My Posting Place

#9,451
JohnAdams said:
I've got two university degrees, one in biomed engineering technology, and a ridiculously arrogant person in this forum has criticized my ability to understand medical papers I've studied and posted. So having a degree doesnt guarantee that people will take you seriously.
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take you serious, I don't know if I take Mimbo Shim serious.


That's what I'm saying.
 
#9,453
Contrast said:
take you serious, I don't know if I take Mimbo Shim serious.


That's what I'm saying.
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gadsie said:
That's dedication. Did it do anything?
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I feel like my hearing is clearer in my right ear and the tinnitus is certainly lower. My left ear is still basically the same. My tinnitus has moved primarily to my left side. My fleeting tinnitus has decreased in duration and overall it is changing, but not eliminated or to a point where I'm satisfied. I still have several weeks to see total effects so i'm still just waiting.
 
#9,454
JohnAdams said:
I feel like my hearing is clearer in my right ear and the tinnitus is certainly lower. My left ear is still basically the same. My tinnitus has moved primarily to my left side. My fleeting tinnitus has decreased in duration and overall it is changing, but not eliminated or to a point where I'm satisfied. I still have several weeks to see total effects so i'm still just waiting.
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Exciting, have you done any prior hearing tests to compare?
 
#9,456
Contrast said:
I wish, my original goal was starting classes for environmental conservationalism/environmental biology before my acoustic trauma gave me noxacusis, trigiminal nerve pain, tinnitus and muffled hearing.

I don't like to view myself as a snowflake, This isn't an 80's movie where hard work actually pays off, (and I don't even work hard anymore because I'm not motivated) because I'm depressed disabled with trigeminal neuralgia, muffled hearing my right ear and a couple of mental illnesses. (autism and borderline personality disorder) as well as awful circumstances

I'd love to go to higher schooling more then anything (except treatments) but the reality is I won't be qualified, I'm just a ranting raving lunatic intentionally posting thought provoking comments on the forum because it's the best way to spread my idea of research being a top priority.

Doing this is literally the only thing currently that prevents me from suicide and that's pathetic.

I'm starting to realize people who don't suffer from mental disabilties and pre-existing depression are capable of living with "noise induced pain" because the neurotypical brain is hardwired to adapt to horrible scenarios, the austistic brain can't adapt to radical consequences. If you read some post of mine I am literally childishly mocking people who learn to live with hearing damage.

I'm a failure, do not idolize me.
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That is actually a very interesting post. Contrast whatever you are you're clever.
 
#9,457
Contrast said:
also my mental illness causes me to view reality as a joke, that's why I make memes about my suffering or memes about very controversial issues. It's not that I don't care it's just that I'm immuned to strong emotions due to a mental rollercoaster.

If you always go from mania to depression eventually you start to view those emotions as an inconvenient illusion, I also get moments where I feel motivated to make a different and give up. (this is borderline personality disorders key traits) so then when I see someone else with strong passionate emotions about making a life change (I've already been there in and out a million times) and they fail and try again. I obviously will find crude humor from their struggle, because I've been on too many emotional rollercoasters.

One could argue my mind is riddled with anecdotal evidence and I just fail at life
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Are you happy? Do you have friends? What is your reason to continue living (that is not meant as a rethorical question)?
 
#9,458
From the BTA:

upload_2019-2-27_18-25-51.png

I guess that's why they keep funding mindfulness studies!
 
#9,459
Contrast said:
also my mental illness causes me to view reality as a joke, that's why I make memes about my suffering or memes about very controversial issues. It's not that I don't care it's just that I'm immuned to strong emotions due to a mental rollercoaster.

If you always go from mania to depression eventually you start to view those emotions as an inconvenient illusion, I also get moments where I feel motivated to make a different and give up. (this is borderline personality disorders key traits) so then when I see someone else with strong passionate emotions about making a life change (I've already been there in and out a million times) and they fail and try again. I obviously will find crude humor from their struggle, because I've been on too many emotional rollercoasters.

