healthy. But articles like this don't deserve the piling on that they get here. Coping mechanisms are absolutely keeping most of us from committing suicide.

 

[threefirefour]

Yes. This thread is one of the worst on this site, IMHO. It tends to bring out the snark in people.

When I challenged people by saying "OK, so what do you do to get through the day?" people got defensive.

You know why? Because at the end of the day, we're stuck with the condition we have and need to lean on any and all possible coping mechanisms. Should articles promote things as if they're solutions? No. They're not solutions. They're coping mechanisms, just like the coping mechanisms we all employ each and every day, some healthy, some not so healthy. But articles like this don't deserve the piling on that they get here. Coping mechanisms are absolutely keeping most of us from committing suicide.

Like I said earlier you're still missing he point. We don't have a solution but we need one. Therefore we need to focus as much money as possible on the main goal (treating/curing tinnitus) and little pet projects like this are getting in the way.

 

[JohnAdams]

Like I said earlier you're still missing he point. We don't have a solution but we need one. Therefore we need to focus as much money as possible on the main goal (treating/curing tinnitus) and little pet projects like this are getting in the way.

dude, stop bumping this nonsense.

 

[threefirefour]

dude, stop bumping this nonsense.

Yeah you're right. Sometimes I can't help but take the bait.

 

[JohnAdams]

Yeah you're right. Sometimes I can't help but take the bait.

You need to stop falling for these master baiters.

 

[GlennS]

Therefore we need to focus as much money as possible on the main goal

Nobody has proven that articles like this steal resources away from research. It's just a general fear/assumption/accusation. In the meantime, though, none of us can just stash our bodies in a cryogenic freeze and wait things out. We need to cope and this is one way to do it. It would be better if the info were out there rather than muzzle the press thinking it will somehow channel energy towards "the big cure(TM)".

I also think if some of you feel so passionately about it then stop preaching to the converted and speak to the press yourself. Make a documentary. Stage a protest. Do something constructive. But I don't think these sorts of bitch sessions accomplish jack. They're really nothing more than pity-parties.

 

[Contrast]

Nobody has proven that articles like this steal resources away from research. It's just a general fear/assumption/accusation. In the meantime, though, none of us can just stash our bodies in a cryogenic freeze and wait things out. We need to cope and this is one way to do it. It would be better if the info were out there rather than muzzle the press thinking it will somehow channel energy towards "the big cure(TM)".

I also think if some of you feel so passionately about it then stop preaching to the converted and speak to the press yourself. Make a documentary. Stage a protest. Do something constructive. But I don't think these sorts of bitch sessions accomplish jack. They're really nothing more than pity-parties.

feeling sorry for myself is a good thing.

 

[threefirefour]

Nobody has proven that articles like this steal resources away from research. It's just a general fear/assumption/accusation. In the meantime, though, none of us can just stash our bodies in a cryogenic freeze and wait things out. We need to cope and this is one way to do it. It would be better if the info were out there rather than muzzle the press thinking it will somehow channel energy towards "the big cure(TM)".

I also think if some of you feel so passionately about it then stop preaching to the converted and speak to the press yourself. Make a documentary. Stage a protest. Do something constructive. But I don't think these sorts of bitch sessions accomplish jack. They're really nothing more than pity-parties.

Nobody has proven that articles like these don't compete with actual research? Mate that money isn't coming out of thin air. The research required to study CBT costs money, and that money is better spent on actual tinnitus research. This "research" is being funded by organizations like ATA and BTA. So nobody is "proving" it because it's pretty damn self evident.

 

[GlennS]

Nobody has proven that articles like these don't compete with actual research? Mate that money isn't coming out of thin air. The research required to study CBT costs money, and that money is better spent on actual tinnitus research. This "research" is being funded by organizations like ATA and BTA. So nobody is "proving" it because it's pretty damn self evident.

If that were true we wouldn't have 3 neuromodulation studies going on plus Frequency Therapeutics. I just don't view everything through the lens of a brutal zero-sum-game. If there's competition going on for funding it's mostly going to be from "higher priority" diseases like cancer, heart disease, Alzheimer's, diabetes, etc...

 

[threefirefour]

If that were true we wouldn't have 3 neuromodulation studies going on plus Frequency Therapeutics. I just don't view everything through the lens of a brutal zero-sum-game. If there's competition going on for funding it's mostly going to be from "higher priority" diseases like cancer, heart disease, Alzheimer's, diabetes, etc...

Frequency Therapeutics is independent and those three also have a hard time with funding. They pulled through despite the odds, but it would have been so much smoother if the funding that went to this went to them.

Tinnitus research operates on a shoestring budget. Every penny helps. It's very much a zero sum game.

 

[Contrast]

Designated TRT streets

Frequency Therapeutics is independent and those three also have a hard time with funding. They pulled through despite the odds, but it would have been so much smoother if the funding that went to this went to them.

Tinnitus research operates on a shoestring budget. Every penny helps. It's very much a zero sum game.

 

[threefirefour]

Designated TRT streets

View attachment 26859

View attachment 26860

U hev ear ringing wat do u do? Habituate in street or habituate in loo?

 

[linearb]

If that were true we wouldn't have 3 neuromodulation studies going on plus Frequency Therapeutics. I just don't view everything through the lens of a brutal zero-sum-game. If there's competition going on for funding it's mostly going to be from "higher priority" diseases like cancer, heart disease, Alzheimer's, diabetes, etc...

Right, and the amount of money that a CBT comparison study costs is drops in the bucket compared to a device or a drug. We've certainly had plenty of drug trials that go nowhere, to a degree where it's obvious that more money has been wasted on drugs that don't work than on every CBT/TRT trial to date.

