Member- Jan 1, 2019
- 708
- Tinnitus Since
- Steadily worsening since 2018
- Cause of Tinnitus
- Unknown
My Posting Place
- Thread starter threefirefour
- Start date
fishbone
Member
- May 5, 2016
- 2,594
- Tinnitus Since
- 1988
- Cause of Tinnitus
- loud noise and very bad sickness
I don't like using that term, when it is referred that way. Tinnitus is a struggle I know it, we know it, those that are afflicted know it. Tinnitus has made us change our ways of living, the ways of our thinking and our actions towards a stimuli, I know it, we know it.
I read so so many posts on this site from newcomers and their frustrations with tinnitus. It's a shock and many cannot see how they will live with noise coming out there heads. I fully get it, I was in their shoes and I was frustrated as well.
When I got tinnitus 31 years ago, I was just like many on this site. I was looking to get rid of the ringing. I bought pills, tried many things and in the end I was disappointed. Even though I never found a cure to get rid of my ringing, I kept trying ways to make my life manageable and to find ways to live with this new reality of mine. It's all about trying and making proper adjustments to live with tinnitus.
I have had to lose lots of friends that did not respect that my ears hurt and they ring. I had to educate many people that use to laugh and not respect the ordeal that was going on.
I had to rid myself of family that would not respect my situation. It's all about seeing what helps us in life and what does not.
The keyword here is - "Trying". Did I have energy to keep trying, honestly not all that much. The tinnitus had mentally drained me and had me exhausted.
Some may like what I post and take it to heart, some may not, but one thing is not deniable, I had to live with this ordeal for 31 years and it has gotten worst for me due to the loud sound exposures that I have been associated with.
I still have to make adjustments in my life, I still have to plan ways to not make my ringing worst.
That's all I'm saying in my posts. I simply say that this guy has beyond intrusive T and beyond horrible hearing and he is able to live a life. It's not about being better or mentally stronger. It's about a glimpse of hope that it may give someone to see someone like me living a life and they can say "hey, he is motivating me". I get many messages from people that get motivated. People say, "thank you for your posts, you made a difference in my life".
That's my point of coming to this site, nothing more, nothing less
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
You're like a high school cafeteria.
That's what people would have said in my high school cafeteria.
I mean honestly MPP isnt an enigma or some exclusive club. It's basically a separate microculture on TT. There's a lot of overlap but MPP is culturally unique. If you go on TT you mostly get MPP but yeah as the guy above said it's a learning curve.
FounderWho else would like to see brownbear respond to people's questions in the Doctors' Corner?
Just wanting to get some feedback and maybe entice him to consider the position more
Like = YES
Hug = Not a fan of the idea
Just wanting to get some feedback and maybe entice him to consider the position more
Like = YES
Hug = Not a fan of the idea
So you have SSHL in one ear and low hum in the other? That stops when you plug your ear or for a second while you move your head left-right? Or stops for a day after a long bus ride? Just checking. We started multiplying recently. I wish we could draw some conclusions.
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
Man this could end badly.....Who else would like to see brownbear respond to people's questions in the Doctors' Corner?
Just wanting to get some feedback and maybe entice him to consider the position more
Like = YES
Hug = Not a fan of the idea
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
No I just have a constant low hum in my good ear for no good reason. Luckily nothing compared to the shitstorm in my other ear
No. I will not for I am content with my tinnitus as it is even though it can ramp up to severe levels. It took me 4 years to habituate for the 2nd time and my tinnitus sent me to hell and back. I have improved and I'm content.
Someone I know has noise induced tinnitus and I advised them not to try Neuromod. This person went ahead and used it. I do understand because when a person is in distress they will try almost anything to get relief. However, I was apprehensive as Neuromod uses headphones and plays audible tones through them. Now this person's tinnitus has got a lot worse and has contemplated suicide on more than one occasion. Neuromod may work for some people but I advise them to be careful if they have Noise induced tinnitus.
I am satisfied with my tinnitus and will not rock the boat.
Michael
Wow an ENT who actually knows something about tinnitus.He's an ENT yes, from the UK (not secret, been posted in public before
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
I know something about having brutal tinnitus, that might be about it though
This is genius. He's funny and he's an ENT and he wouldn't say "hope this helps more than it confuses" all the time like Dr N. Dr N is ace and will get big points in heaven for helping so many people but is maybe just a tad patronising on the odd occasionWho else would like to see brownbear respond to people's questions in the Doctors' Corner?
Just wanting to get some feedback and maybe entice him to consider the position more
Like = YES
Hug = Not a fan of the idea
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
@Michael Leigh I'm with you on that - I wouldn't rock the boat either. Im too worried it might get worse
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
LOL, my wife says only my mum finds me really funny. At least there are 2 people now (my wife is lovely I should say - in case she ever reads this - which she won't)
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
@JohnAdams I think you fail to understand how someone with severe tinnitus might be panicked over the idea of a potential treatment making things worse.
I wish you good day and you are now blocked (I don't know how to do that but you are)
I wish you good day and you are now blocked (I don't know how to do that but you are)
brownbear
Member
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
I hope this confuses more than it helps. Got to go cos my youngest just threw up. Nothing stops you thinking about tinnitus more than clearing up someone's sick.
Why are you so afraid of hair cell regeneration drugs. Is there any evidence yet that they can worsen tinnitus?
Why haven't you tried it?
It's not a joke when stuff gets worse. I thought I was suffering, had a surgery for another condition that made it worse, more circles of hell et cetera et cetera. Don't ever underestimate how much worse things can get. Happy Saturday everyone.
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