New from Maryland

EdnaLegume

Member
Author
Dec 26, 2013
43
Maryland
Tinnitus Since
10/1999
Hi everyone. Been lurking here for a bit here and there and decided to jump on in. I started with pulsatile Tinnitus in October of 1999. Just started out of the blue one day. I recall being horrified that I was going to have to live with it forever. I invested in a CD player and headphones to get through the day at work. I also would position myself so that I turned my head to the left as it helped to quiet my tinnitus. That and sleeping with ear plugs somehow got me through and I eventually habituated. Became something I rarely thought about and was only bothered by when I would get sick and congested.

A few days before Thanksgiving in 2011 I realized I had a ringing in my other (right) ear. I was devastated. Due to the pulsatile tinnitus I had done enough research about tinnitus in general. I panicked for several weeks over my new noise and once again eventually habituated, only hearing it in a completely quiet room, IF I listened for it. I've been using a white noise machine at night along with a table fan for bedtime.

Sadly a few weeks ago I experienced what I can only guess is a nervous breakdown. Major case of anxiety/panic attacks daily. The increased anxiety and tension has flared my tinnitus (ringing only, no noticeable change in the pulsatile) considerably. I'm in the process of dealing with the stress/anxiety with medication and hoping once things settle down my tinnitus will as well. It's loud but I've decided I'm not going to care. I know I'll habituate and a decrease in my anxiety will improve the volume. At least I'm trying to be optimistic. I've become much more prone to anxiety over the past few years and I can't help but believe the two are related. As my day winds down, I typically become more tired and anxious, and that's when my tinnitus is louder.

My husband, good as he is, is not at all able to sympathize and not much good for talking about it. Quite happy to have found a forum with like minded folks to commiserate with and share support.

ETA: also slightly suspicious of TMJ as it's flared as well as a lovely side effect of the meds I've recently started.
 
Hi, Edna, and welcome to the forums!! We're glad you've joined us; you've come to the right place for lots of information and support from some great people.

I'm so sorry you're having a bad time right now, with the anxiety and panic attacks. Hope the medication helps you, and maybe once you begin to calm down, you can taper off that medicine since it is causing side effects. And yes, TMJ could definitely be a factor in your increased tinnitus. Have you been to a doctor or dentist about your TMJ? Here in Atlanta, where I live, I found a TMJ specialist. He checked me out, and, in my case, didn't find anything specifically wrong. You could look into finding a TMJ specialist, to see if anything can be done.

I have pulsatile tinnitus, too, and I've had several tests (MRI, CT scan, Doppler of carotid artery), and they were not able to find anything wrong. So, I've been living with it. I'm glad to hear from someone else who has PT who has been doing the same thing. Mine started suddenly, too, and I keep hoping it will calm down (which it has), and maybe some day go away.

Glad you joined us, and you're welcome to come here any time for support and sharing. Happy Holidays!!

Karen
 
I haven't been to a TMJ specialist, as it's only recently flared up. I believe my increased tension would be to blame and apparently jaw clenching is a side effect of this medicine. (It has brutal side effects that I'm confident will subside and should be a good med for my situation. I'm left to 'grin and bear it' for the time being.) I do, however, have a mouth guard that fits on my front teeth keeping my back teeth from making contact. It works very well and eliminated my night time clenching. I may just start wearing it during the day for the time being.

I did seek out an ENT about a year or so ago regarding the tinnitus. He wanted me to get an MRI and being as I'm horribly claustrophobic I kept putting it off. The doctor actually died of a sudden heart attack a few months ago and I've just never gone to a new ENT. I'm stuck in the thought "nothing can be done". Given my recent health anxiety, I may take up the offer for an MRI.. sedated of course. :cautious:
 
Hi, again, Edna,

I had an "open" MRI, which was a bit easier to take. (I'm somewhat claustrophobic, too). You could ask your doctor about it if/when you go to a new ENT. The open MRI didn't make me feel so totally closed in, and I didn't panic during the procedure. A word of warning: An MRI is kind of noisy, so if you have one, you might want to take some earplugs with you!

I wish you luck with the anti-anxiety med, and hope the side effects will subside soon. Hopefully, after being on the meds for awhile, your tinnitus will begin to settle down again, too.

Best wishes,
Karen
 

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