Member- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
My Posting Place
- Thread starter threefirefour
- Start date
no way that's not all potential treatments. potential treatments are in clinical trials right now that are actually treatments. go check out @PolishSoldier87 's research.
maybe all we have to do, perhaps, is find a method to enhance the gene atoh1's expression in our bodies. Why not help us figure this out?
wrong
PCA (progenitor cell activation) for cochlear hair regeneration via Frequency Therapeutics
NT-3 for cochlear synapse repair (Professor Liberman mentioned this) and I believe Otonomy& Decibel are working on something in the near future related to this.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
John that stuff you're taking.....I know it's orally but what are you actually consuming that a layman would understand?
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
Still, Fx is NOT for tinnitus. And you have to have a certain degree of hearing loss to be eligible to receive it/for it to work.
I am not putting my hopes up for something that is not even oriented at treating T......or H for that matter.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
I am a little happier if some actual serious research is there for both T and H combined. I don't understand much of what PolishSoldier87 has wrote, but I am hoping it is good news for potientiel future treatment for T+H
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
You and me both. Polish soldier has taken science to a level way beyond my comprehension.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
I dont speak science or Danish.....I speak English like you wouldn't believe tho.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
@TheDanishGirl how long have you been enjoying T for?......Note my positivity and how I'm subtly CBT'ing you with my query.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
ha ha, i like that
T since may 11th 2017, began as a faint ringing in my left ear and 3 days later moved to both my ears and became louder/more intrusive. H started 3 weeks later and it has fluctuated a bit in severity, but lately it has gotten worse.
Ouch. Sorry. You've been in the trenches for a while now.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
Yep. It is quite remarkable that almost 1½ years has passed since onset and I am not really any better. It has felt almost like a lifetime those 1½ years because it has been so rough living trough that time. My old life seems very far away as of now. I guess that is both a blessing and a curse, if you know what I mean.
Better to forget about the "old" life, if there is no possiblity that one will get it back.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
Yeah i gatherer from your profile that Jastroboff might struggle to help you with his wonderful life saving therapy.
The grief is awful. It's very rare in life to have to witness your own death of sorts in such a stark and painful way. Also I fully agree that time passes horribly slow with this.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
Yeah, which is really not what we want, when we are in a waiting room for a future treatment or cure.
I can somewhat get by as of now.......sort of, but if it gets worse or my H stays at this level, AND if I were madly rich I would pay some doctor to put me in a false coma, until a treatment arrives. Just sleep the time away.
Curcumin, 7,8 DHF, EGCG. Google them. So far, not healed.
Curcumin actually seems to make my T go down, at doses that turn my hands and feet yellow.
7,8 DHF makes me feel focused and less depressed.
EGCG also seems to make my spikes less frequent.
This is all subjective and anecdotal.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
Is that even possible?! How long can one remain in a coma? I thought about getting some dodgy doctor to anaesthetise me for as long as humanly possible and seeing if that changes anything.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
Sounds plausible. Maybe the brain will forget T? .....Would be really shit to wake up 10 years from now still with nasty T though. I think I would rather just be put in to a neverending coma personally.
Bones heal, nerves can regenerate, flesh heals, not cochlear hair cells. I think that is the majority case for us, damaged cochlear hair cells from noise and or ototoxicty. Being anesthetized isnt going to heal that. It may hit some kind of perceptual reset switch but I honestly doubt it. I think the best bet for most of us is inducing cochlear hair cell regeneration. I also think that there is a very very good chance some kind of method accessible to us now can achieve this. @PolishSoldier87 has identified celestrol as an enhancer of the gene atoh1, which is implicated in the regeneration of hair cells. I'm weary of taking therapeutic doses of this.
DONT FORGET ly411575 achieved hearing restoration in rodents when administered orally, it just had toxic side effects. There has got to be a natural non toxic substance that does the same thing. I 100% believe this. oral administration also would be better at restoring a wider range of frequencies because it is systemic. I think we need to huddle and get serious about our research. @PolishSoldier87 actually has been helping and he doesnt even speak English as a first language. If we are motivated, which uh, we all should be, we should be making ourselves experts in this field and researching and digging into this. Dont be afraid to research medical papers and google terms that you dont know about. This forum has amazing untapped potential and there very well may be a method for us to achieve a solution to our suffering.
JOIN THE MPP RESEARCH TEAM.
I think the bimodal stimulation stuff is not loud. Unless it would still be a problem for your level of hyperacusis.
-hug-
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
Oh dude I'm sorry you're dealing with this while having a young family. It's really shitty.
Whoop sorry. I meant to click like but I clicked agree and didn't have the willpower to change it.
Hope your couch is catching the nice Zs.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
That was my thinking that maybe the actual brain might forget to create the freakin noise.
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