One could argue my mind is riddled with anecdotal evidence and I just fail at life
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One of my best friends is " bipolar", as somebody said, he's brilliant, hyper, a raging alcoholic who spent decades off the rails. He's now off the Librium, spelling, countless psyche meds, still drinks like a fish, but lands good jobs and has a kid. I know your situation is tougher than anything I have faced, but you've got serious potential. Don't give up buddy. You really got the gift. For what it is worth, and it sounds flowery and naive, a shit load of people value and believe in you. You're young, being young ain't easy. Don't sell yourself short.....enough said, be careful what your mind tells you, our perceptions are often illusions and are strongly influenced by our emotions. I feel for you bud, hang in there, I know your condition is debilitating, but the times are changing. America, my home, can be a soul destroying isolating place, if you get a chance get out for a little bit...I don't have any answers, just wish the best for you, and if I can help, tell me, I may be able to hook you up in Boston... try and keep a modicum of faith...there is light, take it from the old timers who have been through hell and back and hell again...take care.
 
#9,460
Daniel Lion said:
One of my best friends is " bipolar", as somebody said, he's brilliant, hyper, a raging alcoholic who spent decades off the rails. He's now off the Librium, spelling, countless psyche meds, still drinks like a fish, but lands good jobs and has a kid. I know your situation is tougher than anything I have faced, but you've got serious potential. Don't give up buddy. You really got the gift. For what it is worth, and it sounds flowery and naive, a shit load of people value and believe in you. You're young, being young ain't easy. Don't sell yourself short.....enough said, be careful what your mind tells you, our perceptions are often illusions and are strongly influenced by our emotions. I feel for you bud, hang in there, I know your condition is debilitating, but the times are changing. America, my home, can be a soul destroying isolating place, if you get a chance get out for a little bit...I don't have any answers, just wish the best for you, and if I can help, tell me, I may be able to hook you up in Boston... try and keep a modicum of faith...there is light, take it from the old timers who have been through hell and back and hell again...take care.
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i'm not an alcoholic at all, or do any drugs or narcotics. My own mind is a drug.
potential means nothing, even if I do have some gifted ability it will go to waste and I will end up a suicide.
 
#9,461
Enough of this bullshit. Why aren't the (blank) Tinnitus Associations in dialogue with Frequency Therapeutics and traveling to DC to lobby FDA people to hurry this stuff up? Why aren't they promoting legalizing IGF-1 for acute cases? I don't think they care about us. Our lives are just slowly wasting away and there is no priority here. We are just a potential market. They may have already cured tinnitus with FX-322 but we don't know because they are keeping it to themselves for now. What in the world is going on here?
 
#9,462
JohnAdams said:
Enough of this bullshit. Why aren't the (blank) Tinnitus Associations in dialogue with Frequency Therapeutics and traveling to DC to lobby FDA people to hurry this stuff up? Why aren't they promoting legalizing IGF-1 for acute cases? I don't think they care about us. Our lives are just slowly wasting away and there is no priority here. We are just a potential market. They may have already cured tinnitus with FX-322 but we don't know because they are keeping it to themselves for now. What in the world is going on here?
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The ATA's HQ is located in DC I believe
 
#9,464
JohnAdams said:
Tinnitus Associations in dialogue with Frequency Therapeutics and traveling to DC to lobby FDA people to hurry this stuff up? Why aren't they promoting legalizing IGF-1 for acute cases? I don't think they care about us.
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Heh! Are you serious, promoting legalizing IGF-1 for acute cases based on a few low sample studies? Do you realize how rigorous studies need to be for them to be accepted as commonplace in medical treatments? FX-322 isn't even through the trials yet!

Maybe it's because I'm older than you, but I cannot understand how naive you are. Look at Action on Hearing Loss or Hearing Health Foundation, they are one of the best organizations out there, and even they don't promote your crap (yet)... because they wait for actual results and studies to show more evidence.
 
