MemberWhy x2 can you not modulate your tinnitus? Well the uMinn device works on people who can't do that, but it's probably going to release in 2024...
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- Thread starter threefirefour
- Start date
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
no i can't really change the tone, the closest I can get to that is flexing or stretching a muscle(idk which one or how to do it exactly), but that only increases the tone in my left ear
I think that qualifies. Because it proves the tinnitus is influenced by DCN signals.
"KIND OF hear it in a silent room IF you're wearing earplugs"
You lucky bastard you!!!!
If I may ask do you have HL?
Either way, thanks for still sticking around!
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
interesting, no idea what a DCN signal is, (and you don't have to explain it) but good to know that it may work for me
No I don't have any hearing loss. That was a source of controversy back when I joined.
Erm also erm FX TX released an awesome video does that count
:/ yeah I'm that desperate, a video with a speech is big news.
IM JEALOUS PROTECT YOUR EARS K????
Also you're great and please stay, but what keeps you here in that case?
I've always had sensitive hearing so I've never put them in a bad situation to begin with.
I wonder if I should go to my ent to make another hearing loss test. The one I did almost a year ago showed no hearing loss. I don't want to give her another 25$ for her stupid spin on chair tests
I too always had sensitive hearing but then I ruined my life with one night in a bar and I can't live anymore
i never had sensitive hearing despite autism, since 2011 I was exposed to loud exercise classes, loud music on headsets sets, people yelling at me, extremely loud ear rape memes, not giving a fuck about my hearing.
i honestly don't know how i got away with it for so long. I broke the camels badck.
it literally gets me upset when normies try to dismiss sensitive hearing as an autism trait and not cochlear damage and the fact that I made a decent recovery is even more bullshit, then again I'm still in an awful position.
i honestly don't know how i got away with it for so long. I broke the camels badck.
it literally gets me upset when normies try to dismiss sensitive hearing as an autism trait and not cochlear damage and the fact that I made a decent recovery is even more bullshit, then again I'm still in an awful position.
we all have some hearing loss. it's not like one hair cell, one synaptic ribbon or any tissue from the cochlea to the audotory cortex did not die in your entire life.
dorsal cochlear nucleus,
btw do you play Sm4sh, even though the game is at it's end life? I noticed you made post about it.
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
not really, i played it a lot a like a year ago, but i'm just patiently wait for smash ultimate
Is this a scam? Anyone live in Florida?
http://www.mysuncoast.com/health/ne...cle_e024c108-a6c5-11e6-91e5-134479355d04.html
http://www.mysuncoast.com/health/ne...cle_e024c108-a6c5-11e6-91e5-134479355d04.html
- Oct 17, 2017
- 642
- Tinnitus Since
- 2005
- Cause of Tinnitus
- unknown - possibly hereditary
There's no saying FX322 will work for tinnitus. Hearing loss and tinnitus are clearly strongly correlated, but we cannot assume that hearing loss is a direct cause of tinnitus, otherwise, surely every deaf person and severely hearing impaired person on the planet would have it. There has to be something else going on in the brains of tinnitus sufferers that is leading to maladaptive plasticity.
You seem far too transfixed with this one potential treatment option. My personal opinion is that it won't help tinnitus, but of course, I'd love to be proven wrong. Time will tell. However, you cannot just speed up the drug trial process; it takes around 10 years for a new drug to come to market and you're not going to change that. The various phases have to be completed.
This drug is definitely the best possible hope for a tinnitus cure for those with NIHL and probably ototoxicity induced hearing loss. Look, I know you arent interested in this, so dont accuse me of being too transfixed as if I have a problem. On the contrary I could accuse you of being too apathetic about raising awareness of the only thing that could help us in the near future.
It is a very good hypothesis that tinnitus is caused by loss of hearing from damage caused to the cochlea and if that can be fixed then tinnitus will go away. Do you have a better idea?
And it already has been shown to restore hearing in deafened mice. Humans have a larger orafice in the cochlea for the drug to enter into.
If you dont want to be a part of a push to try this drug then dont. I cant possiby understand why you wouldnt want to be. You have NIHL, and thus tinnitus.
It could work. All I'm saying is I don't see why you're so exclusively fixated on what Frequency tx are doing. There's not much we can do to change the regulations around new drugs. The good news is that they already exist, so if FX 322 shows clinical efficacy, then we have something that could help people with hearing impairments and possibly tinnitus. I just wouldn't get too carried away until we see some clinical data. This lesson was all too apparent after the drug trials for AM-101 and AUT00063 showed they were not efficacious.
I'd say wait and see what the data says before you start shouting from the rooftops. Also, Frequency are a private company whose goal is to make money, so you would have to lobby governments to have any affect on the drug's distribution and release timescale (if it works).
@Ed209, what gets me, from my own experience, is this: when I was young a rifle shot made my ears ring loudly until much later the next day. This was the same tinnitus ring I have today, at least similar. How is it I had tinnitus thirty six to forty eight hours and it went away?
An event over five years ago caused my current level of tinnitus and reminds me of my childhood experience. I waited overnight, no change, three days, no change, five years, same.
Why did my brain not auto correct to cancel the tinnitus like it did when I was young?
(I read an article about this plasticity but can't recall or find it)
I'm already convinced hearing loss regeneration will help most cases of tinnitus, unless we just want to ignore cochlear implant stats, middle ear surgery stats, and even removal of ear wax and tinnitus fading, oh yeah and hearing aids over time, but I do root for other treatments like UoM signal timing, and experiments with epilepsy drugs.
- Oct 17, 2017
- 642
- Tinnitus Since
- 2005
- Cause of Tinnitus
- unknown - possibly hereditary
@JohnAdams no offense dood but Eddie is right. You're transfixed on FX and there's sadly no saying it'll help tinnitus. I bet it won't help many people with tinnitus. Can we record my bet and come back to it in 5 years? I can then tell you I was right.
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