The whole funding argument is a nonsense pivot from people with a habitual dislike of CBT / TRT; if it were otherwise, they'd be trying to win this with facts to back up their claims about some funding allocation crisis, rather than just riding it into the ground flaming with memes like a bunch of highschoolers from chan boards.

 

[Contrast]

Right, and the amount of money that a CBT comparison study costs is drops in the bucket compared to a device or a drug. We've certainly had plenty of drug trials that go nowhere, to a degree where it's obvious that more money has been wasted on drugs that don't work than on every CBT/TRT trial to date.

The whole funding argument is a nonsense pivot from people with a habitual dislike of CBT / TRT; if it were otherwise, they'd be trying to win this with facts to back up their claims about some funding allocation crisis, rather than just riding it into the ground flaming with memes like a bunch of highschoolers from chan boards.

The first wave of trials for SNHL have just begun.
https://www.cnbc.com/2018/01/02/hea...oughs-attract-big-pharma-venture-capital.html

Research in this field is relatively new and worth risk, science can't succeed without making mistakes and learning from them. Palliative medicine isn't a science it's just an exploitive method to mentally brainwash people suffering.

Take a look at this, this doesn't factor in research, it shows people on disability because tinnitus and hearing loss because there isn't research to help them since money is wasted on TRT/CBT
https://www.ata.org/understanding-facts/impact-tinnitus

Have you also though about the cost spent on snake oil, many suffers of various untreatable medical conditions spending money on fake medicine, scams and homeopathy? I have not yet looked statistics on it but I'm pretty sure the numbers would be concerning to say the least.

rather than just riding it into the ground flaming with memes like a bunch of highschoolers from chan boards.

It's a good thing that there's a non traditional approach to dealing with this social problem.

 

[Contrast]

The biggest problem with tinnitus research is there's not enough cross discipline research involved.

Research about the inner ear, Hearing loss, Tinnitus, Noise Induced Pain, TMJ, Trigeminal Neuralgia, Phantom Limb Syndrome, Nerve Damage and Chronic Pain could cross over and learn from each other. A cure for another form of chronic pain may also be translated over to hyperacusis, tinnitus and hearing loss.

The problem is tinnitus researchers are in a bubble not looking at the full picture, even @David from the BTA admitted that tinnitus research is not cross discipline researched enough and that's a problem. Many drugs failed because they were centric to just tinnitus and not looking at other components such as sensorineural hearing loss and TMJ which are super common in virtually all tinnitus sufferers.

 

[Contrast]

Look at how Professor Liberman's research on hidden hearing loss and other ground breaking otology research on cochlear noiception is blatantly ignored by audiologist and ENT's. It's proves the majority of audiologist and ENT's are a idiocracy that's so easy to find flaws in that even quote on quote

a bunch of highschoolers from chan boards

are more informed about research and defend ethics for people suffering.

Go on /r/tinnitus or Introduce Yourself on Tinnitus Talk and you see so many stories of people who have a history of noise exposure, known ototoxic medications but perfect audiograms, hidden hearing loss is a ignored phenomenon and proper awareness is not raised.

Another common theme is people immediately report pre-existing TMD/TMJ worsening or tooth aches after an acoustic trauma and tinnitus onset, my hypothesis is this is a sub-type of hyperacusis involving the trigeminal nerve being misdiagnosed.

The average person with a hearing aid or hearing defecit does not know about clinical trials for hair cell regeneration & and ribbon synapse repair, they are immediately taught to live with.

Don't even get me started on over priced hearing aids, and research suggesting atleast two forms of hyperacusis existing and medical professionals recommending lipoflavonoids (snake oil) for tinnitus.

I enjoy calling out corruption when I see it. There is a school of thought conflict between pallative and curative medicine and how teaching someone to manage suffering is unethical and I want this argument to continue.

 

[SugarMagnolia]

Mindfulness has been around for 2500 years. When are they going to stop reinventing it?

 

[threefirefour]

Mindfulness has been around for 2500 years. When are they going to stop reinventing it?

Again I'm so sorry we brought this upon the westerners. But it's not our fault you decided it was worth any salt medically :^)

 

[GlennS]

It's very much a zero sum game.

We'll have to agree to disagree.

Mindfulness has been around for 2500 years. When are they going to stop reinventing it?

When people stop forgetting it. Cultural memory is pretty short in today's Twitter world.

 

[PDodge]

Is it taking money from other research resources? If not than what is the problem if it helps people?

 

[threefirefour]

Is it taking money from other research resources?

Yes.

 

[PDodge]

Yes.

Do you know that? not being argumentative. Isn't it like a bunch of psychologists doing this and are they going to be the one's that come up with treatments? If it wasn't dedicated to T wouldn't it just be something else?

 

[threefirefour]

Do you know that? not being argumentative. Isn't it like a bunch of psychologists doing this and are they going to be the one's that come up with treatments? If it wasn't dedicated to T wouldn't it just be something else?

It was funded by the BTA, who also provides funding for other research. They helped fund MuteButton, and made research deals with Decibel Therapeutics IIRC. Yeah this is taking money out of the tinnitus research pool. The psychologists focusing on this aren't the same ones that focus on actually treating tinnitus, and if it wasn't dedicated to tinnitus it would be focused elsewhere, which is also why it shouldn't have come out of tinnitus research. It's like asking a homeless man for money.

 

[PDodge]

It was funded by the BTA, who also provides funding for other research. They helped fund MuteButton, and made research deals with Decibel Therapeutics IIRC. Yeah this is taking money out of the tinnitus research pool. The psychologists focusing on this aren't the same ones that focus on actually treating tinnitus, and if it wasn't dedicated to tinnitus it would be focused elsewhere, which is also why it shouldn't have come out of tinnitus research. It's like asking a homeless man for money.

Right on. Thank you!