#9,465
JohnAdams said:
Enough of this bullshit. Why aren't the (blank) Tinnitus Associations in dialogue with Frequency Therapeutics and traveling to DC to lobby FDA people to hurry this stuff up? Why aren't they promoting legalizing IGF-1 for acute cases? I don't think they care about us. Our lives are just slowly wasting away and there is no priority here. We are just a potential market. They may have already cured tinnitus with FX-322 but we don't know because they are keeping it to themselves for now. What in the world is going on here?
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Anyone that disputes this is a bureaucrat
 
#9,467
#9,468
#9,469
annV said:
Heh! Are you serious, promoting legalizing IGF-1 for acute cases based on a few low sample studies? Do you realize how rigorous studies need to be for them to be accepted as commonplace in medical treatments? FX-322 isn't even through the trials yet!

Maybe it's because I'm older than you, but I cannot understand how naive you are. Look at Action on Hearing Loss or Hearing Health Foundation, they are one of the best organizations out there, and even they don't promote your crap (yet)... because they wait for actual results and studies to show more evidence.
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Why are you here?
 
#9,470
@GSC damn you've caught on quick, ENTs (and AUDs) are clueless about hearing loss!! It would be absurdly funny if it wasn't so sickening!
 
#9,471
Welcome to MPP, a thread dedicated to post memes to raise awareness for a research and ultimately a cure for tinnitus, hearing loss and other awful otological conditions.
 
#9,472
Manny said:
@GSC damn you've caught on quick, ENTs (and AUDs) are clueless about hearing loss!! It would be absurdly funny if it wasn't so sickening!
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I was legit sitting there, educating them so they can help me while they tried to treat me for an ear ache. He was like, I never heard any of that before, or predinsone being used for that, so with that being said, there's nothing that indicates I should prescribe it to you. Here's some ibuprofren. AND THAT WAS AFTER I LIED and said I came into noise exposure with a gun shot. WTF?!?!?
 
#9,473
GSC said:
I was legit sitting there, educating them so they can help me while they tried to treat me for an ear ache. He was like, I never heard any of that before, or predinsone being used for that, so with that being said, there's nothing that indicates I should prescribe it to you. Here's some ibuprofren. AND THAT WAS AFTER I LIED and said I came into noise exposure with a gun shot. WTF?!?!?
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you became red pilled about what's going on really fast.

so sorry about your horrible experiences with audiologist.
 
#9,474
upload_2019-2-28_2-38-10.png

DJ with tinnitus, hearing was not fine.
The typical Muh 6 months reassurance.
 
#9,475
Manny said:
@GSC damn you've caught on quick, ENTs (and AUDs) are clueless about hearing loss!! It would be absurdly funny if it wasn't so sickening!
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yes, I red pilled her very early on.

Incredible to see what's really going on behind the curtains.
 
#9,476
@GSC - Welcome to the Red Pill. We didn't chose it, it was always within us. It sucks. Straight up. When I mentioned prednisone to my GP, she knew what it was, but was kind of taken aback that I knew and thought it would be useful for T. I also mentioned HBOT and she was like "oh....". I guess it's fair enough, she's a GP. I wish I'd asked the smug douche ENT I saw, I'd be interested in his opinion.

I feel bad for that DJ, he's not even taking the 6 months off. I think some people can get some fading in 6 months, based on my forum lurking, etc, but I don't think it'll happen with constant exposure.
 
#9,477
Drone Draper said:
@GSC - Welcome to the Red Pill. We didn't chose it, it was always within us. It sucks. Straight up. When I mentioned prednisone to my GP, she knew what it was, but was kind of taken aback that I knew and thought it would be useful for T. I also mentioned HBOT and she was like "oh....". I guess it's fair enough, she's a GP. I wish I'd asked the smug douche ENT I saw, I'd be interested in his opinion.

I feel bad for that DJ, he's not even taking the 6 months off. I think some people can get some fading in 6 months, based on my forum lurking, etc, but I don't think it'll happen with constant exposure.
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you need to explain to them that predisone helps hearing loss, THE UNDERLYING CAUSE OF TINNITUS.
 
#9,478
I will. Too bad I'm out of the acute stage now, and too bad GSC has had this shitshow of an experience.

Prednisone does have some side effects though, which shouldn't be ignored, but my understanding is that they tend not to stick around. Am I wrong?
 

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