My Posting Place

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I'M ALREADY DEAD TOMORROW!
 
It's the continuous funding and "stringing along" of TRT and CBT management strategies; and their presentation as a fully satisfactory cure that I and others are so vehemently against. It's a whole paradigm.

I think we're basically on the same page.

Indeed, we are on the same page :) Except for the fact that I have simply never heard any proponent of CBT claim that it's a "cure." Even those who administer it and those who research it, and I've talked to a few, will acknowledge it's just something that can provide some relief until we have an actual cure. As for funding, I don't think it's quite as bad as you believe; only a small proportion of tinnitus research funding goes into CBT and related stuff, see this recent post from David with some hard data on that.
 
About the language tread, I speak French (native language), English and LSQ (Quebec sign language)
 
Ross O'Neill 9:23 PM

Hi Robert, Many thanks for your message and your interest in our technology.

Our Chief Medical Officer, Mr. Brendan Conlon ENT, presented the positive 12-month data from our 326-patient double-blind randomised TENT-A1 trial to the US ENT community at American Academy of Otolaryngology in Atlanta yesterday.

The journal publication is in preparation by our Chief Scientific Officer, Prof. Hubert Lim, and our Science Advisory Board, Professors Berthold Langguth, Sven Vanneste and Deborah Hall, and will be submitted to a high-ranking journal shortly to go through the peer-review process.

We cannot publicly disclose the data at this time as it would undermine the peer-review process and jeopardize the publication.

However, I can promise you that the journal paper will be open access when published so that everyone can access it for free.

Thanks again for you patience in waiting for the data and your continued interest in our company. Keep an eye on the company Twitter feed for updates.

Kind regards, Ross

Ross O'Neill

Mutebutton Update:

I'm sorry to get everyone so hyped. I actually feel really bad and upset that I made everyone so excited for nothing.

Looks like were gunna have to wait around 3-4 months for the peer review process to finish and for them to release the information. The good news is that if they are going to peer review, one would optimistically think that it is somewhat legit. @Steve, who talked with them personally, seems optimistic about it and I have faith in his opinion on this matter. @RCP1 also mentioned that a very high up ENT in Ireland is on board with this device, which one can assume works or else the doctor is jeopardizing the integrity of his career.

I understand that this is very optimistic thinking, but to be honest that's all we have going for us right now. I know this product isn't going to cure us, but it may help many of us reduce our symptoms.

Again, I apologize for hyping everyone for no reason.
 
Mutebutton Update:

I'm sorry to get everyone so hyped. I actually feel really bad and upset that I made everyone so excited for nothing.

Looks like were gunna have to wait around 3-4 months for the peer review process to finish and for them to release the information. The good news is that if they are going to peer review, one would optimistically think that it is somewhat legit. @Steve, who talked with them personally, seems optimistic about it and I have faith in his opinion on this matter. @RCP1 also mentioned that a very high up ENT in Ireland is on board with this device, which one can assume works or else the doctor is jeopardizing the integrity of his career.

I understand that this is very optimistic thinking, but to be honest that's all we have going for us right now. I know this product isn't going to cure us, but it may help many of us reduce our symptoms.

Again, I apologize for hyping everyone for no reason.
You're damned if you do and damned if you don't. Initially they released it fast without proper research and got panned. Now they are taking their time and making sure to do things right and they get panned :D

They've taken the time and got some pretty impressive names on board with the testing and with the company. One thing for sure is that the results will be as valid as they come.

I'm most excited because if it all comes out good then we've got a nice race on our hands for different forms of bi-modal and it will push research in general forward.
 
TT members if the device fails peer review. :D

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Just joking here for laughs! Not suggesting anyone should do this. lol

Shoutout to @85dB T for inspiration.
 
Lars is a good drummer who gets unfairly ripped on strictly because he has a weird/arrogant personality and plays in the most scrutinized heavy metal band in history. Obviously not the best compared to say Chris Pennie but Lars is more than talented. Now obviously the best days of Metallica are behind the band and his drumming is not as complex as it was on say And Justice... (I liked Hardwired, good not great) but as a drummer myself I get tired of seeing Lars dragged through the mud... just my opinion and I mean no offence personally bro
He is definitely talented. I'm more of a Menza/megadeth guy myself
 
Lars all the way for me, but then again I was a teen metaler. Probably the moshing that buggered my neck and contributed to the somatic tinnitus.
 
Indeed, we are on the same page :) Except for the fact that I have simply never heard any proponent of CBT claim that it's a "cure."
You are right. I should have stated "satisfactory solution", not "cure" (more on this later). Also - I am referring principally to TRT, not CBT.
Even those who administer it and those who research it, and I've talked to a few, will acknowledge it's just something that can provide some relief until we have an actual cure.
I am very glad to hear this. I obtained a different impression from what I read online, but I will readily acknowledge that as a real-life tinnitus activist you have much more in-person knowledge of the matter. Again, please note that I am referring principally to TRT.
As for funding, I don't think it's quite as bad as you believe; only a small proportion of tinnitus research funding goes into CBT and related stuff, see this recent post from David with some hard data on that.
I hear you, and I would be very glad if this is true (I'm not saying it's not true. Lol)
As an aside, I want to post further on this, specifically regarding TRT, its widespread clinical acceptance and the implications of that. I plan on doing a write-up. Just saying. (Lol)
Thanks @Hazel for your response, and for all that you do. (No Lol) (Lol)
 
Also - I am referring principally to TRT, not CBT.

Ah well, that's a different story indeed. I am personally also suspicious of TRT for the simple fact that no one's ever been able to explain to me what it is (!). Google CBT or mindfulness and you'll find plenty of reputable resources that clearly and consistently describe the techniques, but TRT apparently can mean whatever the proponent says it means.

As an aside, I want to post further on this, specifically regarding TRT, its widespread clinical acceptance and the implications of that. I plan on doing a write-up. Just saying.

I'd be very interested to read it. In fact, if you'd be willing to provide an outline of your piece we could consider publishing it as a blog post? If you're interested, PM me, Markku and Steve.

Thanks @Hazel for your response, and for all that you do. (No Lol) (Lol)

Thanks, much appreciated!
 
Ah well, that's a different story indeed. I am personally also suspicious of TRT for the simple fact that no one's ever been able to explain to me what it is (!). Google CBT or mindfulness and you'll find plenty of reputable resources that clearly and consistently describe the techniques, but TRT apparently can mean whatever the proponent says it means.
I hear you. I found the following article (by Pawel Jastreboff and Margaret Jastreboff) to be a pretty clear, if short delineation of some parts of the TRT treatment model, although the counseling segment (which presumably takes up the lion's share of TRT treatment time) does indeed seem very non-specific, for lack of a better term.
https://www.audiologyonline.com/articles/tinnitus-retraining-therapy-an-update-1286.

I'd be very interested to read it. In fact, if you'd be willing to provide an outline of your piece we could consider publishing it as a blog post? If you're interested, PM me, Markku and Steve.
Thank you for your interest. I plan on doing the write-up, but I'm something of a perfectionist so it may take a while. I also need to see if I can find sufficient info for an accurate description of TRT, and for an overall valid epistemology.
Cheers :)
 
Required reading for every MPP:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3763750/

Some quotes:

"Finally, Jastreboff and Hazell have been very effective in advocating and promoting TRT relentlessly to the clinical community, offering structured training courses internationally for clinicians to learn how to conduct TRT. Participation in and completion of a TRT training course has effectively served the tinnitus clinical and patient community as qualification to conduct TRT. These ongoing training efforts, together with numerous presentations at professional and scientific meetings by Jastreboff, Hazell, and independent clinicians using TRT, propelled TRT to the forefront of treatment for debilitating tinnitus at the turn of this century."

"Jastreboff and Jastreboff ... contended that an appropriate test of TRT would be a "meta-analysis" of studies from multiple sites using the protocol. They also argued that "a randomized trial with some agreeable controls" is unnecessary because "the validity of this study, time frame, and sample of patients will be questionable and will face many ethical issues""
 

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